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Anything to stop MS pain????????
I posted my "Trip to the ER" story in the post titled Medic Girl. I went to the ER for severe pain, and projectile vomiting a couple day's ago. I couldn't keep anything down ( like the tylenol to stop the severe pain in my arms and leg's). Without re-typing the long story, the ER doc refused to give me anything at all to stop the vomiting/pain. He said I couldn't go to the ER everytime I had a MS flare-up. He said it looked like I was drug-seeking-even though I never asked hime for pain meds. I did ask him for nausea meds-he refused. I don't frequent ER's. It was to the point that I couldn't take the vomiting/pain anymore. He told me to go home and sleep, it would eventually go away. Does anyone have any adfvice?? Does anything make the pain stop?? I am desperate, this is horrible!!
Hi, I can't offer you practical advice. But hang in there and do keep pushing for what you need. Hope you can get things sorted out soon.
I wish we weren't all in this boat..... but at least we can have some understanding hands help us row it..
Take Care
Sally
I wish we weren't all in this boat..... but at least we can have some understanding hands help us row it..
Take Care
Sally
Hi, I'm so glad to hear a bit of calmness in your voice. We have had people on this forum who's symptoms have appeared and multiplied quickly. Resyless Limb Syndrome is more common in MSers than in the general popluation. Heat intolerance, though not universal, along with fatigue are among the most common as is ON.
When You get help from your doc, ask for Zofran by name. It will be most effective given IV with some hydration and pain med, but, it also works PO. I keep a tab or two around. It's $35 per tablet so I don't stock up. But when the vertigo really has me going, it's what I need. Another that helps and is cheap is promethazine (Phenergan).
I hope things look up for you soon. Quix
When You get help from your doc, ask for Zofran by name. It will be most effective given IV with some hydration and pain med, but, it also works PO. I keep a tab or two around. It's $35 per tablet so I don't stock up. But when the vertigo really has me going, it's what I need. Another that helps and is cheap is promethazine (Phenergan).
I hope things look up for you soon. Quix
Thank-you all for your advice and support!! It helps more than I ever could describe. I am waiting on a call back from my doc's office. I hope he can stop the pain and nausea soon. It is horrible to feel this way. I am trying anything I can think of to help. ( tynenol, benadryl, nyquil, dramamine)
I hope my complaint to the hospital does something-I have my doubts. If it ever happens again, I will be more prepared. I found a few hospitals about three hours away that aren't connected with the other one. It's a little far, but it may help me.
Has anyone else had symptoms that progress like this? Mine started out with RLS and heat intolerance, and then rapidly started progressing last month.
I hope my complaint to the hospital does something-I have my doubts. If it ever happens again, I will be more prepared. I found a few hospitals about three hours away that aren't connected with the other one. It's a little far, but it may help me.
Has anyone else had symptoms that progress like this? Mine started out with RLS and heat intolerance, and then rapidly started progressing last month.
I'm so sorry that you are feeling so ill and are not getting any help from the people who should be helping you. I'm glad that you are taking the step to file a complaint.
I agree with Quix ~ now that you have your medical records, find a neuro outside of your area. Can you perhaps call the NMSS and see if they can give you some names and/or advice as well?
Please don't apologize for being upset and frustrated. You are ill and are not getting any answers! We all understand!
Take care! Pat
I agree with Quix ~ now that you have your medical records, find a neuro outside of your area. Can you perhaps call the NMSS and see if they can give you some names and/or advice as well?
Please don't apologize for being upset and frustrated. You are ill and are not getting any answers! We all understand!
Take care! Pat
I am glad to hear you filed a complaint against the hospital ER doctor and got your records from that visit. I hope you told your family doc just how badly you were treated there.
I don't know anything about MS flares and if and when they are treated, but can't one of your doctors at least prescribe something for your violent headaches and vomiting? Is that from your MS or something else? Regardless of the cause, I don't see why your family doctor couldn't prescribe something to help with the nausea and pain.
