Surges of numbness and tingling????

[RAY911]

I know it sounds crazy,, but all my symptoms are if you ask me.  

I was laying in bed last night and I felt like "surges" of numbness and tingling in BOTH legs..??  It was really strange.  I have numbness and tingling in both legs most of the time. and lately my legs have been hurting soooo bad. Like deep aching pain.   anyway this happened a few times last night I kept moving my toes.. (just to make sure)   lol

anyway just wondering if anyone has experienced this?  My legs feel so much weaker this past few days also.  Like it take everything out of me to walk?  anyone relate?

Thank you
Ray

[MRCCC]

8 months ago after rigorously working in my garage i came in the house bent forward to play with my dog and when I sat up sudden surge of numbness and tingling went through my left calf, foot, toes, left forearm, pinky finger and left lower lip.  I was sure it was a stroke or TIA.  After two days in the hospital they did MRI, MRA, Echocardiogram, EKGs, Blood work, X-rays, Heart monitor, Diabetes test, thyroid... you name it.  Everything came back normal.  For the first two to three weeks after this happen I would get surges of this numbness and tingling shooting through the same areas mentioned above when I stood up or changed my movements rapidly while walking or bending down etc.  It would also happen in my sleep and would wake me up over and over throughout the night.  These surges are a nightmare.  I constantly have mild residual numbness in these areas (mostly the calf and parts of the left foot and left underside of my forearm and pinky and ring finger, left side also).  As months past the surges seemed to calm down and I just get the numbness and tingling.  I have no idea what brings it on or why it acts up but I am still having these issues 8 months later now. And now they are getting as bad as when it started again.  Just last night I had a full blown episode (what I call it now) where the numbness and tingling surges started while I was out to dinner and then continued through the night waking me up..  It is so bizarre.  I have been to many many Doctors and have spent over 30 thousand dollars on tests and such and still have no answer.  One Doctor said it may be neuropathy but then can't explain why its only on one side of my body.  Another doctor suggested it may be a vasospasm or vasoconstriction of sorts but I have taken vasodilators and it offers zero relief.  About the only thing that is making sense at this point is possible spinal stenosis in my neck area.  I really don't know what it is but boy is it scary, frustrating and troubling.  It is hard to feel like I am not dying of something terrible and I keeping thinking the doctors have missed something really bad.  When you wake from a dead sleep with your left calf, foot, arm, hand having this overwhelming surge of numbness and tingling like someone is cranking up a dial on it.  Probably the most frustrating thing outside of how it feels is trying to explain it to anyone cause everything looks at me like I'm nuts, but I'm not.  It's the worse thing I have ever dealt with.  I am 45 years old..

[stc1993]

I didn't notice that this is from 2008, I'm a little late.  I was browsing to see if I might get a clue as to what is causing this problem.  It's no fun.

[stc1993]

I too have this pain, tingling & numbness.  Mine started in my right biceps area on the outer side of my arm. about 2 weeks later my right thigh on the front and outer side went numb too, with a deep burning sensation.  It would hurt so bad you couldn't hardly even rub it to see if it had any feeling in it.  I have to sleep on my back, something I've never done, it's hard to get used to after 56 yrs. If I try to sleep on my side left or right the pain and tingling will shoot down my arm all the way to my finger tips.  It's funny though my arm feels better in the morning at first, then it gets worse as the day goes on.  My leg is the opposite it is worse in the morning the numbness and burning sensation.  I keep saying I'm going to make a Dr. appointment but I don't have insurance and we already owe about $25k from when my wife caught MRSA from an outpatient surgery.  I keep hoping it will get better but it's been around 3 months now.

[jensequitur]

Ray, at this time, just make sure you get plenty of rest.  That extreme fatigue you're feeling is due to the brain fighting off inflammation, and you need as much sleep as possible.  Sometimes I would just sleep the entire day, waking up when I got hungry.

If your symptoms get to the point where you can't stand it, you might ask your neurologist for a course of IV steroids.  They're especially good when you're having trouble walking, or seeing.

[Rena705]

I can relate to your frustration honey but hopefully you are on the road to a diagnosis soon!  

