lhermittes sign

[cpoppe21]

I am 26 years old have recently been diagnosed with MS and I will be starting on Tysabri. I still have a lot of symptoms that I am trying really hard to get under control and one that is really making life hard is the lhermittes signs. I just want to know if anyone has any advise on how to make it less uncomfortable. I get the electrical shocks constently and it travels all over my body and sometimes makes it difficult to do regular things. If there is any advise on how to make it less uncomfortable I would really appreciate it. I am well aware as well that sometimes you just have to deal with it and make it part of my life, but if there is any good advise on how to make it a little less uncomfortable that would be great.

[cpoppe21]

Well I had symptoms for a year, but like most people I ignored them and learned to deal with them, until a month ago. I had really bad balance and would fall at the gym about 7 or 8 months ago and i had double vision along with dizziness. I went to the doctor and they thought it was an inner ear infection, but the symptoms didn't go away for 2 months after I took medication. I figured it was a sinus issue and brushed it off. About a month ago I was petty my dog and all of a sudden my hand started to feel like it fell asleep and then a few days later my whole right side of my body was numb. I had no feeling and so I went to urgent care and they took blood for any diseases and the next day the doctor made me get a brain MRI and the next day I went in and he told me I had lesions on my brain and referred me to a Neurologist.

I went to a specialist the next day and he took more blood, got a chest xray and had solumedrol infusions for two days to try and get it under control as well as prednezone. the next week I got an MRI of my spinal cord and neck and did all the electrode tests. They found a lesion on my neck which is what was causing the numbness along with the weakness on my right side. I also had a lumbar puncture a few weeks ago and that was the final step in my diagnosis. After i got of the steroids is when I started to feel the electrical shocks. The doctor said it was due to the inflammation in the lesion on my spinal cord. I had to go to urgent care at the clinic two more times for infusions because every time I got of the steroids my symptoms would get worse again. The electrical shocks are the most annoying. I still can't feel my right hand and my muscles are weak sometimes. I am sorry you have had to deal with this. If you have the insurance and can do it I would go to a specialist.  Keep me posted I will be as much help as possible. I can always ask my doctor questions.

[zombie32]

Soo sorry to hear about your diagnosis. I am 32 and have not been diagnosed but have the same symptoms. Could u please discuss how long did it take for your diagnosis, how many tests were done? did ur MS diagnosed by an MS specialist. I have a long list of symptoms but just symptoms , all tests negative. These zaps are only in my arms however ive had pain in my left arm for 7 months now, off and on. I have neck stiffness lately, weakness in legs and arms like all those neurolgical imbalance symptoms that may suggest MS. But still not diagnosed, however these electrical shocks are a latest edition to my miserable life. Shed some light on ur symptoms and testing done and may be we can compare some notes.