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147426 tn?1317265632

To My Friends

I wanted to tell all of you how much you mean to me.  I feel like I have found a wonderful group of friends here and marvel at how each of you have come with a question and have stayed to help other people.  I must check the forum 10 times a day just to see what you are saying.

I am quickly sliding into a deep depression.  I've battled depression for a couple decades, but this feels far worse than I have had in a long time.  It definitely has affected my responses here in the last couple days.  I can't seem to overcome it, so I'm going to take a break.  I've called my Dr. to discuss this and see if a med change might help.

Before I go I want to warn you about something.  There are people that show up to this kind of support forum that do nothing but spread fear and negativity.  They are great "black holes" into which disappear everyone's attempts to help.  We have one now that is cultivating a myth of "undiagnosability."  He claims to have had the world's most extensive work up, yet, as we point out new possibilities to him he refutes them with ridiculous  arguments.  What he says about his illness and work up doesn't make sense.  He is not here for answers or support, or to help others, but appears to want pity and/or awe.  Everytime he posts I feel this urgent need to set the record straight, because he says things that are so damaging and serve only to remove hope.  I have felt I needed to point out to you how "off the wall" his claims are, and that has been rather condescending to you.  In looking at your responses to him, you have clearly seen through him. You've gone about your own business, but, I have been the one who has gotten sucked down into the mire of negativity he brings.  Weird, huh?  But, I realize I could spend the rest of my days refuting his absurd claims, and he would be getting exactly what he wants - a stage on which to play out his drama.  

That's one of the reasons I need to take a break.  In my own depression I can't help but be obsessed by his bizarre statements and feel that I have to counter them.  I'm losing all my energy to an online pathologic personality.  I'll be thinking about you and probably will not be able to resist poking my nose in.  I will not, however, read any more of his drivel.

Later gators, Quix
7 Responses
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147426 tn?1317265632
When I logged on today and saw your comments - it made me cry...truly!  Thank you so much!
Helpful - 0
222135 tn?1236488221
Although I have only just recently posted on this (& never any other) site, I have been reading it for some time now. I am sorry that I will miss out on your obvious knowledge and generosity in sharing it. Reading back on the posts to which you refer in your good-bye, I can see why you feel the need to break for a while. I hope that you will return. I hope that you will be well and pray that you will successfully fight the depression. You seem to be a beautiful soul.

Take care.

Pennst8r
Helpful - 0
Avatar universal
I have  only posted once on the neurology forum but you were very helpful and that is very appreciated.  I have been reading the posts both in this forum and the neurology forum for quit some time now,  and you have given wonderful information to alot of people.  
I haven't been diagnosed with MS yet althought I do beleive it's just a matter of time and the right doctor, but I wish you all the best in your health.  I too have suffered from depression for some time so I know how debilitating that can be not to mention everything else your going through.  
I just wanted you to know you will be missed even by those of us who really don't contribute to the forum that much.  I look forward to your future postings.  
Take care, dowma  
Helpful - 0
Avatar universal
Quixotic,
You have done so much to help so many, in spite of your own problems.
In the last couple years, I have found only a couple of physicians who have been struck with chronic illness, forcing them to retire, who then go on to advise others on health boards.
Although this is catastrophic for the physicians, it has turned out to be beneficial to the patients.

In regards to the depression, please consider supplementing magnesium and essential fatty acids.
As you know, magnesium is not easily absorbed in the gut.
This one has several of the more easily absorbed kinds:
Source Naturals, Ultra-Mag
Magnesium (as magnesium citrate, taurinate, glycinate, and succinate)
http://www.iherb.com/ProductDetails.aspx?c=1&pid=1415

Fish oil and krill oil supply the building blocks to make good quality cell membranes.
Although any fish oil would probably help, many of the ones I've tried had a rancid fish flavor, which I found intolerable.
(We used to camp when I was young, and I clearly remember the aroma of rotting fish by the water.)
Plus, the pharmaceutical quality oils won't be contaminated with mercury, which many of us have too much of already.

To cut to the chase, the one I like is Carlson's lemon flavored fish oil, taken by the teaspoon.
It has a very light flavor.  Also available in capsules.
http://www.iherb.com/Search.aspx?c=1&kw=carlson's+fish+oil

You can google for articles explaining how magnesium and fish oil can help depression.
These two can also help to reduce inflammation.

Wishing you the best,
Carol
Helpful - 0
Avatar universal
I am going to be sad to not have you on the forum, but you must do what is best for yourself right now.  Depression is such an inevitable monster with chronic illnesses.  I have battled with it since I started feeling badly eight years ago.  I have found that I can fight it for a while, and then it is like I just run out of energy and succumb to the weight of it.  I really hope your doctors are able to help you through it.  Remember, there are people here who care for you and will be here for you whenever you need it.  I will keep you in my thoughts and prayers.

Your friend,
Jenn
Helpful - 0
Avatar universal
Thank you for your kind replies and help to all the undiagnosed,your truelly an inspiration to all of us.

You take time in healing yourself,I pray your double vision has improved and that a change in meds help your depression.

Living with MS isn't the easiest ,but its livable and mostly can be manageable.

I just came off of another 5 day solu-medrol IV invusions,secand major attack in 3 months.But I'm moving right along.

You take care of yourself and keep yourself well.

The professor is just wallering in self pitty,with no DX.You gave him such great advice,better than most neuro's and he disregarded it.IF he wants to lay around and have hospice come in and all then he doesn't have the desire  nor the will to live.

Not me I'm fighting this disease,leg braces and all,I plan on doing all I can.Heck today I'm gonna help my son lay a new front porch.

I refuse to give into the MS .

You stay strong,I will be checking in on these boards more often to see where I can help.

Your in my thoughts,prayers and blessings,

Thank You for the help and direction you have given so many.
Helpful - 0
Avatar universal
Hi Quix, I read the posts from the prof and to me it just sounds like someone who is trying to come to terms with his own disabilities and has a lot of 'hang-ups' about it.  Your answers were excellent and to the point and will certainly put everyone's mind at ease.  

Yes, please do peek in now and then - I am seeing a Neurologist 2morrow, 29th June and I can't wait to let you know the outcome.  As you mentioned in many a post gone by - feedback to the forum is of utter importance, it just makes all efforts that little bit more worthwhile.

Some thoughts for you:  “If I can endure for this moment, whatever is happening to you, no matter how heavy your heart is or how ‘dark’ the moment may be.  I believe what I know in my heart to be true…That ‘darkness’ will fade with the morning - for there is no night without dawning and I know that your Morning is near..."

Take Care Quix and keep the Faith
Helpful - 0
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