I can also relate to the deep throbbing pain in your legs and it is he**!  I have been getting this pain since July 2007 and I have it every day and none of the meds from anti-seizure meds to narcotics to anti-depressants have alleviated it at all.  Last fall I was also having extreme muscle spasms in my thighs but only at night.  They would wake me from a sound sleep and I would be sitting straight up in bed screaming...thankfully these have abated and I hope that they won't come back!

I find that I have to be careful about how much walking and standing I do or the pain in my legs can put be out of commission for two days...it's very frustrating!  I mentioned to the rheumy that my sheets on my side of the bed are all pilling because I guess I move my feet constantly at night in an attempt to alleviate the pain but I wake up every morning with the same pain.  I think she thought I was a little weird mentioning that about the sheets but my husbands side of the sheets are nice and smooth by his feet!

I am trying to walk a little more every day with the hopes that building up some muscle will help with the pain but so far no luck!  I am frustrated as well being that I have a diagnosis but my neuro seems to have another agenda!

Lots of Hugs,

Rena

[Amyloo]

Hi Ray,

I get the "surges" too.  My right foot and my right hand at the same time.  The foot does it and then a half a second later my right hand does it.  It reaches a peak and then just goes away.  Lasts about two seconds.  Wierd stuff.  Amy

[RAY911]

Hi there,

I totally agree to what your saying!!!!!!!!!  TOTALLY, it makes sense to me!!!!!  I went to my PCP for my incredible back pain, it hurts mostly at night.  truly it wakes me up throughout the night.  but now with the medication it seems to help a little. anyway, My pcp sent me to a Orthosurgeon.  He did a very long exam on me ordered x-rays/ mri's and then I went back to him, he told me he could just look at the xray alone and tell why I was in allot of pain, but that he did not want to do surgery,,, (thank goodness)  However He wanted to send me to a "Very nice Neurologist"  I said OK,, I was osoooooo sick of the pain,, I felt like whatever just help me... so anyway I went to the Neurologist, and Yes she is very nice, the first visit was a long visit, she asked me several questions did a full exam and ordered some tests tons of blood work, (I had no idea she was a MS specialist)  so anyway... I did ask her after telling her about my legs going numb etc,, "don't you think its my back that's causing all this"?  Her reply was NO,,,I could of passed out.  So that's where I'm at mainly, although, the MRI showed lesions large enough to fit MS, I'm in the waiting period.  It is sooooooooo frustrating!!!!!!!  I don't know,  I'm trying to understand, and learn all I can. but sometimes uggggggg,,, I'm sure you understand.  Seems like we have allot of the same symptoms.
I hope and pray you find answers.  
Prayers to you
Ray

[6-paq]

If I lay on my back for any period of time, my legs will get the tinglings and weird feelings.  I was laying in bed reading last night (something I haven't done in years) and I had to stop because the back of my lower legs were starting to ache get weird.  It went away when I rolled on my side.

Due to my lower back issues, I HAVE to lay on my side.  My back is really sensitive to which position I'm in.

About a year ago, before I had PT, I also would have a weaker sensation in my legs.

I'm only bringing this up because I believe that you said previously that you have some disc issues in your back based on a spinal MRI???   This could be contributing to some of your symptoms.  Does your numbness and tingling surges happen whatever position you are laying or does it happen in a certain position?

Sorry you're going through all this and not have any answers as of yet.  I'm in limbo too and I know it really stinks!!

[speechgeek]

Ray

I can completely relate to this. My mind was willing but my body failed me. I would have burning, tingling, numbness, pain in the muscles and the joints in both legs and it kind of jumped around. I would have twitches, jerks and muscle fasicualtions. I had pain so deep in the muscles of my calves and biceps...never felt deep muscle pain like that before. It was always worse when I lay down. A heating pad and hot baths would help.

I couldn't walk through a store. Standing in place was so hard...i would shift back and forth on my feet to let each on rest. Balance terrible!!  I would tell the doctors I didn't know how my legs were carrying me through the world. I too would deliberately move a toe or leg just to make sure I could. My body was tired but I was never sleepy.

My PCP tried a couple of different meds... it just made me foggy. Hang in there I hope you get answers soon.

Rebeccah