I've been on coaxone now for about 2 months and have had no real side effects other than a little burning or mild swelling. Saturday after my shot in my stomach I started getting light headed and hot and my heart started racing. I sat there trying to take deep breaths and looked up at myself in the mirror and my face was bright red! I felt like my heart was about to explode out of my chest! I gathered my composure enough to get to my bed and I went to sleep. I woke up Sunday feeling better aside from the migraine I had (and still have).
Has this ever happened to you? Is this just a side effect or something I should worry about? I go to my neurologist in a week and will be sure to let them know about that episode. I was so nervous about my shot last night so I kept procrastinating but eventually did it and all went well, thankfully!
I've had this happen before after the shot. This can happen with Copaxone, and it did during the first year I was on the medicine. One, like the one you had, was more apparent than the other reactions. I told my neurologist, and he thinks I was injecting in my blood stream. He gave me some tips to avoid doing that again, and for the life of me can't remember what they were. Maybe someone on the forum does know.
I think I had two or maybe three reactions like that in my first year on Copaxone, and have not had any problems at all since.
It was very scarry! I talked to my SS nurse today and she said about 16% of people have that reaction from time to time. What made it worse is that my husband didn't seem to be worried. Guess he thought I was joking...not too sure why I'd joke like that.
He still hasn't said anything about it...weird. His mom says it's his defense mechanism...that's a strange one if you ask me! He always takes that kind of stuff seriously. Praying it doesn't happen again. Although it turned out okay, it still makes me nervous!
I'm glad the SS nurse spoke with you today and unfortunately, you were in the 16% huh? Don't we always find a way to sneak into those small percentiles!
Perhaps it was a defense mechanism, perhaps he is totally oblivious, but whatever the case, you need to speak to him and let him know that there can be a reaction and your body has decided that one time to do so and it was "no joke". Tell him the next time you say you're having a problem, to take it serious. Sheesh! My bf is just "dense" as the rainforest in the Amazon! Heh.
Hugs to you and lets pray that this doesn't happen again!
Oh, those IPIRs are terrible. Some people have the one, while others just keep having them. I took Copaxone for three years, and had about six. I finally stopped, not because of the IPIR, but because it turned into an allergic reaction. Fortunately it was slight.
Personally if I were you I'd keep an Epi-pen in the house. This is a great thing to have even if you don't have serious allergies. If you have the IPIR again, stay awake until the IPIR has passed. My allergic reaction was extreme skin itching, and slight swelling of the face.
What the Copaxone people will tell you is that you injected in an area that didn't have enough fat. That's more or less true, but it's oversimplified. Copaxone causes areas of scar tissue, especially if you don't massage the area or heat it after injection. I had a lot of lipoatrophy, and areas would become 'uninjectable' because I wasn't treating my injection sites very well. So after a while, the safe areas for injections became too scarred for me to continue.
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