I know you probably see a lot of posts like this one, but I'm really at my wits end. Here is my story as best as I can remember... I noticed decreased strength in my hands and arms probably about 5 years ago, at the time I was expecting my third son so my OB thought it was due to pregnancy. Not long after I had my third son I became pregnant with my fourth. During this pregnancy I had to be catherized for nearly half the pregnancy because of retention issues. My hands continued to lose strength, etc. About two years ago I had an EMG; results showed carpal tunnel in my hands (mild). In the past year or so I have had pain in the joints of my hands when I tried using them to open things, etc. The strength has diminished more and I started feeling these "zingers" I call them. Electrical kind of burning in certain fingers or toes. Right now I have them intermittently on my left side down my middle finger and middle toe. The last few days I have felt a tingly feeling on the left side of my scalp. I frequently have stiffness in my hands and my legs (on some days) feel as though they are tree trunks that I am just lugging around.
I've seen a Rheumatologist who at first thought psoratic arthritis but later ruled that out and sent me to a Neurologist. He sent me for a MRI (in February). The MRI showed lesions on the white matter of my brain. This got me a ticket to another MRI for the spine. The report states that I have minor bulging, some arthritis but no stenosis, oh and I may have a synovial cyst on the L5 portion(? I think). I've been to the Orthopedic surgeon and he has ruled out my problems stemming from something he would be able to help, stating, it was a much larger issue than that.
My Neurologist has prescribed PT which I started this week and they are working on strengthening my upper body and legs. I've had another EMG in the past month of both arms/hands, legs/feet, my arms did not really show anything but my legs showed some pinched disturbance with the nerrves. I am currently on Neurontin (100 mg / 3 times a day). I have numbness in my hands and feet (especially when I sit on the couch, or when I'm driving). The past year I've had major personality changes such as I can't stand even myself at times the way I snap at people and I can become very upset - depressed at times. In November of last year I was so fatigued I could not get myself out of bed to go to work it was so bad. My B12 is low and I have been receiving B12 shots weekly but the numbness and tingling still exists. Over the past two years I've had dizziness issues - for no reason, even while sitting down at my desk I will become dizzy and the world will spin as if off of its axis. My cardiologist (I have SVT, tachycardia, palpitations - I take verapamil for that) had me have a tilt table test done and it came back negative. Medication for vertigo leaves me too lethargic to work, so since the dizziness doesn't mess with me too much I live with it.
Needless to say my memory stinks... I struggle to remember on short term and long term items. I have been in school for the past five years and noticed my memory worsening over the past 2 - 3 years. I've gone to the eye dr at my Neurologist's suggestion and she said my eyes look good so far. But I want to stress that I don't always feel bad - there are times where I have felt much better and energized, maybe that's why I was able to just shrug it off.
I know to get a MS diagnosis you must have at least two MRI showing brain lesions but I just want to know, does it sound like MS? What else could it be? My quality of life is seriously being affected... please help.