optic neuritis question

[mikeysmom1995]

Hello everbody!
I went to my opthamologist for a long overdo eye appointment who proceeded to tell me that I did not have optic neuritis. Needless to say I was a bit shocked as this was part of my dx.How I was diagnosed was I woke up one day with double vision, eye pain, and my whole right side was numb and I had tingling in the right side of my face.

Went to GP and after office exam she immediately sent me for brain MRI. The MRI showed  old and new enhancing lesions both in my brain and enhancing lesions on both right and left optic nerve. The radiologist said they were demyelinating lesions consistent with MS.

Then referred to neurologist who did exam and ordered cervical spine MRI which also showed a lesion. Back to neurologist after 3 day course of solumedrol who confirmed my MS diagnosis.
THE neurologist asked if I had ever experienced any of these symptoms of numbness or tingling or eye issues. When I was 18 I had my first symptoms of whole right side numbness and tingling. My GP thought I could of had a stroke so I went for a brain scan where they injected dye and watch it go thru my brain. The test came back negative for stroke and said I was showing signs of exhaustion due to my college and work schedule (fatigue). I slept for days after that and my symptoms resolved.
Fast forward MANY years and odd symptoms here and there. BAck issues, Right foot numbness, bowel issues,bladder issues,heat intolerance.
Prior to my dx I had been doctoring with my opthamologist be cause I would wake up and one of my eyes would be red on the outside. Not itchy or draining just sore and lots of pressure. He never did figure it out but the only thing that would help it was steroid eye drops.
So my opthamologist is saying my neurologist was wrong to make an optic neuritis dx as my symptoms were not consistent with the dx.  I told him I met the criteria for MS dx and he said that he doesn't even know what that is but he was sure I didn't have optic neuritis.
What do you guys think? I'm not even sure what to do now!!!!!!
Thanks for reading my long post.
Best Regards, barb

[mikeysmom1995]

Hi Barb,
I'm glad that your vision issue is better. For me the numbness and tingling  I could deal with, not pleasant, more annoying. But having your vision distorted was probably the worst thing ever and scared the baJesus out of me. I think because it affects everything you do and I was so worried it was going to stay permanently.
I still have some blurry issues and pain  but not on a regular basis.
Thanks so much for your concern and well wishes.
Darn spell check on my last post.
I meant HUGS back at you!!!!!!!
Warm regards, barb

[Tsearcy]

At the time of my optic neuritis, my opthamologist was not very bright. He actually had no idea what to do and never said I had it. My next door neighbor was an neurologist who I went and talked to. He had me fast track into hospital and started IV steroids within 2 hours. Eye doc never acted concerned, so I changed to another dr. in office. She is wonderful and acknowledges that it was and the scaring it has left now in my eye. So I don't know why, but they are not all informed on this topic. Should be, but search for a good quality opthamologist. They should see what was left behind - dr's who look into my eyes (with their light) all say something about it.