Vagus nerve, please read..

[Dagun]

Hi all, I would so want to hear from any of you having symptoms from the Vagus nerve. I do not see a lot about this here, so I am just wondering how much you all know.

Last month I realised that I was having symptoms that all could be connected to the Vagus nerve. I had trouble sleeping one night like I had eaten late and was having stomach acid to 4am. I had not been eating since 8pm and was drinking water to try to ease this.  I do not have GERD I went to the Gastro-doc to be 100% sure. Everything looks fine down there. So there I am thinking if there is a possibility that the muscle that usually keeps the stomach closed (at the top) was not working right?

Around the same time I had felt that I was always full, I could not eat much. So there I am thinking about if the muscle belove the stomach was not working right and not emptying the stomach. Also these days I was loosing urine, without doing anything. It was sort of like when on period (oh not sure if the English is right) it just came. My throat was feeling tight and I am always having some trouble swallowing (it is not to bad though).

After this week or so that this was going on, I just started thinking if this was all connected. So I found out about the Vagus nerve and that it has to do with everything I was feeling. Even I then figured out that this could be connected to my blood pressure being so low at the same time! The more I read, I am finding out that my chronic cogh might be one of the symptoms, also (I now this is crazy) I have been wondering why on earth I have a completely different sneeze than I did before!

Last 2-3 months I have been sneezing very loudly, tongue out and very messy (need words to describe) it is like I have lost control over the muscles there. All my live I have been sneezing like my mom, very quietly with closed mouth and little sound. Peoble who see us sneeze think it is a cute noice, but not now for sure :). Am I crazy, or do any of you reconize these or other symptoms of Vagus nerve? Please tell me what you think..

[jumpinjiminy]

Not at all stupid. I have many similar issues (not dx either) and have wondered the same thing.

All my life, with a prolapsed heart valve, I've been told the palpitations (which didn't start until my early to mid 20s) were from that. It wasn't until this last year I realized they have a pattern, and they come on with other VN symptoms, like gastroparesis, difficulty swallowing (feels like a big air bubble stuck in your throat - very painful), and now diaphragm spasms.

Last summer, I was having the palpitations, near fainting spells, orthostatic hypotension, and the cardiologist said there was nothing structurally that could be causing it. When my doc put me on a trial of prednisone, it all cleared up. It didn't come back until another flare in March. Then disappeared again until another flare this fall.

I'm seeing a pattern emerge, and I, too, think a lot of it is vagus nerve related. And I started sneezing lately as well (while the palpitations were still happening) much more frequently than ever before.

Not crazy.

[Dagun]

Thank you for your responses!

Buffy, yes we all seem so different so MMS makes sence :). Though I still do not know if I even have MS.

Maxthecat, yes I mensioned this before to you. I am not so bad these days, this was just like for a week or so. But I am just trying to figure things out, so I thought if I wrote this down and got comments I would maybe learn more.

If there are more of you that reconize something simular, or if you think I am thinking in a stupit way, let me know. I feel a little crazy all the time anyway.

[beachcomber13]

I like that... MMS. lol

[maxthecat9196]

Hi Dagun,

You and I have talked about this before (I think...)  It seems to be a less common symptom, but I have the same thing.  My doctor thinks it's caused by a lesion on my spinal chord- but my insurance won't let me have another MRI just yet.  Since mine was also accompanied by extreme weakness in my legs, it probably was a new exacerbation.  IV steroids helped.  Have you asked your doctor about trying this?  I have improved to the point of usually being able to eat twice a day- though not always.  

If you are still suffering a lot, I would ask him about getting solumedrol infusions.  It wasn't much fun for a few days, but I am feeling much better than I was.  Some of it is up to you though. Even after a steroid course, you will probably need to make modifications to the way you eat.

I sure hope you can get this worked out soon.  
Bye for now,
Tammy

[Buffy1970]

I have had fainting issues believed to be triggered by muscle spasms which in turn trigger the VN.  Other than that and a flipity flop in the chest from time to time my possible VN is totally different.  However, I am not diagnosed with MS and everyone's MS is different.

Might as well be termed MMS  "My" Multiple Sclerosis.

Good luck.