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195469 tn?1388322888

White Blood Cell Count

I know that this question has probably be posted before.  I am new to this forum so please forgive me, if I am being repetitious.

Everytime over the past 12 years since I have been diagnosed with MS, my white blood cell count has been very high.  Over 16,000 on average.  How many of you have the same high readings?

Would appreciate knowing if this seems to be the "norm" with those of us diagnosed with MS...Thanks, Heather
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233622 tn?1279334905
I have herpes on the LEFT side of my face. Trigeminal Neuralgia and Optic Neuritis on the RIGHT side of my face.............

L
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233622 tn?1279334905
I have NEVER had them around my mouth or lips. When I break out I only get one huge sore.

It is always in my cheek area. Huge seeping blister, pain, itching, hot, like a chicken pox sore.(Sorry, I realized I did not spell cheek right in my last post!) The doctor said the virus has settled in the nerve across my cheek.

It has been as high up as my eye, but never in my eye...yet, and as low as almost my jaw line. The sore can get as big as a silver dollar.

My mom first thought it was a spider bite at first and it was UGLY and I was pretty sick. But the doctor said no, it was herpes. They did a test to find out. I run a temp and get swollen glands, fluish like.

The higher up on my face it is the more pain I have. It can be very miserable. Thankfully I have never transfered it to anyone else in the home and I have cared or 7 infants. So, that is good.

I think it is in my trigeminal nerve area. But I do not recall exactly what the doctor said. So, I don't know why it settled in that area of my face and not the normal mouth and lip area. It is always on the left side of my face. I have Optic Neuritis and Trigeminal neuralgia on the LEFT side of my face.

My doctor said he would have felt a little better about me having TN if it was on the same side as the Herpes virus. He said he would feel comfortable saying the Herpes was cause nerve pain. But, it is on the other side. That raised the MS red flag with him at that point about 3-4 years ago.

L
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Avatar universal
Interesting.  Are you saying you only get cold sores on your left side of the mouth?  I am a little confused. How does the doctor determine which nerve was infected with the herpes viurs?  I get them on either side of mine also on the inside of my mouth where the lip and gum line intersect and also inside my nose.  ouch!  I have never been to a doctor regarding my fever blisters.  I just thought that it was something you have to live with.  A couple of months ago I had a string of outbreaks one after another for a few weeks.  I wonder if that outbreak had anything to do with reapperance of some weird symptoms.
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233622 tn?1279334905
This is interesting. I have Roseola when I was a toddler. Started with Herpes simplex when I was around 13 year old. That virus is in my 5th facial nerve area..if I remember what the doctor said. It is up around my check and eye. Very painful. I was very sick with Mono when I was 18 and then had another EBV outbreak when I was 38 and on a chemo drug for arthritis. My facial herpes was horrible during that time also.

The herpes on my face is located on my left side. My Trigeminal neuralgia and Optic Neuritis is on my right side. What a funny puzzle this all is especially since I have not be dx'd with MS so far but do have some symptoms. I knew I was odd! HA!

L
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Avatar universal
I found something Quix said here of real interest. For as long as I can remember I have an occassional cold sore. Those that get them know when they are getting them, you feel it and can now take your meds to minimize the outbreak. I have always thought that stress triggered them in myself and assumed it would be similiar with others. I never really considered the connection with MS.

I have thought that MS flare ups were triggered by stress just like cold sores. For some reason I never put the two together. Of interest was that a few weeks back I had a cold sore and a few days later I had ON issues and lost the most of the use of my right arm.

Cold sores don't happen that frequently with me and I could go 6-7 months maybe without one. Sometimes I get them back to back.. days or weeks apart. It might be interesting to start charting outbreaks with my MS like symptoms.
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195469 tn?1388322888
I follow all of your posts with great interest.  What a lucky group we all are, to have you.  I know you put everything you have into this forum, even when you are not feeling up to par.  God bless you.

As I said, my white blood cell count is always high.  It's been this way for years, as has many of my friends that have MS.  For what reason I do not know.  I HAVE been sent to the cancer center when I lived.  The doctor's thought I had leukemia.  All of my testing came back normal.  So no one was ever able to tell me why my white blood cell count stays high.  By the way, all other blood testing, RBC, etc., came back normal.  Except as I have said, my ANA.

So while my MS mystery was finally resolved, my WBC continues to stay high for no reason the doctor's have been able to tell me.

As Johnny stated in one of his posts, I have never seen such a compassionate, caring group of people, as I have seen in this forum.  I have been a part of many, since receiving my dx of MS, 12 years ago.  99% of those that I have come in contact with, with MS; have been a special, caring group of people.  Maybe it's a GREAT SIDE-EFFECT....LOL

Best Wishes, Heather
Helpful - 0
199882 tn?1310184542
My white count was high and come to find out I have a kidney infection.  Which as Quix said can throw you into a relapse.  It has me.  I'm almost back to square one with my PT.   Even he says that I'm as stiff as I was when we first started therapy.  I haven't been able to go on some of the days because I can't get out of bed.  So you probably need to go to your doctor and see if they can find out why your count is high.

I'll be praying,
Carol
Helpful - 0
147426 tn?1317265632
Hi, you've become a welcome addition to the forum and I appreciate it your knowledge and expertise!  An elevated white count would not be typical of MS.  The cause needs a search.  I, too always had a high count, but at some time about 15 years ago got treated with prolonged antibiotics for a "subacute endometritis."  I was having a pelvic pain syndrome and afterward my count which for years (10+) was always 16,000 to 21,000, became normal.

On another thread I read that you often have a flare of the MS after a cold sore and spoke of a possible relationship to the MS.  There is, indeed, a relationship, but it is indirect.  As you all probably know, about 92% of the population harbor the Herpes Simplex I (cold sore) virus.  Some people, though never get cold sores.  Those that do, usually do not just simply get the lesion on the lip, nose, chin wherever.  The lesions often are prompted by a physical "stressor" such as a major event, stress in life, a respiratory infection, menstrual cycle, etc.  Before the lesion shows there is a brief shower of the virus into the blood stream - a viremia.  Often people who get the sores have a day or so of fever (also called fever blisters), headaches, myalgias.  These symptoms are from an activation of the immune system and the subsequent production of immune factors that cause the "flu-like symptoms."  Once the immune system is activated the MS flare often takes off.

It is well documented that an MS relapse often follows any kind of infection, including simple colds, the flu and UTI's. Anything that sets off the immune system can trigger a relapse.

The cause of MS has not been particularly associated with prior infection by the Herpes Simplex viruses, either I or II.  They have specifically looked for evidence of this.  However there is strong evidence of an association with another herpes virus called Human Herpes Virus #6.  This is the one that causes the childhood rashy illness also called Roseola.  There is even stronger evidence for a role played by another herpes virus, the Epstein-Barr Virus, EBV, which causes the illness mononucleosis in adolescents and young adults.  Most people, though, catch EBV as children or infants when it is an unremarkable little viral illness.  You know, the baby has a fever and the doc says, "It just looks like a virus," and doesn't treat it (and you wonder if the doctor knows anything at all??? lol)

One of the blurbs I'm hoping to do soon will be on triggers of MS attacks.

Heather, I'm glad you're here.  Quix
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Avatar universal
Welcome,

my white blood count was high when I first started Rebif,it has since stabled itself.I know its not much to offer.
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