Try again...

[skarey]

I am reposting this message.  
  Thanks everyone for your advice on My Dr from HELL!!!  Come to find out he couldn't interpret my NCS that my PCM did.  He said he couldn't interpret them and that they were incomplete.  Does that make sense?  Shouldn't he still have seen me to go over my symptoms and check me over?  Weird.  Doesn't make sense.  Anyways I did go to the eye dr on Thurs due to the pain in my eyes.  He said the health of my eyes looked normal, but that  I was a little farsighted.  That's it.  So that was good news.  But as far as my other symptoms go I am lost and confused.  I'll give what is going on in a nutshell and maybe one of you can shed some light on my case.
   All the symptoms started in May about 2.5-3 months after giving birth to my second child.  It started as a strange sensation in my left leg.  Felt like I had goosebumps even though I didn't.  That lasted for a week or two.  Then my left hand and arm started feeling weird and hurt.  Then before I knew it all four extremeties were effected.    My arms and hands were hurting  very badly and had occassional tingling in the palms of hands.  My feet also hurt with occassional tingling.  Also around the same time my eyes and ears began aching.   When I went into my Primary Dr she ran blood tests: My CBC was normal except for some elevated Liver Enzymes.  So they did furter tests for hepatitis which came back negative.  Had an xray on abdomen and everything was normal.  Went back to dr for continued pain and problems. Had a brain MRI which was normal.   She checked for Arthritis- negative and B12 and folic acid deficiency which was normal as well.  From there they did a NCS  which came back abnormal in legs/feet  but normal in upper body.  So they referred me to a neuro.   Now the left side of my face gets weird numb sensations  and I had weird twitching all over my body that lasted for about 3 days or so.  The twitching is gone now.   Also I forgot to mention that in the end of June my symptoms ceased.  I thought "Yes it is gone", but then returned about a week later.  And now again,  my symptoms has ceased dramatically.  They have been barely even there for going on 3-4 days now.  
  Does this seem like MS or do you think it is something else.  
  Other than the nerve pain in my arms, hands and feet I feel pretty well.  But at times that pain is really bad.  I rarely have any numbness/tingling anymore either.  Also I've only had like 2 episodes where I felt really weak. But it only lasted for a day  each time.   No vision disturbances, no heat intolerance, no balance problems, and no problems walking.  I have had some pretty bad fatigue lately, but don't know if it is related ( I have a 5 month old and 3 year old)  The pain in my arms feels like shooting pains from my elbow that goes to my hands.  Feels just like it does when you hit your funny bone.  And my feet only bother me on the soles.  Anyways I  have rambled on and on.  I'm just really worried and kinda alone.  Would appreciate any help as to what this may be!!  Thank you to all.  You are wonderful listeners!!!!
   Skarey

[Quixotic1]

Hi, I see all your questions.  There have been some emergencies on the board today and important things inmy family I need to deal with.  I haven't forgotten you.  Quickly, when I look ast your history my first thoughts with the elevated liver enzyme and the pain in both arms beginning at once, it sounded more like a viral infection or someother kind of infection.  Either that or an autoimmune process.  Then when you mentioned Lyme, it clicked even more.  while other things are being doen, yes you SHOULD have definitive Lyme testing.  If the ELISA is positive, great, but if it isn't you need a Western Blot for Lyme disease sent to a laboratory that specializes in Lyme and other tick-borne infections like Ingenex (that's the lab name).  You can find them on line if your doctor doesn't know what you are talking about.

Be back tomorrow.  Q

[Quixotic1]

I was going to answer your post later.  When I do one of these, I put a lot of thought into them and they are tiring.  Even if you slide off the page, I'm not forgetting you.  

Did the problems in your hands and feet and arms begin on both sides at once?

You've been very, very tired befoe.  How does this fatigue compare to those times?

Oh, and the "excuse" given by the neurologist.  No it doesn't make sense.  He should have seen you, examined you, told you that the tests weren't reliable or interpretable and that he needed to repeat them.  I think I know the answer to the alternatives I posed.  The man is a Prima Donna and an immature one at that.  What he did was throw a temper tantrum.  He needs a spanking!  I also suspect the tantrum was to show his disdain at the non-neuro's NCV test.    If he wanted to throw a tantrum, doing it in his waiting room to you was cowardly and childish.  He should confront the doctor that did the supposedly uninterpretable tests directly.  I would heretofore refer to his little act as a "tantrum."  It deserves no better name.

I'll get back to you later after I've rested.  I used up some reading/writing energy on a conversation.  If I only answer questions, without indulging in and enjoying the feedback and community, it's not fun/enjoyable for me and this is a major part of my social life.  I know you feel lonely.  this is a horrible time for you and you've been through an incredibly brutal trauma.

Everyone here is encouraged to ramble.  I would also encourage everyone to use smaller paragraphs to make it easier to follow on the screen.  A lot of us have dizziness and vertigo and bouncing eyes.  We need the format of paragraphs to keep place.

So ramble on, the weekends are often slow.  I guess other people actually have lives.  They'll all be by.  

Quix