Aa
I hate how alot of the Neourologist's
(sorry for my bad english) say that there is nothing wrong with you or they say
to your face that you are lieing about having headaches, im not even making that up, i seen a neourologist and he told me point blank to my face that i was lieing about having headaches, and that i was just there to get painkillers (which is not true at all)
I swear about 85% of those brain docs think people are lieing to them and like to call people liars.
Any who, i go to my ENT (he is a real nice guy, been going to his office for ear problems for several years now) and i was telling him about how the one doctor thought i was lieing and he said well lets do a MRI & CAT scan, and turns out that i had 3-cysts in my head, got them removed in Detroit hospital and BOOM fixed my frequent migraine problem, tested the cysts and they were non cancerous.
Cool huh? yes indeed and my neourologist said i was lying, hate how most of them always assume someone is lying.
(sorry for my bad english) say that there is nothing wrong with you or they say
to your face that you are lieing about having headaches, im not even making that up, i seen a neourologist and he told me point blank to my face that i was lieing about having headaches, and that i was just there to get painkillers (which is not true at all)
I swear about 85% of those brain docs think people are lieing to them and like to call people liars.
Any who, i go to my ENT (he is a real nice guy, been going to his office for ear problems for several years now) and i was telling him about how the one doctor thought i was lieing and he said well lets do a MRI & CAT scan, and turns out that i had 3-cysts in my head, got them removed in Detroit hospital and BOOM fixed my frequent migraine problem, tested the cysts and they were non cancerous.
Cool huh? yes indeed and my neourologist said i was lying, hate how most of them always assume someone is lying.
A related discussion, seeing blue light while eyes closed at bedtime while trying to sleep was started.
A related discussion, Any new, effective treatments for persistent migraine aura without headaches was started.
I have been experincing auras for the past year. Sometimes I will go a couple of months without one and then they start . I have as many as 8-10 daily for about a week then they stop.
Sometime the auras bring on a headache sometimes they don't .
I have taken as many as 20 Imatrex in a weeks time. They stop the headaches but at $23.00 a pill it sure is rough on the pocketbook.
I have gone through all kinds of tests and they are normal. Over the past 6 months my Neurologist has prescribed Verapamil and has slowly increased it to 360 mg. The last increase was about two weeks ago and I continue to have the auras.
I know that many of you that read this have the same problem and I really feel for you.
My auras seems to be getting more intense. When my aura starts I can only see half of objects, like half of a persons face, half of a television screen. Then the flashing lights and waves start. Sometime I have a tingling in my left arm sometimes I don't. ( Have had heart test done also, they are normal).
Say a prayer that a cure for this will be found.
Sometime the auras bring on a headache sometimes they don't .
I have taken as many as 20 Imatrex in a weeks time. They stop the headaches but at $23.00 a pill it sure is rough on the pocketbook.
I have gone through all kinds of tests and they are normal. Over the past 6 months my Neurologist has prescribed Verapamil and has slowly increased it to 360 mg. The last increase was about two weeks ago and I continue to have the auras.
I know that many of you that read this have the same problem and I really feel for you.
My auras seems to be getting more intense. When my aura starts I can only see half of objects, like half of a persons face, half of a television screen. Then the flashing lights and waves start. Sometime I have a tingling in my left arm sometimes I don't. ( Have had heart test done also, they are normal).
Say a prayer that a cure for this will be found.
I have been experincing auras for the past year. Sometimes I will go a couple of months without one and then they start . I have as many as 8-10 daily for about a week then they stop.
Sometime the auras bring on a headache sometimes they don't .
I have taken as many as 20 Imatrex in a weeks time. They stop the headaches but at $23.00 a pill it sure is rough on the pocketbook.
I have gone through all kinds of tests and they are normal. Over the past 6 months my Neurologist has prescribed Verapamil and has slowly increased it to 360 mg. The last increase was about two weeks ago and I continue to have the auras.
I know that many of you that read this have the same problem and I really feel for you.
My auras seems to be getting more intense. When my aura starts I can only see half of objects, like half of a persons face, half of a television screen. Then the flashing lights and waves start. Sometime I have a tingling in my left arm sometimes I don't. ( Have had heart test done also, they are normal).
Say a prayer that a cure for this will be found.
Sometime the auras bring on a headache sometimes they don't .
I have taken as many as 20 Imatrex in a weeks time. They stop the headaches but at $23.00 a pill it sure is rough on the pocketbook.
