ms diagnosis

[rodger308]

At 18 I had optical neurosis in both eyes and was told it was probably MS. I am now 48 and over the years have experienced numbness weakness and chronic fatigue. I have just had the results of an MRI scan that was done a week ago showing a 4th legion on my brain and deteriation of a syrinx between the 5th and sixth disc. Today I was told that it is not MS after being a probable for many years and had physio etc. I have had all the tests over the years showing abnormality with evoce potentials. I am stunned and wonder how you can go from probable to not after the progression of a 4th legion. I was told today that the legions are not in the place where you would expect. Do they have to be in a specific place? I would understand but not told before. Very hard to get another app for these questions. The numbness is now attributed to the syrinx but no explanation for the fatigue.

[Sunnytoday]

Hi there! Fist off, I would like to welcome you to the forum. Please take time to read our wonderful Health Pages, the link is located at the top right hand corner of the forum and the threads. These Health pages may help answers some of your questions.

I of course can't say if you do have MS or not, but if you do have the postive MRI's, the postive evoked potentials and the other symptoms leading toward it is does appear that they should be diagnosing you with something... please make sure that you have seen a good neurologist and if possible, a MS specialist.

Folks here on the MS forum have been diagnosed with less than you have, while others have many more lesions, and postive tests and are still waiting. I personally have a positive spinal tap, lesions or patchy areas in my brain stem and a nice list of symptoms but no diagnosis yet. Just hang in there, and don't give up...and we will be here to help you prepare for your doctors visits, and just be a support group if you need one.

Have a wonderful day!
~Sunnytoday~

[Amyloo]

Hi and welcome.  I am bumping this up as the forum seems to move fast this a.m.  My advice/opinion would be to see an MS specialist if possible; I see you are from New Zealand so I don't know of your health care system.  Others will be along to help you a little more.  God bless you, Amy