LLWB

[uk2]

Hi

You posted on crysly question about the EMG, iv got a EMG,NCS and LP and i am a scared a little as iv been worried what i have is fibro and as i hurt so much in flares and out of them that this test will hurt as i feel more sensitive to things even clothes and the cold can set my nerve pain off!!

Couls they find out if i have fibro from the EMG? iv been under the neuro since may this year and been having bad flares since May this year and been off work. Can my neuro Dx fibro? and can you have fibro and MS?

sorry alot of questions but not met anyone else on here with fibro, iv been on another site about fibro and my sx seem simular except the extreme nerve pain i get!!  

Be gratefull on your advise.

Samantha

[uk2]

The question about the US being better then the NHS at the moment as it stands id say yes?
With the US treatrment you get to see your records you seem to have direct link with your neuros we cant do that hear only in a emergency can we talk to them. When i went back to collect my results for my MRI i didnt even see the wrttian results just took his word for it, there are in my area huge waiting list for MRI because they is only one that covers lots of areas 12 weeks is the wait i have another one in Nov, so with US its more personal and quick but proberly not more informed then you are over there. whats a ENT? im having a EMG and NCS which i believe one is for muscles one is for nerves. Ill try and not be scared its the LP as iv had failed spinal blocks in the past and them taking ages to get it in but i know this is different and i do need answers iv been unable to work for 5 months now. Since the cold has come and its not that cold here really the flares seem worse yet also the heat of baths and weather used to make my legs weak!! so you cant win.
I too have put a stone and a half on since iv been on lyrica, i find that hard.

[LLWB]

Your neuro can diagnosis fibro. Mine did recognize that I had it. He did a complete EMG and ENT. They are not used primarily to diagnosis fibro as crystaly stated, but they certainly can be one of the tools used. He found impinged nerves, cervical and spinal, carpal tunnel syndrom and as I stated the fibro. He did say it was hard to differentiat how much of my pain was due to the fibro, and how much was due to the disc pressing on my spinal cord. My nerve reaction time was slowed in any case. I'm sure that you can have both fibro and MS. And that's how I've ended up on this forum. I've learned so much here, it is the best forum I have found. I've been diagnosed with the fibro for so many years, but I've never had brain MRI's, that I've begun to wonder if I've been mis-diagnosed. My symptoms seem to be worsening lately, affecting my legs, so much that by the time I get home from work I can hardly walk, and they are painful. And recently I've developed what I call restless arm syndrom, which is new in the past few months.  Lyrica helped a lot for my nerve pain, but I had to quit taking it as I gained too much weight on it, and I'm also type2 diabetic and need to lose not gain. Also degenerative osteo-arthritis, and now developing cardiac problems. Otherwords, I'm a mess. LOL, My PCP keeps talking about referring me to a rheumatologist, but nearest one 220 miles away, which would mean taking off from work, but may end up having to do that.  Fibro is painful, and the "fog" very upsetting, but it is not a degenerative disease as MS is. I hope you are getting some pain relief.Going out this weekend.  Good luck.Just out of couriosity, do you think NHS is better that US medical care?.thanks for sharing, hope I helped you some...Don't be afraid of tests, they did hurt me, but not badly enought to put them off.

[crystaly]

try this
http://www.arc.org.uk/arthinfo/patpubs/6013/6013.asp

[crystaly]

Hi sam I know you didnt post this to me but as far as I know there is no test which tells you you have fibro other than n 18 point tender scale Chris xx