Hot is bad!

[lilmiss1999]

I have always loved the heat. Usually the hotter the better. This ear during the summer I noticed I became really weak, dizzy and nauseous when the temp rose.

I also noticed that my hot showers werre doing the same so I am now doing lukewarm.

I have had a few days of muscle spasms and craps on my L side. My leg and arm are killing me.

So I decided without thinking to take a nice hot bath and relax.

I am now sitting in front of the fan and I feel horrible.

After just a few minutes in the tub I started to feel very shaky and started to sweat. I stayed in there a little longer and it got worse. By the time I decided I had better get out I had the hardest time getting my legs to work. I dryed off and barley made it down the stairs to the fan.

I had the overwhelming urge to get cooled down.

I have heard about the hot water bath test but thought if I didnt get blurry vision (one of the sx) it meant nothing. I have gotten weak before but nothing like just now.

Very scary. I am currently getting on my hsbands insurance but wont have coverage until Jan 1st. The dr and I sure have a lot to talk about!

I also wanted to know if flares tend or sometimes come on slowly, peak for a while and then slowly subside.

I know about the instant problems that take many to the er but what avbout it taking a week for things to get reallly bad?  

This forum has been great and I hope everyone is feeling well today. I hope cooling down helps me.

Jen

[lilmiss1999]

Thanks for the comment. I am not dx yet. Still in limbo. I have had more sx come up in the last 6 months and until that point Ms was not even looked at.

I have been having neurological sx for years now but MRI and various other test came back normal. I did not have an LP or VEP.  

before sx started changing I also did not have (it seemed) like any type of remission. I think that is one of the reasons why no one even thought of MS.

Now that it seems to be more of a pattern and new things come up my dr wants to redo the MRI and have the VEP and LP done.

I know everyone seems to have a different experience but it is nice to know I am not alone in everything. I have just been lost. I do appreciate any feedback that is given. It helps whether or not anyone experiences what I do.

Thanks again

Jen

[Sumanadevii]

Jen, it would really depend on your own body and the type of MS you have..if in fact you are dxed.  

I know if the water is too warm, I become weak right then and now....holding on to the grab bar and tile walls.  I need to get out and now!!!  Luckily I am aware of the problem so the water is just a bit on the warm side..nearly cold.  You will have others that will say it is after the bath they become weak.  For some it will send them into flares that last days or weeks.  Mine lasted until I iced then I was fine.

The hard part of message boards is everyone's experience is different with MS.  In fact, in all my reading I had doubts I had it because while reading message boards many talked about remissions..........a foreign word to me.  I lost the use of a foot and lost it.  I never got it back.  I lost the use of a leg and never got it back.  Why?  Because I have a different type of MS than others on most boards.  I imagine those with PPMS that have not been dx have the same problem.

So, just be careful with comparing.  Sure ask questions and listen to answers but also take into account that your future MS dx or dx today may be different than others on the board.

Sumana