Answers to some questions.... Still trying to figure out what's wrong..Hitting all kinds of roadblocks!

[1tiredchic]

To: skyeblues,lulu54,deb61 & anyone else
Wow!! Thanks for all the replys.... I will try to answer some of the questions.. I have not yet seen a rheumotologist..My first apt will be on April 2nd :( I have only been to my primary docter for the joint stuff and they stuck me on celebrax and gave me a referrell and the ANA and Rheumotoid test both negative,,I also went to gastro doc and yes had a colonoscopy and upper scope they found inflamation in the stomach and small intestine,said is non-specific non -ulcerative colitis(pretty much don't know reason?)they put me on meds. My symptoms are weird . I get so much tenseness that just shoots up my spine it feels as if someone is putting me in a vice..And that I need to be stretched tremendesly and happens alot not just when stressed. My arms get weak, pain mostly my neck,upper back,pelvic bone,elbows,pain shoots down arm ,some numbness in hands.headaches eye twitches right eye.Have prolapsed uterus,urine leakage, fatique,sleep hypopnia's,chest pain etc.oh yeah balance is off sometimes.. I have had cervical MRI's(neck only)haven't seen report but doc said normal (I doubht that) but NO mri 's of brain at all.// As I said my blood work does show high sed rate,positive ASCA,low mpv,low sodium,low calcium,low vitamin d. I don't know I hope I can get answers soon.. My job is at stake, my family suffers..I'm only 38 I don[t know what to do????:(    PS almost forgot I  am also on blood pressure /heart rate meds as well ,I do have mitral valve prolapse,and murmur. i have had halter monitor my rate has gone up to 118 doing laundry and that's on meds. I know my vitamin level is now i think it was 20 it used to be 15./I love the ideal too of having med records accesable I do have my last bloodwork and some sleep studys i wish i had others ..I do notice that some of the things i listed as low were not even mentioned to me at all.. Gotta watch them i guess.  Thanks evreyone .PS to make matters worse I just found out my insurance is cancelled and my job may be in jeopardy..Boy I am a mess right now !!!

[1tiredchic]

Thanks for the replys:

My symptoms instead of getting better have been getting worse...

Eventhough I have had my neck mri turn out normal my neck hurts so bad I can't even describe it .... And my upper back

I get stabbing type chest pain in my left breastbone that feels as if someone has a vice on it.. OUCH!

My arms get real weak-- It is hard because the pain will shoot in my arms and legs feels as though not joints either veins or nerves or something

My bloodwork with the high inflammation, and the low mpv platelet count and the high IGA Asca (sacr yeast) not sure what other disease besides chrohn's this would represent? besides the low vitamin d and low calcium.. Have unspecified colitis with yellow diaherea

my tongue has a constant yellow tinge that i cannot brush off & I have been dehydrated feeling..

my back will feel as though someone is running their fingers tickling up my spine

I am going to a rheumotologist but i'm not sure if that is the right route?/

I don't know what is happening but I know that it is progressivly getting worse.

And yes my insurance cancelled has really put the brakes on at the worst time...

And my job I don't know it is up in the air because of cuts and I worry that with time off to go to these apts it might push it over the edge

The stress is really getting bad!! I'm not sure what to do at this point! I know I can't give up!

Thanks for the support!!!

Jen

[skyeblues]

I was thinking maybe you might try posting in the arthritis forum.  Some of the people there might have some insight into some of your symptoms.

I went to the rheumatologist last week.  He had me go for a bunch of x-rays and start physical therapy.  

I found out that my posture is all out of whack.  My hips aren't aligned and my neck is off kilter.  You wouldn't be able to tell from just looking at me.  I look physically fit from outward appearance.  The rheumatologist takes all sorts of precise measurements.  I was happy to find my legs are the same length.  Something as simple as that can throw your whole body off and cause pain throughout.

The physical therapy already seems to be helping a little.  The exercises to reduce tenseness and increase flexibility are super simple and don't take a lot of time.

If I were you,  I would definitely look into simple vitamin supplements.  Any woman approaching 40 could probably use some extra calcium, vitamin d, vitamin b12, omega-3 and a good multi-vitamin. That's what I take anyway.

So sorry to hear about your job and insurance.

I hope you get some info that helps soon....

Please take care.

skye

[Lulu54]

It sure sounds like you have a little bit of this and that going on.  and the usual assortment of doctors that we all seem to parade through.  

Its horrible to hear about the loss of your insurance and maybe even your job.  That stress can't be helping everything else going on in your body.

Can we ask you a fav or on the next post and try to break it into small paragraphs?  Many of us have vision difficulties and all these words in one block of text ten to be very hard to read- they all kind of run together.  Thanks.  

hang in there,

Lulu

[1tiredchic]

Still trying to figure out what's wrong..Hitting all kinds of roadblocks!
by 1tiredchic, Feb 24, 2010 06:36PM
Tags: Pain, ms, Fibromyalgia, Arthritis, symptoms, undiagnosed

Wow!! Thanks for all the replys.... I will try to answer some of the questions.. I have not yet seen a rheumotologist..My first apt will be on April 2nd :( I have only been to my primary docter for the joint stuff and they stuck me on celebrax and gave me a referrell and the ANA and Rheumotoid test both negative,,I also went to gastro doc and yes had a colonoscopy and upper scope they found inflamation in the stomach and small intestine,said is non-specific non -ulcerative colitis(pretty much don't know reason?)they put me on meds. My symptoms are weird . I get so much tenseness that just shoots up my spine it feels as if someone is putting me in a vice..And that I need to be stretched tremendesly and happens alot not just when stressed. My arms get weak, pain mostly my neck,upper back,pelvic bone,elbows,pain shoots down arm ,some numbness in hands.headaches eye twitches right eye.Have prolapsed uterus,urine leakage, fatique,sleep hypopnia's,chest pain etc.oh yeah balance is off sometimes.. I have had cervical MRI's(neck only)haven't seen report but doc said normal (I doubht that) but NO mri 's of brain at all.// As I said my blood work does show high sed rate,positive ASCA,low mpv,low sodium,low calcium,low vitamin d. I don't know I hope I can get answers soon.. My job is at stake, my family suffers..I'm only 38 I don[t know what to do????:(    PS almost forgot I  am also on blood pressure /heart rate meds as well ,I do have mitral valve prolapse,and murmur. i have had halter monitor my rate has gone up to 118 doing laundry and that's on meds. I know my vitamin level is now i think it was 20 it used to be 15./I love the ideal too of having med records accesable I do have my last bloodwork and some sleep studys i wish i had others ..I do notice that some of the things i listed as low were not even mentioned to me at all.. Gotta watch them i guess.  Thanks evreyone .PS to make matters worse I just found out my insurance is cancelled and my job may be in jeopardy..Boy I am a mess right now !!!