Aa
iv solu-medrol
most of you will not remember me as i have not been on in awhile. i had been in limbo on my dx and it seemed that i needed to take a break from my numerous questions regarding this confusing travel . many of you helped tremendously and i do appreciate it. well i went from thinking i had bells palsy in october and thru numerous tests i have now found that this is probably my third flare up of ms. however these 3 flare ups have been over a very long period of about 8 years.(i would think as far as ms goes thats probably not excessive) went to my neuro on thursday for my sep and vep results and he sent me back o the hosp for another mri and scheduled my spinal tap for fri. after my lp he said he was going to start me on an iv of 500 mg of solu medrol and i would do that daily for 3 days. as of yet i have no follow up appointment and the only info he gave me on fri was that one of my lesions does seem to be healing or smaller (cant remember exactly which word he used) and he told me to finish reviewing the binder on avonex that he gave me. so i guess i am wondering if any of you that have done this iv steroid thing can tell me are there changes i should be noticing.should i be losing some symptoms or do these steroids just slow things down. any imput on this iv steroid idea, any pros or cons or is it something that just needs to be done. thank you so much for your time and input. **i do hope that you all had a very Merry Christmas and wish yo all the happiest of New Years.
hoping you all well........ kim
hoping you all well........ kim
YOU'VE GOTTEN GOOD ADVICE ON THE SOLU-MEDROL. NEURO'S ONLY USE IT TO STOP A REALLY BAD FLAIR UP AND WHEN OPTICAL NEURITIS GOES HAY WIRE.
MY FIRST EXPERIENCE WITH SOLU-MEDROL THEY DONE THE INFUSIONS AT 250 MGS EVERY 6 HOURS.I WAS ADMITTED TO THE HOSPITAL FOR 5 DAYS.THIS WAS NOT STANDARD PROTOCAL BUT IN 1998 THE INFUSION CHOICE TO STOP A FLAIR UP WAS DECADON A STEROID AND I HAD A SEVERE REACTION.
I DONE REALLY WELL WITH THAT,BUT I'M ONE THAT MY SUGAR LEVELS SKY ROCKET,THE SECOND INFUSIONS WERE DONE IN HOME AT 500MGS EVERY 12 HOURS,THEN I HAD AN ATTACK AND COULDN'T WALK SO THE NEURO RAN 1500 MGS FOR 3 DAYS OVER A 9 HOUR PERIOD.MY NEURO WAS WORRIED ABOUT THE LEGS BEING DAMAGED.MY LATEST ROUND 10 DAYS AGO WAS A 1000MGS FOR 5 DAYS.
I HAVE HAD SOLU-MEDROL INFUSIONS 4 TIMES SINCE MARCH,BUT THIS WAS MY NEURO'S LAST RESORT.HE DOESN'T LIKE USING THEM THAT AGGRESSIVELY AS THEY DO HAVE THERE SIDE EFFECTS OVER TIME.
SIDE EFFECTS BEING SUGAR LEVELS RAISED,OSTEOPOROSIS,CATERACTS,THEY CAN LOWER YOUR RESISTANCE TO COLDS.
I HAVE HAD GOOD RESULTS WITH THEM,THIS LAST ROUND HASN'T HELPED MUCH WITH THE OPTICAL NEURITIS BUT THERES STILL HOPE.SOMETIMES ON JUST HAS TO RUN ITS COURSE.AT LEAST I GOT THE NUMBNESS OUT OF MY LEFT HAND THATS A PLUS.
THE MED HAS MANY BENIFITS IN HELPING ATTACKS AND REDUCING THE INFLAMATION
I'M A RARE CASE I SUFFER FROM BILATERIAL ON,IT HAD ALWAYS EFFECTED MY RIGHT EYE BUT IN AUGUST IT DECIDED TO START IN THE LEFT.THIS TIME I WAS NAILED WITH IT IN BOTH.
DON'T BE AFRAID OF THE STEROIDS DRINK PLENTY OF WATER WITH THEM AS HEATHER SAID THEY CAN BE HARD ON THE KIDNEYS,
KEEP US POSTED,THEY CAN MAKE YA JITTERY, OR AS MY KIDS SAY TO ME MEANER THAN A JUNK YARD DOG,THIS LAST TIME THEY MADE ME EMOTIONAL
BUT THEY DID HELP ME
T
MY FIRST EXPERIENCE WITH SOLU-MEDROL THEY DONE THE INFUSIONS AT 250 MGS EVERY 6 HOURS.I WAS ADMITTED TO THE HOSPITAL FOR 5 DAYS.THIS WAS NOT STANDARD PROTOCAL BUT IN 1998 THE INFUSION CHOICE TO STOP A FLAIR UP WAS DECADON A STEROID AND I HAD A SEVERE REACTION.
I DONE REALLY WELL WITH THAT,BUT I'M ONE THAT MY SUGAR LEVELS SKY ROCKET,THE SECOND INFUSIONS WERE DONE IN HOME AT 500MGS EVERY 12 HOURS,THEN I HAD AN ATTACK AND COULDN'T WALK SO THE NEURO RAN 1500 MGS FOR 3 DAYS OVER A 9 HOUR PERIOD.MY NEURO WAS WORRIED ABOUT THE LEGS BEING DAMAGED.MY LATEST ROUND 10 DAYS AGO WAS A 1000MGS FOR 5 DAYS.
I HAVE HAD SOLU-MEDROL INFUSIONS 4 TIMES SINCE MARCH,BUT THIS WAS MY NEURO'S LAST RESORT.HE DOESN'T LIKE USING THEM THAT AGGRESSIVELY AS THEY DO HAVE THERE SIDE EFFECTS OVER TIME.
