high protein in CSF, Babinski reflex, Myoclonus and positive ANA,...MS, ALS or SLE ?

[ctcollins]

Hello,
         I am an 38 yr old male and for the past 2 yrs I have been out of work due to constant head aches and migraines, fatigue, dizzy, constant pain, ringing ears ( very loud ), sensative to sound causes myoclonic episodes, eye pain, blurred vision when hot, eye floaters. Extremely sensitive to heat, when hot have glazed vision and dry eyes, very short rapid breathing and muscle jerking and sweating ( it looks like i am having a seizure ).Everytime I eat and I am chewing solid foods my tounge, roof of mouth and throat get very tight, cramping and painful making it very hard to eat and swallow anything but soft food that does not take much chewing. All of my fingertips are almost completely without sensation causing it hard to hold objects. Painful cramping in back of neck, visible muscle spams in right hand and arm, R/H index finger keeps jumping up. I always wear sunglasses inside or out due to light makes my eyes and head hurt 4x worse, I also have a severe gait problem i drag both my feet and right foot is twitsted out to the right at about a 45 degree angle. I have to use a cain and still have problems with balance and falling, If i get in any moving object ( car, plane, train, etc. ) i get instant motion sickness and severe head and eye pain. I have myoclonic seizures and my right arm tremmors, i also have muscle pain and stiff muscles. One day my right arm and shoulder locked into a certain position for about ten minutes and could not move it at all and last week while sitting in a chair i became paralyzed completely for about 25 to 30 seconds and started moving in slow motion then was back to normal.

I have had every test done at two different hospitols refered by my neurologist and have no definate answers to what is the cause, I've had 4 lumbar test that show my protein is at 114, 6 MRI's and the last one they thought i might of had a stroke, the MRI's on my spine show most of my dics to be degenerative and signs of mild to moderate spinal canal stenosis and mild to moderate bilateral neural foraminal stenosis, and i also came back possitive for autoimmune and ANA at 1:320 in nucleolar pattern,  babinski reflex on both feet, Creatinine 1.4 and high macrophage.I have had multiple eeg, emg, ct, blood, urine and all the eye test you could immagine but these are the only definate findings from all my test. If you have any thoughts i would be very happy to hear them.



Thank You for your time, Chris Collins

[Wobbly]

Hi..well, I see you have alot of positve results...now what do they mean...that's the question. Have you been to a Rheum re; Lupus or a autoimmune Dx?

You sure are going through alot right now and I hope you see your Dr soon...

I'm not yet Dx...I have postive ANA, high CRP, and a few others...but it's been awhile with no Dx yet..

take care and keep us updated with how your are...

andi

[sllowe]

Hey Stranger,

Glad to see you back.  You were here before briefly right? Thinking it was prior to a lot of these tests though.

Well, what are they suggesting? Did your MRIs show any any lesions?  I'm sorry you are suffering like this.  You do have something going on, and deserve some answers just like so many here.  I hope we can steer you in the right direction.  Are you able to break this down a bit into a timeline of sorts? I think that would be most helpful to all of us, as well as for you.  

Also, do you have all of your records and reports from Drs and the hospital?

Hang in there, we're here for you,
Shelly