Need input on Rebif

[wyfrog]

Hello.
I was on Copaxone for 2 years.  While on it I experienced several flair ups, so it's time to try something else.  We decided on Rebif. Can any Rebif users out there give me any input on your experiences or helpful hints.  I'm pretty nervous about the side effects but I am going in with a positive attitude.  Thanks for the help.  Have a happy day :)  karen  

[wyfrog]

Thank you all so much for the encouraging words.  I was getting a little anxious after reading about all that could happen.  karen

[young at heart]

I HAVE BEEN ON REBIF FOR ALMOST 3 YEARS AND I NEVER REALLY EXPERIENCED ANY REACTIONS TO IT.

I LIKE THE IDEA IT IS 3 TIMES A WEEK, JUST UNDER THE SKIN. I CAN NOT COMPARE IT TO THE OTHER DMD, I HAVE ONLY BEEN ON REBIF.

T-LYNN

[sllowe]

Hi Karen,

Think you'll like the thin needle and the 3 per week vs everyday.  I find it very tolerable.  The dosing it titrated to minimize side effects.  When they describe flu-like it's really not the extent of the flu at all.  

My MS lifelines nurse was fab and gave me some tips that were given to her from patients. She said that the majority of patients don't ice, they find that warming the spot prior to injection is better.  So, that's what I went with - I would rub up the spot good and then alcohol it, let it dry (so you don't get that burn/pinch - I'm sure you're aware of) and then inject.  She gave me some other great tips too expecially where injection spots are concerned.  I can get into that w/you at some point. (the chart they provide is disceiving in the hip area - not exactly where it should be - my opinion.

I inject straight up (w'/out the auto) and find I barely feel it sometimes.  Only thing you'll have to do (and I recommend getting it done prior to starting) is have your thyroid, CBC and liver enzymes run.  They will run them periodically once you start because like most meds you can see changes - w/Rebif, those are the ,most reported 3.

Are you stopping inbetween, or going straight into the Rebif?

Sorry to go on and on, ask anything.  I sure hope this change reduces flares for you.  I have chronic MS related issues, but not big flairs if that is any consolation to you.

Nice to see you,
Shell

[borntolose102]

Hi Frog,

i love the stuff. I have taken Avonex, Rebif, Copaxone(sp), and back on Rebif. The side effects are minimal and something tylenol can take care of. The three days a week bit is nice and I think you will like it. As much as something like that can be liked. You may have some extra perspiration at night but turn up the fan a tad. Hope it works for you well...