Is this right?

[Debster21]

I have been diagnosed as "Intermediate high probability MS".. What the heck does this mean? I have small lesions on my brain and the left side of my face has been going numb for about 2 years (the area that goes numb on my face has grown). The doctor also has said I have "Optical Neuralgia".  This has been a long journey. I don't understand.. Does anyone else have this facial numbing.. The only way I can describe it is like a rushing numbness.. What makes it do this?  I had my hand go numb too about 2 weeks ago.  Can this be something else? Why isn't it an "official" diagnosis, it just seems kind of in limbo.. I am on Betaseron, for the MS.. Is there a way it could not be MS?

[Quixotic1]

This means: "We only, kinda, sort of really think you have MS."

What Hogwash!  Whoever made up that designation believes in the adage, "If you can't dazzle them with brilliance, then baffle them with bullsh it."

[Debster21]

Thank you for responding!!! I did call them and ask them what "type" i had.. They said it looks like relapsing/remitting.  So, I am doing all the research I can... I am feeling okay.. Just the numbness happens alot during the day, which I guess I am getting used to.. My vision has been funky and I just got glasses (which haven't come in yet)- with prisms in them.. To correct the double vision.. So, I am just going to go with it.. What can you do? I am going to make the best out of this!

[essdipity]

Hi, and welcome to the forum.

My goodness, I've never heard of such a classification system. Makes me wonder whether there's an intermediate low probability group, or maybe beginner high, etc.

Whatever, the important thing is that you're on a DMD. Reading our health pages is an excellent idea. My other suggestion to you is to see your neuro and ask point blank what you want to know. Ask what your MRI means, ask whether everything else has been ruled out, ask about your symptoms and whether you can have meds for them. You get the idea. Make a brief list to take, if need be, so that your specific points can be covered quickly without your being more or less shoved out the door.

Let us know how this goes.

ess

[sllowe]

Hi Debster21,

Thanks for joining us.  While there are pattern areas that are noted in the brains of MSers, not all follow the rule.  Some we have discussed here and you can read further about in our health pages are:

-Juxtacortical refers to lesions in the white matter adjacent to gray matter (where the cell bodies are);

-Periventricular refers to lesions near the ventricles, large spaces in the brain filled with CSF, around which many nerve fibers course;

-Posterior fossa is where the nerve fibers exit the brain to descend through the brain stem an spinal cord

This dx for you sound like what CIS (clinically isolated syndrome), but I can't be certain. Maybe some others have seen it called this.  

I'm glad to see you are on the betaseron.  So many people come here w/CIS and their Dr. did not treat them.

How are you feeling?

Thanks for coming along! See you around!

[Debster21]

Also, where on your MRI are most "MS lesions" supposed to be?This all confuses me!