Hey Guys!
How's everyones January so far! Been here on and off I know, very discouraged with this limboland, and feeling sorry for myself. Sometimes I feel I have no right to be here, because these docs keep telling me no ms.
Anyway, I'm done boohooing, and I have some updates and questions.
Okay, since I was dxed with the PsuedoTumor Cerebri, they have me on the diamox 2x a day. Still having pressure headaches from the high spinal pressure anyway. Just don't feel like going back to neuro. My neuro eye doc said the high pressure went down behind my eyes since being on the diamox. The optic nerve isnt a problem anymore right now. Have been having some vision wierdness. Doc doesnt know what it is. When I wake up from nap or from night when I move the pattern of where my hand last was, leaves like a moving pattern when I put my hand down. Hard to explain, I know.
Vesicare stopped working, only seemed to work for a few months. Everything came back, frequencey, not being able to hold, and not being able to go, pain burning, pressure, leakage, all back. He put me on an anti-depressant that is supposed to be able to help tighten the muscle or something with a low dose. Been on it two weeks, doesnt work, he said he wants to know whether it works or not, this is my urologist, guess I'll have to call him and tell him no.
Thats the update.
Heres my question.
Does anyone here ever get this painful scalp to the touch, in different places. Then it also starts to start a painful numby pins and needles, that sometimes runs from the top of my head to my neck. The painful scalp lasts sometimes for days. It feels soar almost like someone was rubbing your head or scrubbing your head for a long time, Anyone?
Gee, that felt good, its been tooo long. Thanks for listening. Hope theres someone who can relate to this new one.
You guys are all great! Missed this place lots!
Hugs!
Sandie