blues

[mo0427]

I went to see neurologists and she told me she's 99% sure i have ms. It has me upset and angry but I hear the negative aspect of it is there anyone whose functioning well with it. What triggers the problems.  and with me nursing my son did i harm him? But i still have to undergo tests

[jujuminx]

It is a great idea to get things in order before dx. Good girl!  

As far as family goes, you will find everyone deals with news like this differently.  I found sharing some of my journal entries helped them understand where my mind was at.  Some of the entries I made sure to included some facts about MS cause, well, most of my family and friends were as ignorant about the disease as I was.

You will find that most family and friends will actually forget you have it (if you choose to share it with them in the first place).  If I don't tell, no one can "tell" I have it as I have no disability or limitations.

Forget the deserving part, no one deserves a disease, it just happens, the luck your genetic lottery.  I tell you though, it's better to have a dx now rather than years ago.  At least now there are medicines that slow down the progression and everyday more is learned about this mysterious disease.

Hang in there and keep posting, we care about you.

Julie

[mo0427]

Wow thank you all so much. It's hard asking questions but easier chatting with you all. It's not easy talking to my family no one wants to hear it or accept the fact that it may be. It makes me feel bad and I have to do so much like set my life insurance up before I am dx. I keep asking what I did wrong to deserve this. I feel like I'm a walking disease and everyone know what I have

[sllowe]

Adding on my support here too, Mo. No, you definitely not hurting your son - you keep nursing him as long as you both can.

I'm surprised to hear 99% but still need more tests. I've heard more often at the conclusion of all testing, 99% definite.

But, here you go - your on your way toward a definite - I'm doubtful doc will get to the 100% before introducing you to the world of disease modifying therapy. Since you are nursing your son, this will not be something immediate you have to start.

There are many people doing well w/MS. I have to say that I was worse off in 07 than I am now. And, I'm grateful for that. I'm not what I was before 07, but over time I accept the new me and the limitations it comes with.  Heck I made it a goal to go fishing in a planned tournament the same yr and I did it. Guess I was mad enough, lol but determined to not stay beat down. Just saying there are milestones we hit and it's not a death sentence.

I hope you see so many here that inspire you no matter what they are facing on a daily basis. When you need a break from your little on, pop on in and read around. Ask anything and above all else take all of this one step at a time,  i.e., get the tests behind you, process the info from those tests, and so on.

We'll pull you through the next phases. Congrats on your little one.
-Shell

[jujuminx]

Welcome to the forum. So sorry you are upset and angry. This is a natural response when told that you probably have a chronic disease.

There are many people here in this forum and elsewhere who are doing well while living with MS. It is not a death sentence!!  And it doesn't mean you will end up in a wheel chair. It appears I have had MS for almost 20 yrs and I am fully functioning with no disabilities or chronic pain.

First and foremost, you need to follow up on the tests your dr wants to do.  IF you have MS, a dx will get you the options of medicine that can help you in the long term. Sarah was correct in saying that MS isn't something that is catching through your breast milk so let that one go.

For many people with MS, stress can amplify symtoms. So, while I know this is a stressful time for you, you need to concentrate on taking care of yourself and realizing that whether you have MS or not, worrying won't change a darn thing.  Most people feel that a dx is way better than living in limboland and while we would all like the option of not having MS, well, that isn't an option.

Eat well, do some moderate exercise, get plenty of sleep, find ways to reduce your stress and follow up on your tests. We would love to help you through this so keep coming back here with your questions and changing status.  I would venture to say most everyone here can relate to your fears and many (like myself) can relate in a more personal way as we have been exactly where you are at one point in our own medical journey.

Peace and blessings to you,  Julie

[HVAC]

In the beginning the idea of MS can be so scary. You can imagine every bad thing that could happen. Remember you are the same person you were before you went to the Doctor it is a label. You may turn out to have MS you do not have to be MS. You will be on a bit of a roller coaster of emotion which is normal. The trick is there are a lot of unknowns in MS and learning to cope with unknowns. No Doctor can tell you how MS will go in a person. I stay in the moment because nothing to scary is happening right in the moment, it is usually what I imagine what could happen. The genetics for passing MS to your child are low as well.

Take care,

Alex

[Sparkysarah]

Hi again, I remember you posting a little while ago when you had had your MRI done and were concerned about the results. It appears that the neurologist has now indicated that he/she strongly suspects MS and of course this is not what you want to hear..particulalry when you have just had a baby. I am sure that you will not harm your baby by breast feeding and MS is not an illness that can be caught like a cold, it is do with your own immune system. I suggest that you look at our health pages (top right hand corner of page).

There are many people on the forum who cope very well with MS and lead fairly normal lives when in remission. But if someone has RRMS the nature of this dx is that you are either in remission or relapse and everyone is different.

If you receive a definite diagnosis, be sure to ask about treatment options available to you as soon as possible and if you have any other questions there are many experts on this forum.

I can understand you feeling blue and just take time to process the possibility of a diagnosis...but until this is given it is not definite so just try and take it a step at a time

With best wishes

Sarah

PS On your profile..I think you made an error as you indicated you are male.