Quix

[uk2]

Hi hope your well,

Iv tried to come off my diazapam as like you said i do think it effected my mood i was in a very bad flare and in pain so went from 2-4mg to 8-10mg in a week at night to try and stop the pain and sleep!!

Iv reduced it slowley now to 6mg and taken more lyrica at night so take i take 225mg of lyrica 6mg of diazapam and quinine tablets but i could not sleep because of the pain in my hips i just cant lay either side they cramp my feet cramp.

I did what everybody said and asked for another drug but she said for me there is not anything else out there she could give me that would stop the spasm and help me sleep she said i could try sleeing tablets do you think there better then diazapam?

she said it was not the diazapam that was effecting my mood but this flare and that i dont have answers which is also true she gave me seratripline i think its like zoloft or something in america but iv not taken it im depressed as im in pain!! not cause of a chemical inbalance in my brain.

im happy to stay on diazapam but at 6mg it does not help but more then that seems to cause a emotional reaction in me but works.

I am down, im 32 and i want a better life for the last year since Jan i have been searching for a answer, since may its been flare after flare and i cant work and like this week iv been house bound since last sat.

I dont think this is MS as on the first scan there are no lessions and for me to be in constant flare after flare there has to be a lession right as i would be in prgressive MS would i not!!

My friend who has had MS for ten years is fitter then me she has stomach problems she has wobbly legs sometimes and vegtio but shes run shes active she works. I dont get it!!

Sorry for venting it started off as a medication questions not sure where all that came from!!

Samantha x

[uk2]

Hi,

I never said i didnt want advise its why i come on this forum for advise, i was just confused if to or not take the antidpressant my husband is big time againts them for reasons i stated in my post earlir to Quix, it was Quix who suggested she would stay out of advise as she felt i was getting confused, i had suggested to stay away from the forum as i was over sensitive and down and did not really want to keep bringing this to this forum, but after the kind postings back i realise we are all a family and the downs sometimes are very down but i have people who love and care for me so have stuck around, i value just like im sure you do all the advise that people give but it does not always mean we go away and put it into practise.

I take a huge does of lyrica nearly 500mg diazapam 8mg and quinine 200mg plus many other things and i take my docotors advise very clearly but im just not sure if seraline is the right antidepressant for me, which i am going to discuss with her in a bit.

I love you all and i love your advise so please dont stop!!

There are some people i hold up with great repect on here you being one and have grown close to many on here too.

Take Care x

[Johnny Utah]

Hey Sam,
  
  If everyone throwing their ideas at you has you confused we can fix that pretty easy. But to have people to just be able to vent with when your feeling down and out seems important to me. We will all try and take a step back and stop giving advise.

  I'm a strong advocate of the medical system. I believe doctors are wonderful and well intentioned people. They deal with the sick and aging on a daily basis and for the most part do a great job.

  Depression is a serious illness and treatment is necessary. Clinical depression can be life threatening and should be treated by a professional not a forum. We are here to support you and help you get through this, a shoulder to cry on when needed. A place to vent a little when you've had a rough day. Or, a nice place to just stop by occasionally and see how some of your many, many friends are doing.

  Wishing you the best!

Johnny

[uk2]

Jazzy

Thanks Hun for your hug x

Doni

Thants so true, we are so unlike in many ways un-dx and in alot of pain, i try to stay away from but as you can see im back on again, i have built up some real relationships on here from sharing the same pain and will stick around, thank you doni, you know how wonderfull i think you are and the support you give to others is amazing.

Iv rested most of day came on here three times for ten mins then rested again, i have a neighbour bringing my kids home from school and though i love them dearly im not looking forward to it i cant even sit for long never mind stand!!

my eldest will have to help tonight its pizza as i cant do nothing else i have no family to help as mum and dad dead a while ago my husband is now in his new job so is gone form 5am in morn till 7pm at night.

Im going to try the antidepresant and see if it does lift my mood your right i can come off it if it is not working.

Thanks again doni you always lift me up hun xxx

[doni54]

I am so sorry that your pain and depression won't lift.  You sound so much like I did a few weeks ago.  I wanted to just give up, I was so tired of the pain and everything else.  Being undx just adds to the trauma.  If we could say we have.......and that is why we feel so bad, I believe it would make it somewhat easier for us.  I think not knowing for sure what is wrong with us just puts more stress into our lives which is not helping with the symtoms.

I wish so badly I could help you in some way.  Just know that you are my family now and that when my pain is unbearable I also get the dark depression, but we have to stick together to get you thru this.  Please don't go away, we need you as much as you need us!!!!!