And I also am somewhat familiar with the description you gave of your family--some similarities to mine. I grew up in a family where there was no communication, nobody shared things with each other, my father wouldn't let us talk or have a voice and was very good at creating guilt where it didn't belong--and my mother was very quiet and non-assertive and did everything to appease him. I also rarely missed a day of school because I was expected to go no matter how sick I was. That's probably not an exact replica of your family, but I know the general type--very much in denial about reality. Perhaps your family (especially your mom), though, will come around with time and is just still in shock since your MS diagnosis is so new. Your mother is probably scared for you and doesn't know what it means in terms of your future, her future (potential) grandchildren, etc. I know this isn't the time as you are not doing at all well, but maybe when you are doing better and you have been given the time to come to terms with your diagnosis, and she has also had more time, you could ask her to read something on MS--try to find a good article that will help her to see that it is a highly variable disease, showing her the reality of it but also not scaring her too much. Take care.
I don't know anything about MS flares and if and when they are treated, but can't one of your doctors at least prescribe something for your violent headaches and vomiting? Is that from your MS or something else? Regardless of the cause, I don't see why your family doctor couldn't prescribe something to help with the nausea and pain.
And I also am somewhat familiar with the description you gave of your family--some similarities to mine. I grew up in a family where there was no communication, nobody shared things with each other, my father wouldn't let us talk or have a voice and was very good at creating guilt where it didn't belong--and my mother was very quiet and non-assertive and did everything to appease him. I also rarely missed a day of school because I was expected to go no matter how sick I was. That's probably not an exact replica of your family, but I know the general type--very much in denial about reality. Perhaps your family (especially your mom), though, will come around with time and is just still in shock since your MS diagnosis is so new. Your mother is probably scared for you and doesn't know what it means in terms of your future, her future (potential) grandchildren, etc. I know this isn't the time as you are not doing at all well, but maybe when you are doing better and you have been given the time to come to terms with your diagnosis, and she has also had more time, you could ask her to read something on MS--try to find a good article that will help her to see that it is a highly variable disease, showing her the reality of it but also not scaring her too much. Take care.
I haven't been on in much in the last couple of days because I have been really busy. I have to run right now to get to class, but i just wanted to let you know that I have been looking in on your posts and thinking about you. Please take Quix's advice and get a second opinion.
I completely understand how frustrating family and friends can be when you are sick. My mother-in-law keeps telling me that if this recent MRI comes back clear, I just need to accept that there is nothing clinically wrong with me and move on with my life and forget about it! I wonder if she would forget about it if she had cancer! She is such a hypochondriac when it comes to herself and her children, but when it comes to me and my very real symptoms, she thinks I am making it all up. I have learned I cannot waste my time and energy trying to convince people I am sick. If they don't want to accept it, there is really nothing I can do about it. I hope you don't let yourself get too upset about your mother. It is not worth it. Just focus on getting yourself better, that is all you can do right now. Keep me posted on that second opinion and take care!
Jenn
I completely understand how frustrating family and friends can be when you are sick. My mother-in-law keeps telling me that if this recent MRI comes back clear, I just need to accept that there is nothing clinically wrong with me and move on with my life and forget about it! I wonder if she would forget about it if she had cancer! She is such a hypochondriac when it comes to herself and her children, but when it comes to me and my very real symptoms, she thinks I am making it all up. I have learned I cannot waste my time and energy trying to convince people I am sick. If they don't want to accept it, there is really nothing I can do about it. I hope you don't let yourself get too upset about your mother. It is not worth it. Just focus on getting yourself better, that is all you can do right now. Keep me posted on that second opinion and take care!
Jenn
Yes, now that you have your records, seek a second, urgent opinion. You may need to travel a little to get out of area both for the ER and a new neuro. I know the family type and I'm sorry. I'm very glad you have your boyfriend and hope he can be a good advocate for you.
You're right, if the hospital ER's are related they will likely share a computer database. When you look for a different hospital find one owned by another group.
People are stuggling so much with this kind of ****! I'll be thinking about you. Quix
You're right, if the hospital ER's are related they will likely share a computer database. When you look for a different hospital find one owned by another group.
People are stuggling so much with this kind of ****! I'll be thinking about you. Quix
I apologize, I am so upset at this point. I am wondering if I should try another neuro, mine dosen't seem to be doing anything. I thought he would put me on some meds, but he hasen't. Does anyone have advice??
thank-you so much for all the advice. I had such a bad time at the hospital, I didn't know what to do next. I went today and got copies of my ER charts and medical records from that hospital. I also got the forms so I could file a complaint against the ER doc.
