Aa
To Quix
Hi Quix, I was talking to Jenn and she told me you are a huge help as regards issues with MS etc... She said you are very knowledgable.
I have had a string of symptoms and have had discussions with many doctors, one conclusion (well a few in one) has cropped up. We've looked at a range of things from vasculitis, sarcoidosis etc... all sorts, and the doctor at the hospital when i asked her, said that they ruled those out. She said I had every blood test they could think of, I am arranging to get a copy of those tests.
The conclusion I keep getting from my own GP is Post Natal Depression, but my symptoms are far too physical. They range from visual disturbances, twitching of the neck which I can feel inside my head like an electric shock - I get it when I go to turn my head to look at something, it is not all the time but quite regular. I get sinus tachycardia with palpitations which I take beta blockers for, I get muscle and joint pains, generalised itching, sometimes itchy rashes, fatigue (always tired), my extremities go cold and I think I get raynaud's (they can go dark red/blue when really cold), I have slow pupil reaction so my pupils dilate and look uneven to each other, cluster headaches, sharp nerve pains in my teeth, legs, hands, arms, feet and vibration sensations with pressure too. First thing in the morning I get shaky hands, and especially when I am holding the phone or something heavy. I have a baby boy and lifting him for more than 2 mins makes my arms and legs ache bad so I have to put him back down again. When I go for a walk my legs feel weak and wobbly.
I am pushing my GP for an MRI to be done. At the mo, the practce doctors there all agree with each other and have refused to give me an MRI, I have been referred to a shrink, they have said I'm paranoid delusional with extreme hypochondria and OCD. I have rang them and visited them too much, I admit that, but it is in my nature to pester to get answers.
I now have a medical advocate organised to put my case forward for an MRI. I'm in the UK and our healthcare system is awful! We have waiting lists. It took 4 months to get an early appointment with this shrink, they pushed for that! A MRI waiting list I don't know, a friend of mine waited 8 months for hers.
I struggle to cope with my symptoms as they change every day. Not dramatically but new things crop up and old things come back to bite me on the bum. My mother has AS (according to her DR, but she never had an MRI) AS being Ankylosing Spondilitis. She has said that she had symptoms from her 20's which match a lot of mine, one GP thought she had MS but without the MRI they could not tell, they just went from her bone condition which was triggered after a car accident, but she did have problems before the accident. Her state of health has been degenerative over the years making her bedridden some days. She doesn't leave the house. She can barely walk far. She gets a lot of neurological problems as well as severe pain.
Can you offer me some advice or support? I would very much appreciate it.
I'm in my 20's, I have one child who is 6 months old. My symptoms began 2 yrs ago (possibly longer looking back at being told i had growing pains at 18/19), 2 yrs ago I just had pain and the occaisional twitches and nerve pains, but did have pins and needles from the waist down one day and could not walk.
Does this sound like MS? My husband has posted on my behalf on this forum before, he was frustrated with my talking about my symptoms a lot. He is starting to believe me finally after being in the same opinion as everyone else. My symptoms triggered anxiety and so started a vicious circle.
I have had a string of symptoms and have had discussions with many doctors, one conclusion (well a few in one) has cropped up. We've looked at a range of things from vasculitis, sarcoidosis etc... all sorts, and the doctor at the hospital when i asked her, said that they ruled those out. She said I had every blood test they could think of, I am arranging to get a copy of those tests.
The conclusion I keep getting from my own GP is Post Natal Depression, but my symptoms are far too physical. They range from visual disturbances, twitching of the neck which I can feel inside my head like an electric shock - I get it when I go to turn my head to look at something, it is not all the time but quite regular. I get sinus tachycardia with palpitations which I take beta blockers for, I get muscle and joint pains, generalised itching, sometimes itchy rashes, fatigue (always tired), my extremities go cold and I think I get raynaud's (they can go dark red/blue when really cold), I have slow pupil reaction so my pupils dilate and look uneven to each other, cluster headaches, sharp nerve pains in my teeth, legs, hands, arms, feet and vibration sensations with pressure too. First thing in the morning I get shaky hands, and especially when I am holding the phone or something heavy. I have a baby boy and lifting him for more than 2 mins makes my arms and legs ache bad so I have to put him back down again. When I go for a walk my legs feel weak and wobbly.
I am pushing my GP for an MRI to be done. At the mo, the practce doctors there all agree with each other and have refused to give me an MRI, I have been referred to a shrink, they have said I'm paranoid delusional with extreme hypochondria and OCD. I have rang them and visited them too much, I admit that, but it is in my nature to pester to get answers.