I have gone through all kinds of tests and they are normal. Over the past 6 months my Neurologist has prescribed Verapamil and has slowly increased it to 360 mg. The last increase was about two weeks ago and I continue to have the auras.
I know that many of you that read this have the same problem and I really feel for you.
My auras seems to be getting more intense. When my aura starts I can only see half of objects, like half of a persons face, half of a television screen. Then the flashing lights and waves start. Sometime I have a tingling in my left arm sometimes I don't. ( Have had heart test done also, they are normal).
Say a prayer that a cure for this will be found.
Hello, I recently received a shunt for hydrocephalus, but since the surgery have been experiencing significant pain at the top of my neck, as well as horrible ringing in my ears and eye floaters. Does anyone have any clue what this could be? Thanks
I AM A 49 YEAR OLD MENOPAUSAL LADY AND I AM BEING DRIVEN MAD WITH
EYESIGHT DISORDER.I GET SWIRLING AND WAVES OF WHAT APPEARS TO BE A COLOURED LIQUID AND I HAVE ALMOST TUNNEL VISION WHEN IT EFFECTS BOTH EYES AT THE SAME TIME. ALSO I GET GREY SPOTS WHICH PREVENTS ME USING THE COMPUTER AT WORK. MY MAIN CONCERN IS IF THIS HAPPENS WHILE I AM DRIVING AND I COULD KILL SOMEONE.ALSO I MAY HAVE TO GIVE UP WORK. HAD ALL TESTS AND WAS TOLD IT IS PAIN FREE MIGRAINE. BUT WHAT CAUSES
IT???????
EYESIGHT DISORDER.I GET SWIRLING AND WAVES OF WHAT APPEARS TO BE A COLOURED LIQUID AND I HAVE ALMOST TUNNEL VISION WHEN IT EFFECTS BOTH EYES AT THE SAME TIME. ALSO I GET GREY SPOTS WHICH PREVENTS ME USING THE COMPUTER AT WORK. MY MAIN CONCERN IS IF THIS HAPPENS WHILE I AM DRIVING AND I COULD KILL SOMEONE.ALSO I MAY HAVE TO GIVE UP WORK. HAD ALL TESTS AND WAS TOLD IT IS PAIN FREE MIGRAINE. BUT WHAT CAUSES
IT???????
Hi,
I have been searching this site to see if I can find out what is happening to me. This forum is as close as I find. The history: Diagnosed with 'probable, but not conclusive' MS about 10 years ago. Had an MRI which showed two lesions. Refused a lumbar puncture out of fear, but added to that was a Neuro with the bedside manner of a mad dog. Had snowy-like vision accompanied by very minor blurriness, and it seemed like something was in my line of vision, but nothing could be found. Went to an Opthamologist who told me I was nuts and came just short of laughing at me. My GP sent me to a Neuro-Opthamologist who said it was optic neuritis. Because more than a month had passed since onset, no steroids were prescribed. This left a very, very small area of decreased field vision that I hardly notice. Also, once in a while, I would get a half-circle of bright light that would get bigger and bigger until it was no longer seen. This, I was told, was an optical migraine. There is never any pain with this. Lately (about 4 weeks or so) I have this constant (maybe every 60 seconds) flashing going on in what I *think* is my right eye. It lasts a split second and resembles an ink spot. If my eye is closed, it is a bright light, if my eye is open, it seems to be a dark spot. Again, no headache or pain. Other than annoying and frustrating, it is not causing problems, but I am still worried. Had an eye exam about 3 weeks ago, mentioned this him and was told it was 'tugging' and not to worry about it. Any ideas? Thanks so much for your thoughts.
I have been searching this site to see if I can find out what is happening to me. This forum is as close as I find. The history: Diagnosed with 'probable, but not conclusive' MS about 10 years ago. Had an MRI which showed two lesions. Refused a lumbar puncture out of fear, but added to that was a Neuro with the bedside manner of a mad dog. Had snowy-like vision accompanied by very minor blurriness, and it seemed like something was in my line of vision, but nothing could be found. Went to an Opthamologist who told me I was nuts and came just short of laughing at me. My GP sent me to a Neuro-Opthamologist who said it was optic neuritis. Because more than a month had passed since onset, no steroids were prescribed. This left a very, very small area of decreased field vision that I hardly notice. Also, once in a while, I would get a half-circle of bright light that would get bigger and bigger until it was no longer seen. This, I was told, was an optical migraine. There is never any pain with this. Lately (about 4 weeks or so) I have this constant (maybe every 60 seconds) flashing going on in what I *think* is my right eye. It lasts a split second and resembles an ink spot. If my eye is closed, it is a bright light, if my eye is open, it seems to be a dark spot. Again, no headache or pain. Other than annoying and frustrating, it is not causing problems, but I am still worried. Had an eye exam about 3 weeks ago, mentioned this him and was told it was 'tugging' and not to worry about it. Any ideas? Thanks so much for your thoughts.