I went yesterday to the neuro and my family doc. My neuro said I have several lesions on my c-spine, three herniated disks involving my l-spine, and two small lesions on my brain. He said my repeat LP showed very high protein levels, and something about bands. He wouldn't give me soul medrol, I asked him why and he said it wasn't needed. I told him I had researched the vision problems and that was shown to be very effective at restoring vision. He said it wasn't the only "cure". He did not write me any scripts, or start me on any meds. I am to return in two weeks.
My family doc said he would leave the MS symptoms to the neuro doc, and he wouldn't start me on any meds.
I am still frustrated!! I don't understand why the neuro isn't doing anything about my symptoms. My eyesight isn't improving at all. The same with all the other symptoms. My left leg is getting worse, it drags behind my right leg when I walk. It'll go numb and get tingly. I get fuzzy headed and forget things, my arms and legs go numb and get very cold ( even in the Georgia heat), I cannot read or see much at all up-close, I get violent headaches, vomiting, my left leg stay's numb and I have to drag it when I walk.
My family will not accept the MS diagnosis. I showed them my test results that my doc printed out for me. They were also shown the CT and MRI results. My mom cannot believe that her only daughter has an illness. She said the symptoms are " in my head" and the test results are fake. ( I told her that I do not know how to print "fake" pics of MRI's with my name on them, nor can I make "fake" lab numbers on hospital letter head. It make take her some time to accept the MS. While growing up, my family was the type that if we missed a day of school, we had to be close to death. My brother never missed a day of school k-12. I only missed eight. My other three brothers were the same. We had a very strict Catholic up-bringing. If we were sad about something, we kept it to ourselves, the same with illnesses. ( besides a congenital heart defect, I have never been very ill, that may be why my family won't believe me) I asked my parents to go to the neuro with me, and they refused. My boyfriend is the only support that I have right now. I am afraid to go to the ER. The two ER's close to me are "related to eachother", so the other one will be able to pull up the report from the doc that said I was "drug seeking". He said he "flagged" my name!! I have only been to that ER twice-ever. How in the world is that drug seeking?
I went yesterday to the neuro and my family doc. My neuro said I have several lesions on my c-spine, three herniated disks involving my l-spine, and two small lesions on my brain. He said my repeat LP showed very high protein levels, and something about bands. He wouldn't give me soul medrol, I asked him why and he said it wasn't needed. I told him I had researched the vision problems and that was shown to be very effective at restoring vision. He said it wasn't the only "cure". He did not write me any scripts, or start me on any meds. I am to return in two weeks.
My family doc said he would leave the MS symptoms to the neuro doc, and he wouldn't start me on any meds.
I am still frustrated!! I don't understand why the neuro isn't doing anything about my symptoms. My eyesight isn't improving at all. The same with all the other symptoms. My left leg is getting worse, it drags behind my right leg when I walk. It'll go numb and get tingly. I get fuzzy headed and forget things, my arms and legs go numb and get very cold ( even in the Georgia heat), I cannot read or see much at all up-close, I get violent headaches, vomiting, my left leg stay's numb and I have to drag it when I walk.
My family will not accept the MS diagnosis. I showed them my test results that my doc printed out for me. They were also shown the CT and MRI results. My mom cannot believe that her only daughter has an illness. She said the symptoms are " in my head" and the test results are fake. ( I told her that I do not know how to print "fake" pics of MRI's with my name on them, nor can I make "fake" lab numbers on hospital letter head. It make take her some time to accept the MS. While growing up, my family was the type that if we missed a day of school, we had to be close to death. My brother never missed a day of school k-12. I only missed eight. My other three brothers were the same. We had a very strict Catholic up-bringing. If we were sad about something, we kept it to ourselves, the same with illnesses. ( besides a congenital heart defect, I have never been very ill, that may be why my family won't believe me) I asked my parents to go to the neuro with me, and they refused. My boyfriend is the only support that I have right now. I am afraid to go to the ER. The two ER's close to me are "related to eachother", so the other one will be able to pull up the report from the doc that said I was "drug seeking". He said he "flagged" my name!! I have only been to that ER twice-ever. How in the world is that drug seeking?
I think that some hospital personell get so desensitized from all of the patients they see on a daily basis, especially in the ER. This is why it takes a really strong person to work that type of position. It is so easy for them to lose sight of the fact that you are an actual person in pain. I am so sorry for all of your troubles. These types of situations that I have run into myself at hospitals are the reasons why I have chosen to become a nurse.
