I'd like to know what type of triggers people have before a flare-up or exacerbation happens. I thought my only trigger was heat, but now I have a flare-up, and it has not been hot out at all. I'm trying to figure out what other triggers I might be having -- so that perhaps I can avoid them in the future.
Heat and humidity.is my kryponite more so the humidity. Stress also triggers mine somewhat. The worst was this weekend. I got very over heated for about 4 straight hours friday night. The heat index in the press box was over 100. Got sick and have had all my old symptoms and some new ones come on since. Woke up today with no feeling in left foot. Also have numbnes and pain all over body along with my newest one internal shaking. Already called in sick Monday and going to call my neuro first thing in the morning.
My cousin's daughter killed in car smash (I am close to that cousin)
Same cousin's mother died 3 days later
Same cousin's sister (my other cousin) diagnosed with bowel cancer.
(I was playing shoulder for all of the above)
Moved again 14 weeks later
Moved again 8 weeks later
For me the big episodes have always been after a viral infection, months to recover to a managable base line but this year i've not got back before the little episodes, knock me off my perch again.
The UTI's, even stress from my son who's not taking his mum's decline as well as one would hope, his hitting out at me when he feels bad is taking a toll and for me its a guilt loaded stressor. But to me they dont set off a the big bangs, resolve the catalyst and its an up ward climb again.
Fatigue, heat and over doing it, all require rest and recovery, in my mind they are not catalysts but intertwined with in the condition (still in limbo) in fact they are to me what make each day a living hell, take them out and i'd be dancing in the wind, well not quite but at least id feel like i could lol
I don't think I can add much to this, these are all good answers. I was just wondering if your period can really cause a psuedo exacerbation? That is very interesting and maybe my fatigue during that time of the month is more extreme because of my period??????
Yeah, apparently the hormonal changes can do that. happy days, gotta love being a woman!
There was a whole section abot that in my info I have here from MS Australia, but of course I cannot find it now I want to copy it for you...
though I found this:
# Female MS patients may have exacerbations right before their monthly periods, when hormones are in flux, according to the National Multiple Sclerosis Society. Researchers have found that MS symptoms such as weakness, fatigue and coordination problems may increase in severity at that time of month. In addition, the decrease in estrogen levels in postmenopausal women may exacerbate symptoms.
Read more: The Causes of MS Exacerbations | eHow.com http://www.ehow.com/list_6870534_causes-ms-exacerbations.html#ixzz0zPGxhev4
Oh, isn't that grand? Even after menopause we may get no rest.....on that note, I'm going to bed!
That reminds me, my periods rank up the fatigue too, mine last 3-4 days heavy and spotting for 2-3 days. I use to be tierd, now i'm flat like a pancake but still not as bad as the fatigue will get during an episode or those endless days of summer heat, again something that improves once the periods have finished but they have never stet off the big bangs.
As far as I can tell, I get a pseudo-flare right before my period - but not a real one. It doesn't last longer than a day, and it's always old stuff.
Physical trauma - well, I had a bad spider bite (brown recluse) which took forever to heal up. Right after it healed I started having MS symptoms. Not sure whether it set off the first flare, but I think it was related.
Very interesting about the link between hormonal changes right before periods and MS. My epilepsy is also exacerbated right before my period -- in fact, that is the only time I ever have auras or seizures. So perhaps that might be an MS trigger for me also.
STRESS......, multiple bereavements, husband being posted to Afghanistan, being dx'd with multiple sclerosis, car crash, falling over a forkllift truck and tearing ankle ligaments, illness eg measles, shingles and others.
That is just for starters..I am sure that other things will come to mind but I can usually sense when I am going downhill as everything starts to become an almighty effort.
I haven't been diagnosed with MS yet & hope you don't mind me responding. High temps & humidity absolutely drain me to the point that I feel like my whole body is aching & I don't have enough energy to walk! Real cold does the same but heat seems worse. Certain smells like smoke & perfume also make me sick! I have to take Benedryl daily or I break out in huge patches of hives!
Jen brought up an important one, the pseudo-relapse surrounding the menstrual period. Very common for old symptoms to become worse just before the period. Well-documented. The symptoms seem to subside back to baseline with the resolution of the cycle, so this would be a pseudo-event rather than a true relapse.
High temps definitely drain me -- and if I'm not careful, I'll fall asleep while driving. I'm glad summer is over, and I'm hoping the cold doesn't cause me problems like it does for some. Michigan weather has always been flaky, but in recent years it seems like it has been more to the extremes (hotter summers and colder winters than usual). Hopefully it will be a mild winter.
My whole life, I've been an inside person -- which might explain my serious Vit D deficiency of course =) So regardless of the extremes, I always keep my house temp even year round. I don't skip on climate control in my house that's for sure!
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