THE RESULTS ARE IN! WELL SOME OF THEM!

[sandie490]

Evening everyone!

Well, I finished with more of the testing, for the urologist, WHAT TRAUMA, OMG!  I did the ultrasound with the very full bladder, I measured my pee outage for 24 hours, which he said was very detailed and accurate, and finally the dreaded cystascope, in the office mind you.

He said that there is nothing wrong with my bladder.  The retention, urgency,frequency. leakage, numbness, tingling. etc etc, are all neurological, that my bladder is healthy, and otherwise functioning fine.  When he first came into the exam room after the test, he said to me.....Didn't you tell me that they are testing you for some kind of neurological disease or something?... I said, yeah why.  And thats when he said.....Well this appears to be a neuro problem.  So he put me on Vesicare, which I will be starting this week, and said he would be sending a report to my neuro.

Okay, so how do ya think this is gonna pan out.  My neuro said, regardless of all of the symptoms that I have, he won't dx me with just one lesion.  Plus I've had a bout of ON. I have vertigo, which I am going to pt for, weakness in my left arm, bladder issues, muscle spasms, electrical shocks. cog and memory problems,  and now also, when they did the LP, my opening pressure was high.

What do you think he is gonna come back with.  He has to have some, idea if not MS.  I'm not imaging all of these things.  What other disease could cause all of this.  My family is so upset, especially my sister who has MS.  She got dx, with less sx than me, and only one lesion like me, but we live in different states, shes NY, and I'm PA.

I am feeling so treaded on.  I had the LP, 2 weeks ago, had the dreaded headaches for a week and a half, during the LP the litocane needle hit the lumber nerve that gives me a lot of trouble(pinched nerve), I felt it and told him, and ever since then its been hurting.  Then it finally eased up, and when I had the cystoscope done, when I bent over to pick up my phone, I got a pain in my lower back so severe, I almost went down.  Now I'm in alot of pain from that, more pain I didn't need.  I think I'm gonna have to go for the back shots again if it doesnt ease up.  Now the Fibro is flaring up too.  I just hope some kind of dx, or questions are answered when I go for my followup in begining of April.   I dont feel well, and I feel a little depressed.  Sorry, guys that I ran on and on and on.  Had alot to tell.

Hugs everyone!
Sandie

[sandie490]

Thanks guys for your support and encouragement.  It's really appreciated.  I'm gonna see what he says to me in April.  I know I'm not the only one, but sometimes it feels like your're all alone.  Then I come back to my listening friends on my favorite forum, and I always leave feeling better.  

Hugs to all,

Sandie

[starryeyes1]

Don't settle for a non-answer. My last neuro I saw before firing him, was soo mean, sarcastic. He tried to tell me that I only had 1 lesion and he needed at least 2 to dx me. That is a crock!

MS is dx by many things..symptoms, med hist, fam hist, age, MRI, LP..  If he can't come up with an answer after your fam hist, LP results, symptoms, then he just doesn't want to commit to anything in the improbable event that he is wrong.

My neuro here was the same way. I literally recited every symptom from the MS website to him and he laughed sarcastically and said that none of tham were MS symptoms. That was the last time I saw him. Getting on a DMD was of utmost importance to me.

I had to travel out of state to an MS center but he had me dx in 5 min, found a total of 4 lesions on the same MRI that my last neuro read, and had me set up for PT and Copaxone. No regrets. There are far too many of these "Dr's" that have no business practicing medicine.

A neurologist that doesn't dx a person and it turns out to be MS, to me, is not that different from an oncologist misdiagnosing someone who had cancer, or a spinal injury getting missed and now that person may not walk again. The longer we go w/o treatment, the faster this disease takes hold.

You know your body. I knew mine was MS even when he made me feel like I was just psycho. Don't let anyone try to make this out to be in your head.

Take care!!
Hugs,,,
Kristi

[LATW]

Try not to feel to bad Sandie,
I am in the same boat.

ON twice, One lesion, clinically I look like MS but not on the MRI.

I have an LP coming up on Tuesday.

I was diagnosed two years ago and was on Avonex.

My ms doctor retired to i had to find a new doctor.

The new one turned out to be a mean one.

So now I am seeing a new doctor.

He is doing the LP.  I am not sure if my two episodes of Trigeminal neuralgia counts as anything or not.  Must not I guess.

Anyway, now I am hanging there between diagnosed and undiagnosed.  

I am losing vision in both eyes and it is so frustrating!

I understand where you are at.  so sorry.

LA