Aa
Hi im new nice to not feel alone anymore
Ive been diagnosed 4 years ago 3 months after my sons was born never had any real problems but the last years been crap had first pain with ms, never had pain before. Only numbness in right leg and hands. Had real awakening with this decease it never used to worry me much because i had no pain but now i know why the doctor who diagnosed me subscribed anti depressants didnt needed it in the begining but now know why they suggest anti depresants its the little things i use to take for granted like wearing a nice pair of heals or being able to take yoga even taking a stroll in our mall now is a battle people look at me funny, and people dont understand because i dont look sick i just walk funny.About a month ago i started feeling verry sorry for myself and for the first time i ask the question WHY and thats never a good idee because theres no awnser.
Yeah, I don't have enough room in my closet for shoes I don't wear, but it's very difficult.
Just know that you can always come over here and talk about things - we'll be here!
Just know that you can always come over here and talk about things - we'll be here!
I would like to thank all of u who made my day a little bit better. I do not feel so bad any more most of u might think why do i make such a big deal about shoes but if you knew me like five years ago u would know that i have more than 120 pairs of stelettos in my closet witch i still haven given away they are all still there. And believe me i know its a sin they are only earthly possesions but they were all my freinds for so long.But i think its time to let go and get out the pumps.
Shame luckely my son was 3 months when i was diagnosed and he knows i cannot run outside with him and kick the ball cause mommy cannot get hot but its nothing new to him he knows me as te mommy that takes him to the movies and to his favourate restuarants any place i can sit down and not be stared at. I dont have MS that bad but i live in Sunny South Africa and believe me its not ideal for a person with MS some days im good and then other days im lost depressed and mad and believe me im not that tipe of person and the bad thing is that when i feel that way i take it out on the people i love most and in my eyes that wrong but before i can stop myself the damage is done. My husband says he understand but for how long wil he understand im not the woman he fell in love with and maried im just scared im going to end up a misserable old bat with a cane and no family wanting anything to do with me anymore.
Hello and welcome to the forum. I know that moment your talking about. When you just wonder and it makes you feel like your going to cry (at least it did for me). I went fishing with my soon to be ex and kids. I was having a hard time staying down there cause of the heat and standing so I had to come back. After an hour they came back and my 8 year old was screaming "daddy daddy!! look at what I caught." It broke my heart to see the pictures of the big fish she cause after I left to come back. I just kept wondering why me. We all deal with things differently every day. Just got to stay on top of it and make due with what you've got.
Chad
Chad
Welcome to the forum!
I have had to ditch all my high-heeled shoes. Even my sandals with a little bit of heel have become very dangerous. Boots are scary. With my walking issues and being currently on Coumadin, I don't need to be falling!
What kind of pain are you getting? Neuropathic pain, or pain from spasticity?
Well, if you're feeling down, just know that you're not alone! Not even alone in feeling down. Shared pain is lessened, shared joy increased.
I have had to ditch all my high-heeled shoes. Even my sandals with a little bit of heel have become very dangerous. Boots are scary. With my walking issues and being currently on Coumadin, I don't need to be falling!
What kind of pain are you getting? Neuropathic pain, or pain from spasticity?
Well, if you're feeling down, just know that you're not alone! Not even alone in feeling down. Shared pain is lessened, shared joy increased.
Hi Sureth
Just to say a very big welcome to our wonderful community where you will find many people who can help you, answer questions, listen and provide understanding.
I have never been a great "heels" girl as I am quite tall but feel the loss of the girl that I used to be and want to be for a while longer. I feel that I am ageing prematurely and just want to grasp life by the hand and try and enjoy every precious moment.
Anyhow good to hear from you and hope to see you again
Love Sarah
Just to say a very big welcome to our wonderful community where you will find many people who can help you, answer questions, listen and provide understanding.
I have never been a great "heels" girl as I am quite tall but feel the loss of the girl that I used to be and want to be for a while longer. I feel that I am ageing prematurely and just want to grasp life by the hand and try and enjoy every precious moment.
Anyhow good to hear from you and hope to see you again
Love Sarah
Welcome!
I have been on this site since Oct - was diagnosed last February.
This site has some wonderful people who understand and are willing to share and answer questions.
It's a great place to vent - so come back as often as you need - for support and advice. It's also a great way for you to help others by sharing your knowledge of MS.
Feel well and take care!
PS - I'm also trying to find a new "normal" and heels are getting very difficult for me too!
I have been on this site since Oct - was diagnosed last February.
This site has some wonderful people who understand and are willing to share and answer questions.
It's a great place to vent - so come back as often as you need - for support and advice. It's also a great way for you to help others by sharing your knowledge of MS.
Feel well and take care!
PS - I'm also trying to find a new "normal" and heels are getting very difficult for me too!
Hi Sureth,
it occurred to me the other day that my days of high heels might be affected too as I was walking through Kohls. I was really a sucker for 6in heels, even if i didn't get to wear them all that often. I think that might be one of the minor things adapt to. It's possible to find sexy flatter shoes and look and feel just as sexy.
As for other people, No one ever knows whats going on in your life by looking and they may gawk but more than likely they will forget in three seconds anyway.
My nephew has autism and he looks normal but sometimes it can get pretty ugly in public. People gawk and may think we're beating him or he needs to be beaten (which is what I used to think when I saw kids acting out in public.) But they have no idea what is really going on.
Just keep on holding your head high and laugh knowing you probably have better drugs than they do.
They may have worse problems than you do. You never know.
Lora
it occurred to me the other day that my days of high heels might be affected too as I was walking through Kohls. I was really a sucker for 6in heels, even if i didn't get to wear them all that often. I think that might be one of the minor things adapt to. It's possible to find sexy flatter shoes and look and feel just as sexy.
As for other people, No one ever knows whats going on in your life by looking and they may gawk but more than likely they will forget in three seconds anyway.
My nephew has autism and he looks normal but sometimes it can get pretty ugly in public. People gawk and may think we're beating him or he needs to be beaten (which is what I used to think when I saw kids acting out in public.) But they have no idea what is really going on.
Just keep on holding your head high and laugh knowing you probably have better drugs than they do.
They may have worse problems than you do. You never know.
Lora
Hi and welcome.....
I understand exactly what you are saying. I was dx in Jan of this year, and I am still trying to wrap my head around it.
I have days/weeks where I limp a lot and than other times where I walk pretty normal. It depends on how much the spasticity is bothering me in my legs. But people don't understand.....like you said, we don't look sick, or talk sick, but boy do we feel sick.
Have you started the anti depressants? My doctor is suggesting a low dose to help me sleep. At first, I didn't want an anti-depressant, but now I think I am ready to take it.
I understand exactly what you are saying. I was dx in Jan of this year, and I am still trying to wrap my head around it.
I have days/weeks where I limp a lot and than other times where I walk pretty normal. It depends on how much the spasticity is bothering me in my legs. But people don't understand.....like you said, we don't look sick, or talk sick, but boy do we feel sick.
Have you started the anti depressants? My doctor is suggesting a low dose to help me sleep. At first, I didn't want an anti-depressant, but now I think I am ready to take it.
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