massive twitching

[figuerpa]

I am having massive twitching and vibrations in my leg. It is getting worse and worse. My leg is trying to jump all over the place. I am litterally sitting here with my other leg crossed over my left left to keep it still. It is crazy that I don't want my family to see what is going on. I would rather hide it than for them to say something about it.

They do know when I am in pain because that is hard to hide when the pain gets to be too much, but I feel like if I let them see what is going on with me that they will think less of me. I know that is crazy but thats my thoughts. They have to see some of it because when I need to get up and I can't walk normal they see it but now they don't say much and my dh just makes sure I don't fall lol I am a clumsy lug sometimes and cant look down or bend down because I will fall over.

This twitching and vibrations are driving me nuts though, I must admit that it is the most irritating thing I have had to deal with so far. I have had vibrations before and they are doable this time they are worse and the twitiching is getting out of control. All I want to do is sleep but I have to get up at 3:45am to go to work, come home and sleep, make dinner and sleep again.

sorry I am rambling on lol....but thanks for listening

Paula

[diehl555]

Hi, Ive had vibrating all over, when I told my dr he look at me? so now I don't tell him the things he didn't get in med school? I'm not on any meds, so I'm going to a ms dr next week, I think its time, I have Ben in the big ''D'' for to long, now the hot weather hit I'm really felling the effects of this, I just noticed something that I have not notice before I got out of the shower and I could see like I had my glasses on but I didn't have them on? well I put them on and guess what? I see the same with them on. no I know that my vision cant be creacted with glasses, I just hope they wont get any worse? and they hurt when I move them. I know don't move them. will that's ON I hope they have something for that and its not a white kine?

[HVAC]

Sound like the pits.

Alex

[figuerpa]

Carol,

Thank you for the prayers. I have been in contact with my doctor, we will see what he decides after this steroid treatment. I know that I shouldn't hide it, and I also know that they wouldn't think less of me, it is just my own mentality. I don't like to feel helpless and when I am bad I do feel helpless and that bothers me.

I will keep you posted on what is going on, hoping this works !!!

Jensequitur,

The are twitches, been having more spasms, but I am horrible with taking medicine and my doctor knows I don't like to take it. If I ask for it he will give it to me but I rarely ask for it. I was taking tons of meds then my liver enzymes went through the roof so I just stopped. I do take lyrica, it is the only thing that keeps the nerve pain and burning at bay, took neurontin before but too bad of side effects so now it is lyrica.

I have talked to my doc and am starting a prednisone treatment. he asked if I wanted prendisone or IVSM and I chose the prednisone because if that works then why go through the IV if I don't need to. He said if the prednisone doesn't work we will do the IV but hoping this works.

Paula

[jensequitur]

That sounds awful.  Are they twitches or spasms?  Baclofen will help with the spasms, but you'll need something else for the twitching.  Maybe gabapentin or Keppra would help.  Have you talked to your doc?

[grannyhotwheels]

Hi Paula,

So sorry you are having this trouble... My legs will jerk and twitch also and I take Baclofen for them... It really helps me a lot... It quiets them down and eases the pain from my muscles getting so tight... If your not already taking something I would suggest talking to your doctor about it...

Another thing is please never think that others will think less of you if you show your symptoms... You cannot help it and having their support would help you a lot... Your family loves you and I'm sure they would love to help but by hiding it from them probably makes them feel uncomfortable because they can tell you are trying to hide it from them...

I hope that makes sense to you cause it doesn't to me...hahaha... Seems like I have a hard time typing what I'm actually thinking... It never seems to come out right...Oh well, hopefully you get it... Please keep us posted on how your doing and also talk to your doctor, he can help...

I'll be praying,
Carol