Pain, Pain and more Pain

[spastic]

Hi everybody! Does anyone have livido reticularis? I feel like my legs are getting suffocated.  My legs will not quit spasming and I have unrelenting pain in my hip. Going to see my pain specialist today any suggestions? She talked to me about having a nerve block done the last time I was there. Do they last long?

[gooddays]

A normal day for me is being numb on my legs, arms, hands and needles and pins, but I have gotten a little used to it, like I said before due to my PT and OT sessions,
Your pain is very real, we have all been there.  It makes walking a little hard and you could have a bad fall.  My recommendation is to massage your legs and rub them with lotion, not one with heat, because the heat will kill you with fatigue.  In my case it works.

If you feel that you are off balance and have coordination problems you may ask your doctor if you can use any assistive device, like a cane.  I know you are young and it is hard to swallow at first, but it helps you to walk with more confidence.  I always have one because my leg braces and cane are my lifetme companions according to my physiatrist.  I think she is right.  One suggestion, if you have to have one, do it with style.  It will help with your self-esteem.

I will always try to talk to you because of what you are going through, I have been there, and may people have helped at least with encouraging words.  Like I say, do not loose your faith, hope is the last thing to loose.

Keep in touch and ask away, if I do not know the answer someone in this great forum would have it for you.  Once you are here, there is no going away.  You are stuck with us.

Good luck and take good care of your self!!!!!!! Remember we are a message away.

Gooddays

[spastic]

She wants to give me one because I have a myofascial trp in my hip, but I don't know if she will with the possibility of ms. My first dx was fibromyalgia but at my last appt, he told me I don't have fibro but the possibility of still's disease, ms or a paracital infection, but they are ruling that one out as my labs coming in are fine, except that I have protein in blood and high blood cell count (I cant remember white or red). He made an appt with a neuro he said I had abnormal reflexes but everything is affecting my right side. Which that seems to be where most of my pain is, I'm not sure what to do. Do you have a numbing pain? My right leg gets so numb it hurts, its hard to explain it. Thank you for talking to me.  Ada

[gooddays]

Spasticity will hurt your legs hard and the pain seems to never go away. I used to have a lot of spacity, but once I started my OT and PT, they have help me a great deal.  I also take Keppra 500mg 3x a day.  I helps me to go through the day with less pain and it makes me easier to walk.  My leg braces help a lot and these are the third kind that have used through out my 12 years figthing with the monster,  At first, I saw them and did not like them, they are not a fashion statement, but I can vow for the work and the extra help they are giving me. When I was not working with the therapists and my braces were being assembled, I would come home with a pain that was burning my hips and also my legs.  

Of course, do not take my word for it, I am not a medical professiona,l, but I am telling what has worked for me.  There are still times that the pain is unbearable, but if I am hurting so bad, i will get in bed and rest until the pain wanes.

About nerve block, why are you having it?  Have you been dxd with MS?  The reason I  asked was because at first when they did not have a dx for me, one of my suero sugessted nerve block, but because the pain was not related to a herniated disk or anything in the matter, it did nothing for me.  I had 3 done in a six months period, but the pain was never gone.  The procedure is a little painful, unless you ask for a topic anesthesia, and then you feel groggy the rest of the day.  I never asked for it, and even the doctor said that not everybody can go through the process with out being numb.  I did.  The first time I had it, I was ordered to stay in bed for a week, which I did.  My recommendation is that you talk to your doctor before the procedure and by now you should now, that everyone is affected differently.  I am not trying to scare you, just go for the facts and what is best for you.

I hope I have help with my two cents worth and that it will help make a decision.  Please go see your pain specialist and good luck with your treatment.

Keep us postedd, if by the way, you have not been welcome, WELCOME TO THE BEST MS FORUM.  We are just a message away.

Remember, we have MS, but MS does not have us.

Have a good day and a good weekend:)
Gooddays

[spastic]

I take flexeril every couple of hours and it just doesn't seem to get it under control. Is it cold where your at? Its 5 degrees here in iowa. finding the colder it is the more spastic I am. I am curious about verapamil, I take imitrex for the migraine but they are so expensive. Thank you Stacey for replying, its so nice to not feel alone anymore.

Ada

[SOONERMOM]

Yes, I have that levido on my arms and legs.  I recently started on verapamil for migraine prevention and it looks a lot better.  I guess whatever you are currently taking for spasticity is working?  I have just started down the spasticity road myself and know nothing about nerve block.  I am sure someone else will though!  I hope you can find  some relief, I am sure that you are miserable!

Stacey