SIDE EFFECTS BEING SUGAR LEVELS RAISED,OSTEOPOROSIS,CATERACTS,THEY CAN LOWER YOUR RESISTANCE TO COLDS.
I HAVE HAD GOOD RESULTS WITH THEM,THIS LAST ROUND HASN'T HELPED MUCH WITH THE OPTICAL NEURITIS BUT THERES STILL HOPE.SOMETIMES ON JUST HAS TO RUN ITS COURSE.AT LEAST I GOT THE NUMBNESS OUT OF MY LEFT HAND THATS A PLUS.
THE MED HAS MANY BENIFITS IN HELPING ATTACKS AND REDUCING THE INFLAMATION
I'M A RARE CASE I SUFFER FROM BILATERIAL ON,IT HAD ALWAYS EFFECTED MY RIGHT EYE BUT IN AUGUST IT DECIDED TO START IN THE LEFT.THIS TIME I WAS NAILED WITH IT IN BOTH.
DON'T BE AFRAID OF THE STEROIDS DRINK PLENTY OF WATER WITH THEM AS HEATHER SAID THEY CAN BE HARD ON THE KIDNEYS,
KEEP US POSTED,THEY CAN MAKE YA JITTERY, OR AS MY KIDS SAY TO ME MEANER THAN A JUNK YARD DOG,THIS LAST TIME THEY MADE ME EMOTIONAL
BUT THEY DID HELP ME
T
Solumedrol is used when a patient seems to be in a flair that includes Optic Neuritis or having alot of symptoms at one time that is keeping them from functioning. I think most Neurologists are conservative with it's use. It is hard on the body if given too frequently or too close together.
Solumedrol can stop a flair-up in it's tracks. Or totally clear up Optoc Neuritis, saving the eyes from any further damage. It's a wonder drug in a sense. It is hard on the kidneys, your blood pressure, can make your blood sugar go up and all around either make you feel good or make you feel like ****. It can increase your appetite, lower your ability to fight common infections but can help with your symptoms. It really can do wonders to stop a flair-up in it's tracts. It think it's am amazing drug, but again is used sparingly. I wish that we could use it for all of our flair-ups, but it is saved for those times when things are not going well with your MS course and the doctor's need to get that flair-up settled down and quickly....
A thousand milligrams (IV) over three days, is what I would normally be put on. My heart rate and blood sugar went haywire, just I hung in there. Alot of doctor's are doing away with the prendisone taper after the IV's.
Hopefully your doctor will keep close tabs on you while you are taking the IV treatment and will watch your blood pressure, blood glucose and the like. It made me so hyper that I was not able to sleep for almost a week, so I had to be given a short prescription of sleeping pills. It affects people differently, but like I said, it can be a wonder drug. If it wasn't so hard on the whole body, I think it would be used more often, but I feel that it will always be used when Optic Neuritis is involved.
Don't be afraid of the drug..you may be one of those people that actually feels good as h e l l when they are taking it.
Please keep us posted and let us know how your course goes.
Happy New Year, Heather
Solumedrol can stop a flair-up in it's tracks. Or totally clear up Optoc Neuritis, saving the eyes from any further damage. It's a wonder drug in a sense. It is hard on the kidneys, your blood pressure, can make your blood sugar go up and all around either make you feel good or make you feel like ****. It can increase your appetite, lower your ability to fight common infections but can help with your symptoms. It really can do wonders to stop a flair-up in it's tracts. It think it's am amazing drug, but again is used sparingly. I wish that we could use it for all of our flair-ups, but it is saved for those times when things are not going well with your MS course and the doctor's need to get that flair-up settled down and quickly....
A thousand milligrams (IV) over three days, is what I would normally be put on. My heart rate and blood sugar went haywire, just I hung in there. Alot of doctor's are doing away with the prendisone taper after the IV's.
Hopefully your doctor will keep close tabs on you while you are taking the IV treatment and will watch your blood pressure, blood glucose and the like. It made me so hyper that I was not able to sleep for almost a week, so I had to be given a short prescription of sleeping pills. It affects people differently, but like I said, it can be a wonder drug. If it wasn't so hard on the whole body, I think it would be used more often, but I feel that it will always be used when Optic Neuritis is involved.
Don't be afraid of the drug..you may be one of those people that actually feels good as h e l l when they are taking it.
Please keep us posted and let us know how your course goes.
Happy New Year, Heather
hi kim
I was on a 5 day 100 mg ivsm then a 21 day oral prednisone taper in september. my first. It wasn't bad. i had a nurse come to the house to show me how to hook the solu medrol up to the iv they put in you. the only thing i didn;t like was the metallic taste i had when i was doing this. i sucked on alot of hard candy!
i was having a problem where my arms were getting very heavy (felt like they weighed about 50 lbs), was having problems moving them and various little problems. my dr said the 1 lesion in my spine was inflammed and that this would help. it did. i haven't had any episodes since i had the iv. i also had numbing tingling in my hands that now comes and goes rather than constant. my l'hermittes also comes and goes rather than constant since the iv.
i hope it works for you. good luck
cathy
I was on a 5 day 100 mg ivsm then a 21 day oral prednisone taper in september. my first. It wasn't bad. i had a nurse come to the house to show me how to hook the solu medrol up to the iv they put in you. the only thing i didn;t like was the metallic taste i had when i was doing this. i sucked on alot of hard candy!
i was having a problem where my arms were getting very heavy (felt like they weighed about 50 lbs), was having problems moving them and various little problems. my dr said the 1 lesion in my spine was inflammed and that this would help. it did. i haven't had any episodes since i had the iv. i also had numbing tingling in my hands that now comes and goes rather than constant. my l'hermittes also comes and goes rather than constant since the iv.
i hope it works for you. good luck
cathy
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