I now have a medical advocate organised to put my case forward for an MRI. I'm in the UK and our healthcare system is awful! We have waiting lists. It took 4 months to get an early appointment with this shrink, they pushed for that! A MRI waiting list I don't know, a friend of mine waited 8 months for hers.
I struggle to cope with my symptoms as they change every day. Not dramatically but new things crop up and old things come back to bite me on the bum. My mother has AS (according to her DR, but she never had an MRI) AS being Ankylosing Spondilitis. She has said that she had symptoms from her 20's which match a lot of mine, one GP thought she had MS but without the MRI they could not tell, they just went from her bone condition which was triggered after a car accident, but she did have problems before the accident. Her state of health has been degenerative over the years making her bedridden some days. She doesn't leave the house. She can barely walk far. She gets a lot of neurological problems as well as severe pain.
Can you offer me some advice or support? I would very much appreciate it.
I'm in my 20's, I have one child who is 6 months old. My symptoms began 2 yrs ago (possibly longer looking back at being told i had growing pains at 18/19), 2 yrs ago I just had pain and the occaisional twitches and nerve pains, but did have pins and needles from the waist down one day and could not walk.
Does this sound like MS? My husband has posted on my behalf on this forum before, he was frustrated with my talking about my symptoms a lot. He is starting to believe me finally after being in the same opinion as everyone else. My symptoms triggered anxiety and so started a vicious circle.
addition to my post:-
I also have intolerance to heat and cold. I went to take a hot bath recently which sent my pulse rate racing, I had to get out of the bath quickly. When it is cold I feel the cold a lot more and seem to get raynaud's like symptoms.
Last night in bed I noticed my leg muscles etc... twitching.
I did look at one of your posts and 2 yrs back in the winter I had vertigo for over 4 weeks, then it came back again a lot worse for a week a month later. Then I was pregnant and actually felt very healthy through my pregnancy until late in the pregnancy when I would get spots in front of my eyes. After the baby I got vertigo again in Feb but I also had an infection and blamed the antibiotics. Now I am certain that it might be related to my "problem".
I had episodes of slight vertigo while pregnant but more usually when taking antibiotics for gum infections. I blamed the antibiotics, but it could have been my own system causing it as I did get it before the pregnancy. I was seen by a GP who ordered an MRI and I am kicking myself now because the vertigo went away and I cancelled the appointment. Stupid of me! Totally stupid of me!
I also have intolerance to heat and cold. I went to take a hot bath recently which sent my pulse rate racing, I had to get out of the bath quickly. When it is cold I feel the cold a lot more and seem to get raynaud's like symptoms.
Last night in bed I noticed my leg muscles etc... twitching.
I did look at one of your posts and 2 yrs back in the winter I had vertigo for over 4 weeks, then it came back again a lot worse for a week a month later. Then I was pregnant and actually felt very healthy through my pregnancy until late in the pregnancy when I would get spots in front of my eyes. After the baby I got vertigo again in Feb but I also had an infection and blamed the antibiotics. Now I am certain that it might be related to my "problem".
I had episodes of slight vertigo while pregnant but more usually when taking antibiotics for gum infections. I blamed the antibiotics, but it could have been my own system causing it as I did get it before the pregnancy. I was seen by a GP who ordered an MRI and I am kicking myself now because the vertigo went away and I cancelled the appointment. Stupid of me! Totally stupid of me!
I'll be glad to take a look at what you have written and see what pops up. I'll look tomorrow after my folks leave. (Father's Day in the US) Should I admit I've already sampled the cake?? Ummmm Quix
What name did your husband post under? I'll look up his post, too.
What name did your husband post under? I'll look up his post, too.
Also, do you know how your reflexes are? Normal, hyper or absent (diminshed)? Are there any abnormalities onyour neuro exam? Quix
Hi Quix, thanks for your reply. I don't know about my reflexes they have not been checked, I have not been referred for neuro examination either. What I have found out is that the pupil thing is called Argyll-Robertson Pupil. Also, I have been in touch with the nurse at the hospital and found out that my ACE was checked (relating to them suspecting sarcoidosis) and the ACE levels were normal. My Calcium level was up slightly in April but Potassium level was normal. And I had a repeat Calcium Serum test in early May with Albumin and they were both normal.
Hey Quix,
I am so glad you are going to talk to her. You have a lot of information that I think she can find useful. I feel so helpless in giving her advice because of her situation with the medical system in the UK. I hope you are feeling well this weekend, and enjoy your cake!
Jenn
I am so glad you are going to talk to her. You have a lot of information that I think she can find useful. I feel so helpless in giving her advice because of her situation with the medical system in the UK. I hope you are feeling well this weekend, and enjoy your cake!
Jenn
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