Newbie - hi there

[breakingfree2013]

Hi - I am on the road of a possible MS diagnosis - I personally am convinced I have it . The doctors don't have evidance. I am only 27 but after a really bad pregnancy I got really sick - I ended up with a type of dysautonomia called POTS syndrome (hard to explain look it up if you want ) but anyway since my POTS diagnosis I have had a ot of MS symptoms. .Tingling /vibrating feelings in my feet (both ) mostly in the evening. tingling in my hand mostly my pinky and 2nd to last finger) for the past week I have had very light tremors that are hardly noticable thru out the day- sometimes i will have bad full morning tremors upon waking in the morning. I dont have weakness as of yeet but the tremors are really bother some and bring on more anxiety- doctor is not conivonced- I had a small fiber biopsy done on my leg back in Feb which was negative for neuropathy ; I also had a MRI of my brain last november (nov 2012) which was negative and this is why they are not concerned. So those with MS how did your start ? symptoms like that? I also had a bad case of vertigo 3 weeks ago and it lasted a week - the doctors blamed it on vestibular neuritis or my tmj. its so hard dealing with so many unknowns at 27... and around the holidays . encouragment appreciated

[Dancedance405]

I'm sorry to hear your story... I too am trying to find out if I have MS.  I am only 28 and female with a history of migraines.  My MRI came back with evidence of scarring from the T2/FLAIR with hyperintensities in periventricular, left side of brain.  Anyway.... I too have numbness in my feet and last two fingers.  It's been that way for a few years.  Did you ever have chicken pox or shingles or even fever blisters?  I've had all 3 and wonder if this is related as I'm seeing lots of info on autoimune disease and MS

[breakingfree2013]

Hey Kyle - sorry about the OI . I havent seen the neurologist yet ! I am so sick of the testing I have gone through so far - but thinking about heading up with a neuro doc if things persist. Probably better to see Neuro for my POTS anyway - i just see cardio right now - I had an MRI/MRA/MRV done of my brain nego for MS . never had the spinal or MRI of the spine though. I was tested for lyme and also saw a lyme specialist I have had SO many darn blood tests its insane  - Thyroid is fine , had even a thyroid biopsy, ive had multiple CT of my brain, CT abdomen /pelvis lots of work up on the belly when i was going thru the POTS stuff. I have had a high ESR and an ANA of 1:160 speckled. my rheumo thinks i have lupus but i doubt it - I dont even meet criterea lab wise OR physically shes just guessin :/ i tell her about the tingling she just shrugs it off. its so hard to tell and after a year long of testing i dont even know where else to start looking!

[kwarendorf]

Hi BF- Sorry that you had to come looking for us :-)

POTS is not entirely alien here. I have a cousin condition, orthostatic hypotension. On some occasions when I stand from sitting I get very light headed and need to grab on to something. The difference is that I don't have the rapid heart beat associated with POTS.

SOme of the symptoms you describe could be caused by MS. The only way to find out is to look specifically for MS. Are you seeing a neurologist that specializes in MS? In addition to a thorough clinical exam, the road to an MS diagnosis often includes MRI's with and without contrast of head, c-spine and t-spine, blood tests to rule out myriad MS mimics, like Lyme disease and a lumbar puncture.

Have any of these come up in discussion with your doctor?

Kyle