Still worried

[willy856]

My story is that I have been having weird feelings in my hands feet and thighs. My brother has MS so I am freaking out. I read that I have a 5% chance of getting it. I am 45 years old and in fairly good shape.
I saw the Nero he doesn't think I have MS. Tested for carpal, failed emg. Tested leg failed emg. The doc said I have nerve damage in leg and both arms. My wrists hurt and finger get numb, so I guess he's right about Carpal tunnel.
My thighs burn and my left foot feels ice cold. This happens at the same time that my knee gets tight.So I am wondering if that is where the nerve is pinched. The feeling goes away when I walk for a while.
I had an MRI and have another appointment Monday. I can't see anything on the MRI. No white spots or black spots. Comparing to normal MRI.
I want to put my fear of MS to rest and even though the doc can explain my hands and possibly my left foot, he can't explain my thighs. I have been going nuts trying to figure out what is going on with my thighs. They feel like sunburn without the redness. The feeling will go away if I apply moisturizer but the derm says it's not a skin condition.
I hate being a hypochondriac. I never went to a doc until I was in mid 20's.
I had people tell me my thighs can't be MS because I can make the feeling go away, but my brother says his symptoms come and go, but always last a day or more not hours.
I am going to develop mental issues if I can't get some answers. Why isn't there a single definitive test?
I thought modern medicine made some progress in the last 50 years.

[Celery47]

Hi willy!  I'm not sure if this is what is going with you, but my doctor recently mentioned a kind of nerve-pinching that causes weird sensations in the thighs (numbness, cold, heat, anything!) - he said the fancy medical-speak name which I can't remember, but I think he may have also called it carpenter's something-or-other...
Okay, enough of that: it's called "meralgia paresthetica" (I love google!).  I don't know if this will apply to you, but you might want to look it up and see if your burning sensations match the areas effected by this nerve.  My doctor said it's fairly common, and that it happens to him sometimes - and that it doesn't have to come from being a carpenter; it can also happen from tight pants and carrying a wallet in your front pocket, or any number of causes.  
I'm worrying about MS too and I know the feeling - it can just completely take over sometimes, right?  Ugh, yes, a definitive answer would be lovely.  Because until you've got one, you're irresponsible for NOT worrying, right?  That's how I see it, anyway.  I wish you luck! :)  And I'm sorry about the nerve damage.

[Charley123]

You don't sound like a hypochondriac at all.  My mother and sister have MS and I too have symptoms but have been diagnosed with only possible MS and then the neuro decided that I didn't have it.  Such a merry-go-round yes?  

It's frustrating when these symptoms come up and there don't seem to be any answers.  And it can most definitely make us feel nutty from time to time.  This is a really good place to vent them all.  

I hope you won't give up looking for answers.  Many of us have been told we don't have MS and eventually it does show up in the way that they want to see it.

Take care, Charley