You all are so sweet and remind me why the only thing I really want to do with a day is spend it here! Thank you for your kind words, sharing your feelings, and letting me know that I was not just a loser who got a bad attitude and gave up.
Somehow, I felt like with the MS I should feel pretty normal except for the symptoms. I really mean that. Kinda silly.
Clearly part of my overall crumminess is depression, so my PCP and I doubled my Effexor. I don't think that being off the DMD is part of it except the anger that I was forced off of it, and any other, by the cost. My neuro doesn't think any of the DMDs are going to help me, as he feels that the bulk of my disease is in direct axonal death. I have very little evidence of inflammation: Steroids never had an effect, I have very few T2 lesions, and I only had one O-Band, yet I have a lot of disability (EDSS about 5.5) He's waiting for an oral med. We'll discuss this in May.
So, I am much happier this afternoon. I saw the dentist - nice, kind, friendly guy. After three years without a cleaning (I know, 'mybad) I very little tartar and only two tiny areas of mild gingivitis. The "extruding molar" is doing just that. It's a healthy molar which is "super-erupting." I guess that's only fitting for someone living near Mt. St. Helens. Two years ago I freakishly fractured the virgin molar below it, and it had to be extracted. Then this molar had nothing to contact and began erupting right out of my gum - so now I have to have another healthy tooth extracted. I guess, it can't be just pushed back in.
Given that I am congenitally missing 14 permanent teeth anyway, and now will have lost 2 more, I only have 16 teeth (of my own) left in my mouth. Bummer. Now I get to look forward to the extraction next month. yippee.
In a fit of defiant perversity, I stopped by the ice cream shoope on the way back home and had a chocolate chip mint hot fudge sundae. So there! Now I am giddily smiling in a sugar high and expecting a crash in 2 or 3 hours. So, getting rid of the dental dread (plus enough sugar to hype a small soccer team) has improved my mood immensely.
Thanks for the words that kept me afloat. Next stop my urogyne and begging for meds for the bladder spasms. Return the census, pay JCPenney, and fill out my MS survey for the Pacific Northwest Registery.
Are all of you signed up for NARCOMS??? Let's be heard. Every one please do this!
Thank you, thank you, thank you!!!
Quizzle Sticks
I'm so glad that things seem a bit better. This dental issue has been weighing on your mind for a good while now, and probably has added to the depression factor. Just one more #$#$% way your body is betraying you.
But now that's on its way to being resolved. I'm hoping the urogyn will come up with something that works for you too. Lulu has had great results from Sanctura, and with the huge :-( $250 the feds will give you on the donut hole issue you might be able to afford that.
Let us know how you do on more Effexor. So many here need antidepressants, and the meds are such an individual thing that finding the right med and dosage is tough.
I just wanted to encourage you to keep telling the forum how you're doing, both the good and the bad. You have helped all of us more than you can ever know.
ess
PS Ice cream, esp a Hot Fudge Sundae? Mahhhvelous!
Wait a second... are you saying that you have more teeth coming in? I've heard of people who just keep growing more teeth...
Jen - No, an old molar just starting erupting further into my mouth, after its opposing molar was extracted some time ago.
Q
Ah... sounds like a real pain!
Sorry I am late on your post. Well, you sound better, or possible relieved that the dentist appt is over. I am sure that was a heavy weight on you. Seems like the outcome was better than expected. (Although not the extraction next month :( )
Yes, "most" days I feel crummy. I actually can't recall a perfectly "normal" day in at least 1 1/2 years. Some days I have a bit more energy, until I start walking around, then the leg hurts and it is over. This makes me pretty angry.
I have a bit of a depression cycle, or perhaps maybe more than a bit ?! When my mood is better, I am better.
I need to focus on what I have and not what I lost, or don't have any longer. I went to a cub scout tour of a military base, and 1st time I thought, I can not do this. A walker would have been perfect for me that day. It was awfully hard to get through it. I am really having lots of trouble just standing, walking is easier for me. I dont even though if that makes sense. (standing in lines..etc.)
Anyway, dear Q, I think we are all in this together. So glad to be in a place where people "get it", and I don't feel that I am complaining. Just living this life with this awful disease.
Love ya,
Michelle