miagrains in ms

[nanadee]

Has anyone else had problems with miagrains with their MS. Just within the last 6 months I've been experiencing miagrains, told they were Tension Miagrains. Is this common?? Anyone else having these?? Any help would be appreciateed!

[nanadee]

My neuro has me on now But/ASA/CAFF. This seems to help, after we have tried several others. I also have some vision problems with mine, but mine can go from one side to the other. Neuro says this from all the leasions I have ,so..... But am just trying to go with the flow and keep going. Thank you for your input, it feels good to talk to others who have some of the same problems I do. Makes me feel less isolated.
Donnice

[TonkaSpirit]

I also suffer from migraines, and sometimes they are the kind with aura, meaning I can't see out the right hand side vision (that is the area it always effects me).  I usually only have the aura migraines when I am under stress.  My neuro prescribed me nortriptyline, it is actually a anti-depressant, however many doctors prescribe it for migraines, pain, and sleep difficulties. All which it seems to help me with, although I still have issues with sleep. Maybe you could ask your doctor about it?  I hope you feel better soon, Terrie

[nanadee]

Thanks for all the imput!! I thought I had read somewhere recently that they had connected MS & miigraines, but have yet to remember where?? MS moment! Of course I get tierd of Everything being my MS also. I can go maybe 4 days if I'm lucky without one & it really affects me for a couple days after.
I deal with Rematoid Arthritis on top of all this which makes my life a living h--- !!  
De-stress is what ALL my drs say, that's a big laugh. How do you destress if you live in this day & time .

[needanswers54]

I have had for years.  They kept me from further pursuing medical school after offered excellent recommendations by top doctor in the school.  I now have them almost every day of the week.  They have grossly affected my enjoyment of life and the fulfillment of my dreams.  I have tried to learn to just accept them.  

This week was very hard.  Just saw a new neuro yesterday to try and get a thoracic MRI and eye testing done.  Said he had little to offer me for my migraines that I have not tried.  At end of visit he asked if I brought any MRIs.  He asked why I had them done.  I told him I hurt myself at work and that while checking my arthritis and herniated disk(s) that demyelination was seen.

He asked me where I had received my degree.  He sounded shocked.  He asked about my education.  I told him about not pursuing medical school because of my migraines.  He said, "Lucky you, you didn't put yourself through all that #*^#".  He then told me that I knew too much for my own good and walked out of the room.  He made no discussion of the MRIs or anything.  He never came back into the room.  

Was he saying I was somaticizing, or did he not wish to discuss the MRIs with me?  He did not even discuss the arthritis or anything.  HE ASKED ME THE QUESTIONS.  I DID NOT EVEN MENTION THE MRIs TO HIM.  I was diagnosed last month with MS by a competent neurologist.  The neurorad at the hospital told me that something was definitely abnormally going on...Probably atypical MS with possibly TM and/or ADEM, etc.  Several doctors told me probably MS before the last set of films.  However, I do not have hyperreflexes--at least not anymore.  My new primary asked me to go to him to get more tests ordered.  This neuro did not discuss doing any testing on me.

When I walked out I asked for my results and films that I brought with me.  I asked his assistant (his wife) if he thought anything about my films.  She said you do not fit the clinical picture for MS.  I WILL NOT BE GOING BACK TO HIM.  It seems he should have discussed them with me, wouldn't you think?

Back to your question.  Another neuro told me that you get migraines with lupus and not MS.  Well, I just read last night that it is now believed that migraines is how MS presents itself in some people.  And, sometime back I saw a website doctor that stated over half her MS patients have migraines.  So, I wonder what is actually correct.  Perhaps, it is an overlap of various diseases or dependent upon the type of MS.  I do not know.  Wish someone could give us more advice on this.  

Thanks for the good question.  Have a Happy Thanksgiving (without any headaches)!  Take care and LOL....

[karzme]

Since I've been diagnosed, I've been having more headaches then normal. I've always got stress headaches easily, but I don't think that's what they are. It could be caused by the lesions on the brain. Just a guess though. Mine don't seem to go away for long, if they do. Very frustrating. Just deal with them as best as you can. Try and stress yourself, as little as possible, if can. That's my input.      Karina

[mae1]

I dont experience this myself but I have a client with ms for the 14 years now and miagrains has always been one of her worst symptoms.
april