HELLO ALL-FINALLY I FIND PEOPLE LIKE ME! HERE IN WALES UK I CAN
FIND NEXT TO NOTHING ABOUT THIS SUBJECT. I HAVE BEEN SUFFERING BADLY FROM THESE EPISODES FOR 2 YEARS, AS MUCH AS 3,4,5, TIMES A WEEK AND LASTING AT ITS WORST FOR HOURS ON END.24\7 MY EYES AND HEAD ARE DODGY BUT SUDDEN BLASTS OF LIGHT IN THE SHAPE OF A DOUGHNUT GROWS IN MY FIELD OF VISION UNTIL IT COMPLETELY COVERS IT, THIS 'RING' SPARKLES AND PULSATES AND CAN BE ACCOMPANIED BY FEROCIOUS HEADACHES.HAD ALL THE SCANS ETC BUT AM TOLD I MUST LIVE WITH IT.I CAN NO LONGER WORK OR DRIVE AND AM TAKING ANTI-DEPRESSANTS,PAINKILLERS,SLEEPING PILLS.THE DOCTORS HERE CALLED THIS 'OCCIPITAL VISUAL CORTEX SYNDROME' THAT
RESULTS IN A VISUAL MIGRAINE AND IS CAUSED BY A COMBINATION OF
BLOODFLOW AND THE LEAKAGE OF 'VISION ASSOCIATED CHEMICALS' PASSING THROUGH THE BRAIN.I THINK THIS IS A EUPHAMISM FOR 'WE DON'T REALLY KNOW! I HAVE BEEN ADVISED THAT THERE IS NOTHING THAT CAN BE DONE FOR ME (HENCE THE DEPRESSION).THIS IS COMPOUNDED BY THE FACT THAT MY HOBBIES WERE DRAWING\PAINTING AND ASTRONOMY-MY TELESCOPE IS NOW THE MOST EXPENSIVE ORNAMENT IN THE HOUSE!
BEST WISHES TO YOU ALL-IF ANYONE KNOWS ANY DIFFERENT TO UK DOCTORS PLEASE LET ME KNOW.
RED DRAGON
FIND NEXT TO NOTHING ABOUT THIS SUBJECT. I HAVE BEEN SUFFERING BADLY FROM THESE EPISODES FOR 2 YEARS, AS MUCH AS 3,4,5, TIMES A WEEK AND LASTING AT ITS WORST FOR HOURS ON END.24\7 MY EYES AND HEAD ARE DODGY BUT SUDDEN BLASTS OF LIGHT IN THE SHAPE OF A DOUGHNUT GROWS IN MY FIELD OF VISION UNTIL IT COMPLETELY COVERS IT, THIS 'RING' SPARKLES AND PULSATES AND CAN BE ACCOMPANIED BY FEROCIOUS HEADACHES.HAD ALL THE SCANS ETC BUT AM TOLD I MUST LIVE WITH IT.I CAN NO LONGER WORK OR DRIVE AND AM TAKING ANTI-DEPRESSANTS,PAINKILLERS,SLEEPING PILLS.THE DOCTORS HERE CALLED THIS 'OCCIPITAL VISUAL CORTEX SYNDROME' THAT
RESULTS IN A VISUAL MIGRAINE AND IS CAUSED BY A COMBINATION OF
BLOODFLOW AND THE LEAKAGE OF 'VISION ASSOCIATED CHEMICALS' PASSING THROUGH THE BRAIN.I THINK THIS IS A EUPHAMISM FOR 'WE DON'T REALLY KNOW! I HAVE BEEN ADVISED THAT THERE IS NOTHING THAT CAN BE DONE FOR ME (HENCE THE DEPRESSION).THIS IS COMPOUNDED BY THE FACT THAT MY HOBBIES WERE DRAWING\PAINTING AND ASTRONOMY-MY TELESCOPE IS NOW THE MOST EXPENSIVE ORNAMENT IN THE HOUSE!