I agree with Quix. Zofran is amazing for nausea! My son, myself, and my daughter all caught the Rhoto Virus about a year ago. We all ended up in the ER. The only thing that ever helped the intense nausea and vomiting was Zofran. My son was so bad that he was vomiting blood and bile, and one dose of Zofran in his IV along with some fluids made him so much better. It is a very expensive drug if you do not have good health insurance, but so worth it.
Do not let these people treat you in this manner! You need relief, and if they were in the kind of pain you are in, they would be drug seeking too! Please, take care of yourself. I want a full report of how you are feeling after the weekend. Take it easy!
Jenn
I agree with Quix. Zofran is amazing for nausea! My son, myself, and my daughter all caught the Rhoto Virus about a year ago. We all ended up in the ER. The only thing that ever helped the intense nausea and vomiting was Zofran. My son was so bad that he was vomiting blood and bile, and one dose of Zofran in his IV along with some fluids made him so much better. It is a very expensive drug if you do not have good health insurance, but so worth it.
Do not let these people treat you in this manner! You need relief, and if they were in the kind of pain you are in, they would be drug seeking too! Please, take care of yourself. I want a full report of how you are feeling after the weekend. Take it easy!
Jenn
This is appauling and inappropriate of a hospital personel.
I definately would have sought out another medical facility.I have gone to the ER twice do to relapses and never once turned away.
One hospital my neuro wasn't even afilliated with and the neuro on call provided very good health care.
I can't add more than what Quix has.
I hope you are feeling a little better.
I definately would have sought out another medical facility.I have gone to the ER twice do to relapses and never once turned away.
One hospital my neuro wasn't even afilliated with and the neuro on call provided very good health care.
I can't add more than what Quix has.
I hope you are feeling a little better.
I can't believe that behavior! When your more well a formal complaint can be lodged. Do not give into his threat to keep you out of another ER. Is there any other advocate family, professor, colleague, that you can turn to to accompany you to get some care? I don't know why the AH would withhold all meds for all reasons. That is not drug seeking. You have no choice but the ER's until someone takes charge of your care. Have someone contact another hospital, first getting hold of the ER Supervisor or hosp advocate or patient rights/relations person. Tell them the problem. Explain that the MS has just appeared, that you haven't yet found a doctor to take care of you and your only recourse right now is The ER for pain, dehydration nausea and vomiting. The MS is out of control and you have to find someone to help you. Where is your family?
No doctor can "order" that other doctors won't care for you! MS relapses may last for months - he is obviously an idiot to advise resting in bed until it passes. Who is covering for your family doc? He has to provide his patients with emergency coverage. What is going on? Where are the people in your life? All the doc's you have seen should have emergency coverage. What about the neuro? Who is covering for him this weekend. Get ahold of someone and get them to help you.
Prednisone is not the treatment for optic neuritis! I don't understand why there is no one that can take care of you. Where are you that this is happening? When I was in med school I was surrounded by physicians who would advocate for us. Is there anyone you can contact - like family where you can go and get treatment started? or can come to you and help with running the ER gamut?
You would feel so much better with some IV hydration, some Zofran (MY DRUG OF CHOICE) and the needed analgesia. We are so helpless from here. There has to be someone around that you can contact to get you through this! Please make some phone calls and let us know. Okay? Once we get you taken care of we can formally complain about this doctor. The MS societies usually have advocates.
Quix
No doctor can "order" that other doctors won't care for you! MS relapses may last for months - he is obviously an idiot to advise resting in bed until it passes. Who is covering for your family doc? He has to provide his patients with emergency coverage. What is going on? Where are the people in your life? All the doc's you have seen should have emergency coverage. What about the neuro? Who is covering for him this weekend. Get ahold of someone and get them to help you.
Prednisone is not the treatment for optic neuritis! I don't understand why there is no one that can take care of you. Where are you that this is happening? When I was in med school I was surrounded by physicians who would advocate for us. Is there anyone you can contact - like family where you can go and get treatment started? or can come to you and help with running the ER gamut?
You would feel so much better with some IV hydration, some Zofran (MY DRUG OF CHOICE) and the needed analgesia. We are so helpless from here. There has to be someone around that you can contact to get you through this! Please make some phone calls and let us know. Okay? Once we get you taken care of we can formally complain about this doctor. The MS societies usually have advocates.
Quix
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