Do whatever it takes for you to feel better, at least try the antidepressant, if it doesn't work the way you want it to you don't have to keep taking it.  Just keep experimenting until you can find something that helps. Your dr seems very supportive and willing to help you in this quest.

I am praying and asking for you to feel the love sent to you from this board and that your pain will go away or at least lessen in severity.

Love & ((((hugs))))
doni

[Jazzyfizzle]

Hi Sam, I just wanted to give you my thoughts and cyber hugs gal.

Jazzy

[uk2]

Quix

Im real up and down at the moment and my head is all over the place, iv read alot about sertraline and some of my friends have used it and had a bad effect, i also had a bad effect on prozac but i was fine on the amitripline but she didnt want to chose this for me this time.

I realise im depressed ( i over-react to everything) at the moment as you can tell from this past post.
so that was the only reason i would stay away i dont want to give mixed up advise or get over sensetive with the people who have helped me the most this past few months!!

I cant lose anything so i will talk again with my husband tonight and tell him that it might help me cope better with the pain and be less of a mess!! he thinks like last times which was years ago after the death of my parents that it will just turn me into a differnt person and just stop all my emotion.

when i get one or two days when the pain lifts i get a straight mind again and can think positive again.

Im sorry if iv caused you offence you can only give practical and medical advise.

I love and respect you,you are so much in demard it must be so hard for you, Im truely sorry i did not read or maybe take in what you said. i will hang around, and i hope my head straightens out soon x

Thanks for the HUG samantha x

[Quixotic1]

I understand why you're confused.  Just stay with us and we will refrain from throwing advice at you.  Let us just be your friends.  You need someone to share the pain with and our fun, and we need your support.  So don't go.  Please?  We love you.  We'll just stay out of the advice business until we're invited again.

Big, but gentle cyber (((((HUG)))))  Quix

[uk2]

Hi

johney

Thanks for advise it was of great comfort, im not sure either why they cant find another drug to help me sleep and ease the spasms., i manged it out yesterday on the school run first time in ages but today im back in bed after awfull rib pain and pain again. x p.s how did your trip go?

Quix

Sorry x i guess im abit mixed up at the moment my husband really does not want me to take these but i am going to anyway.

I think its best i stay off here for a while im so mixed up at the moment.

Had awfull afternoon had an accident twice from leakages from the back end, really down about that guess it might be to do with the cream for the piles i have oh joy!!

Sorry again know your busy and sorry you had to go over the same question i was ill so had not logged on and everyhting gets bumped so quick on here.

[Quixotic1]

I tried to explain this is one of my last posts, but your are in such pain and distress, I'm not sure you understood.  Many times -many, many times - an antidepressant is USED for the PRIMARY purpose of helping with pain relief, especially chronic pain.  It is one of the first tools used in Pain Managment.  The brain's chemicals - the neurotransmitters - get "reset" in chronic pain and the antidepressant helps reset them them so that the pain is not accentuated so badly.  It is not admitting defeat if you take them.  It will likely help a great deal, just on the pain issue alone.  Sam, I'm very serious about this.  If you were my patient I would definitely being trying a med such as amitriptyline or sertaline or paroxetine along with the Lyrica.

The diazepam is a useful med, but it "can" definitely cause worsening depression.  I can't tell you that was what was happening with you.  I think your GP is on the right track.  Certainly an increase in pain will cause depression. If you were better off with the higher dose of diazepam and being able to sleep, then that is important to know.  I CANNOT practice medicine here and chronic pain management is something I know very little about.

I also need Ambien (zolpidem) to sleep.  I use 5mg and have used it since the vertigo started many years ago.

I feel you should try the things your doctors are suggesting.  I pray for some relief for you!!!  Quix

[Johnny Utah]

Hey Samantha,

  Have you tried any of the regular sleep aids like Ambien? I have terrible time sleeping and Ambien works sometimes and sometimes it doesn't. I tried Zoloft, just gave me man problems which were worse than the reason I was taking Zoloft to begin with.

  MS does affect everyone differently depending on where the damage has occurred. I would not assume that because you had an MRI and no lesions were found you don't have MS. For that matter I wouldn't assume if you had a few lesions it was MS.

  I had a technician tell me that he could get different results on different days from the same person. An MRI measures fluid and I wouldn't find it to surprising to find different quantities of fluid from day to day.

  I can't figure out why they can't find another drug to sedate you to allow you to sleep. There are plenty of them out there, some have very bad side effects and can become habit forming, but thats where having a good relationship with your PCP helps.

  I hope you find something to help you sleep. Life without good sleep is barely life at all.

  Johnny