BEST WISHES TO YOU ALL-IF ANYONE KNOWS ANY DIFFERENT TO UK DOCTORS PLEASE LET ME KNOW.
RED DRAGON
Hello All
I have experienced constant 24/7 visual disturbances since the
age of sixteen, I am now forty one. I have a constant
shimmer in my field of vision as well as "Halos" around
objects and flashing lights in the periphery. I also experience
severe motion sensitivity with occasional vertigo and nausea.
I did experience migraine as a child but the headaches stopped
at age twelve or thirteen. at age sixteen I complained of the
visual disturbances and movement and did see a neurologist
who promptly told me that there was nothing wrong with me
and I probably was doing this for attention. I was an Honor
Roll student who was now unable to read correctly and was
having a difficult time remembering text. I am now being
treated for migraine related vertigo. Unfortunately none of
the drugs appear to be helpful. If anyone has had a positive
response from meds. I would like to hear from them. I can be e-mailed directly at ***@**** Thank you !!!
Hi, I am now 30, but when i was 14 I was unfortunately trying marijuana for like the third time and instantly, with a popping sound, my head started to buzz and my sight was changed forever. To this day i still have the ringing in my ears (told by doc that it is tinnitis) and the snow or tv static vision and other strange waviness, in my full field of vision, both eyes, constantly 24/7, this has been going on for 16 yrs. Being that I was so young when this occurred I just was scared and didnt say anything to anyone. I have always assumed that the worst was happening to me, like brain tumor or weakened blood vessel. It is only within the last 2 years that I have become very curious as to why i see and hear this way. I really thought that once i told a doctor of my weird symptoms he was going to give me an MRI and they would find the reason, that is not the case. No one wants to run tests. Ear doc says tinnitis, family doc says ocular migraine, eye doc says possibly something circulatory. I asked a Harvard doc online and this is what he said
Some people call the visual disturbance "photons", but usually no cause is
found and it is benign - that is if the ophthalmologist passes the retina as
normal.Migraine is episodic , not continuous.
Anyway, I thought i was alone in this. I knew though that someone out there must be experiencing the same thing i was. It was a relief. It would have been a miracle though if there was a solution. It would be soooo wonderful to finally see normal again and to hear without this ringing again.
Dr. Who, do you happen to have ear ringing too? How did your tv static eye start, gradual or instantly? Once in a while ill experience tingling in hands and feet too, sometimes dizzyness, tired alot. Otherwise, I am very functional and these symptoms dont hinder my life, just a major nusance. Im just worried that as i get older they may get worse, i couldnt deal with that.
Anyone who would like to email me on this strange visual disturbance please do, ***@****
Alyssa
Some people call the visual disturbance "photons", but usually no cause is
found and it is benign - that is if the ophthalmologist passes the retina as
normal.Migraine is episodic , not continuous.
Anyway, I thought i was alone in this. I knew though that someone out there must be experiencing the same thing i was. It was a relief. It would have been a miracle though if there was a solution. It would be soooo wonderful to finally see normal again and to hear without this ringing again.
Dr. Who, do you happen to have ear ringing too? How did your tv static eye start, gradual or instantly? Once in a while ill experience tingling in hands and feet too, sometimes dizzyness, tired alot. Otherwise, I am very functional and these symptoms dont hinder my life, just a major nusance. Im just worried that as i get older they may get worse, i couldnt deal with that.
Anyone who would like to email me on this strange visual disturbance please do, ***@****
Alyssa
Well...seems we've established that quite a few of us suffer from a lot of the same symptoms. Also seems that all these Doctors can diagnose such things and give it a name...what I want to know is what is the cause?? All the testing, all the drugs that have been prescribed......they treat the sympotms. What is the cause of this?? I'm not satisfied with what my Neuro told me. Sure, he gave it a fancy medical name, but WHY do I have it? What causes such things...could it be that it's a deficiency...a food allergy...etc. We can settle for taking pills, IV's or whatever!!! But still, the symptoms will continue until someone tells us what it is that makes us this way. My Neuro gave me Inderal to take..I'm completely terrified to take one pill. I just can't. Mentally, I'm so afraid, that I haven't taken one! Even after precribing this, he tells me that if this doesn't work, we'll move onto another drug. NOPE! Not for me. I want to know why I have this, and I want to get to the root of it. Not just treat the symptoms temporarily and suffer from side effects that make me feel even worse. I'm so very frustrated with the whole thing as I'm sure a lot of you are. It's hard for loved ones to understand what it's like to live with this, it's emotionally draining on my husband..constantly trying to understand and come up with sympothy and compassion when it's the same thing day after day. I just want answers...not drugs, not fancy medical names, I want relief and my sight back. Maybe that's asking too much?? Sorry for venting...but if anyone will understand, it just might be some of you. :o)
God Bless,
MzDeen
God Bless,
MzDeen
Amazing.. finally others with the "light shows". I had 2 migrains as a child, then never another one. I'm 46 now and about 3 years ago I started having these periodic "migrain auras" but with no following headache.
