Questions while in Limboland

[mamamichelle]

Hello,

I was hesitant at first to post but after seeing the overwhelming support here I decided to go for it so bless you all for making me feel welcome.

I'm a 44 year old woman with a history of tics and headaches. Now my headaches are changing and seeing zig zags of light and white and blue flashes of light. Went to an opthomologist and he asked if I was having any shaking or tingling. So told him of the tremors in my left hand and tingling in left hand and left jaw/face. He saw me 3x in 12 days checking for optic neuritis since he was concerned of MS. My primary doc thinks I have migraine with aura but the meds he gave me dont take the headache away which feels sometimes like someone is trying to pull my eyes out. But no optic neuritis that he could find but he wants me to see a neurologist. So now that I'm really being aware of my body I noticed yesterday I had a headache and when I got home from work and was trying to make dinner I felt like my whole body was shaking and my hand tremor got so bad I was afraid to cut a potato. I became very weak and had to sit down as my legs felt like jello. My hand tremor is not just a shake but also a jerking motion. Also, the top of my right arm is hurting like inside pain, like I got a shot. Other problems are serious short term memory loss, unable to find words, and thinking I'm saying the right word but realize I didnt after saying it or someone points it out. I went to the store last weekend and just stood in the produce isle with no idea of what i needed. Thanks goodness my sweet hubby was there. I felt that way all day, like I had no idea what to do.

Not sure what is going on with me and am still waiting for the neuro appt.

Thanks for your support

[SickMomma_PDX]

Hi there! Isn't this group the best? :-)

Um, I'm not a doctor and I don't know a lot of details about it, but have you looked up Parkinson's Disease? The shaking and jerking and some of the other symptoms remind me quite a bit of what my dad has been going through and he was just recently diagnosed with Parkinson's.

Whatever it is, I do hope the neurologist you're going to see is a good one and can help you. Even if the headaches are "just" migraines, the neuro is a good person to see for those.

Try not to worry, but like Jan said, keep a list of your symptoms and take it with you to the neuro. My neuro wouldn't let me give her my list of symptoms and timeline, but she encouraged me to use them as I summarized what I'd been through in the past couple years. And it was very helpful to have something to remind me of some of the little things, since my memory is like Swiss cheese lately.

Good luck, and please let us all know how things go and what the docs think!!

cheers,

---SM

[mamamichelle]

Thank you both for responding. No headache in 2 days which is wonderful. But yesterday left the dog in the house while I went to work which I have never done, thankfully she was good! I think the forgetfulness is the worst. Also yesterday my ins agent sent me an email asking did I realize my car ins had lapsed.And the cc co called to say I was late, I'm never late on bills. I feel like I'm forgetting everything. And the shaking is so uncomfortable. I feel like everyone can see it. Do you think I have MS? And yes, this will be my first neuro appt ever and my appt is 8/17 but I think that is good so I will have lots of time to track whats going on with me. I agree that my anxiety can get the best of me so I'm on my way to the pool to meet a friend with a bottle of wine.

You are all so nice :)

[BOK2Bjan]

It's so great to have somewhere to feel safe to ask questions isn't it?  I'm glad you found the site.  I'm sorry you're going through this - headaches are bad no matter WHAT they're from.  To have the visual symptoms too must be frightening.  My only advice is to go ahead and notice things and write them down, but then try to let them go.  Anxiety can build up pretty fast and make our symptoms get all that much worse.  I'm not saying they aren't there, real, and disquieting - they are - but they can get worse with anxiety.  I know fear can work ME up.  I don't know what you like to do to relax, but while you're waiting, practice it often.

If you have any sudden severe symptoms, then of course contact your doctor.  But keeping a record of all you can remember about your medical history and what's happening now, will help when you see your neurologist.

I wish you well.  Blessings, Jan

[sllowe]

Hi there,

Thank you so much for your kind words. I'm glad you feel supported here.

Will this be the 1st trip to the neuro?  

Were here for you and can help you get ready for the appt. and the days that feel like forever until it gets here.

Thanks for joining us :)
-shell