MRI showed nothing... was checked for Arnold Chiari as it is in my family.. nothing there either. So I was diagnosed with "Migraine Aura without Headache"... lol, thanks I already knew that.
I think it just helps to know that others have this too.. thanks.
MRI showed nothing... was checked for Arnold Chiari as it is in my family.. nothing there either. So I was diagnosed with "Migraine Aura without Headache"... lol, thanks I already knew that.
I think it just helps to know that others have this too.. thanks.
I completly sympathize with all of your migraine light shows. I have had other nuero symptoms such as novacaine in my tongue, and my face, and throat, and hard time swallowing. A few episodes, I couldnt even talk right, its called aphasia, I dont know who my kids are or my own name. They called it complicated migraines, but than I went to this web site and they called it TMA-TRANSIENT MIGRAINOUS they are closely related to a stroke. I am a mother of 4 children and I am 38 years old, and always very scared, it affects everything you do. I use to be very outgoing, and loved to be the life of the party. Since I turned 21, I have had this problem, I was at work when I first had one. My boss almost accused me of being on drugs. I never know when the light shows are going to go into a full blown episode, I have gone to the UM and they told me there was a chance of going into one of those and never coming out of it. I take a calcium channel blocker now , but I have to watch that cause I already have low blood pressure. The other problem you all might be facing is if you tell your spouse do they act like you are nuts, and you are just making things up? I hate that ! Some days when I say do you see that pattern jumping? or the light flickering? They can really make you feel like you are out there. I think that diet is helping somewhat by staying away from Sodium Nitrates, (hot dogs, lunch meats etc) and the MSG (soups and alot of boxed foods) and a low sodium diet, and choc and bannanas and high citrus foods. I have gone into nursing now and alot of it was my own personal experince with migraines made me want to try to keep learning for myself- sometimes you may not get a good specialist either. So you seem to have to be out for yourself as far as getting information on this. If anyone would like to chat further, please e-mail kinsey200249201.yahoo.com God Bless!
Thank you for your kind and informative answer =)
Lady
Lady
I get visual auras too and I never get a headache. I can not see when I am having one. I can only sit and close my eyes, but as you know, you can still see them circling and moving in patterns, making you feel stomich sick eventually. Sorry I have no solution. Be well Auddie
Dear; this is the end of migraine.
Please read about my new surgical treatment for migraine, cluster headaches.
My abstract entitled Migraine: new surgical treatment was accepted (# 173) in the last annual meeting of neurological surgeons in San Diego
Please read about my new surgical treatment for migraine, cluster headaches.
My abstract entitled Migraine: new surgical treatment was accepted (# 173) in the last annual meeting of neurological surgeons in San Diego
Sorry to hear about your symptoms. Glad that the extensive diagnostic workup has been relatively normal to date, especially the ophtho exams which would be important. Your symptoms could represent status migrainosus, which would require aggresive medical management to break the cycle if you're really having them 24/7. Meds we use here include IV steroids, IV DHE, IV depakote, and IV magnesium for starters. Some are done on an outpatient basis where you come into our headache clinic for treatment for a few hours and then go home the same day. Others require hospital admission. Talk to your doctors about these suggestions or consider seeing a headache specialist. If you are in the Cleveland area, Drs. Rozen, Stillman, Gretter, and Mays are all very good headache docs and would be happy to see you. Good luck.
I HAVE READ SEVERAL PEOPLE'S COMMENTS THAT CLOSELY DISCRIBE MY SYMPTOMS. NOW IT APPEA5RS THAT I HAVE SEVERAL EYE PROBLEMS. THE RIGHT EYE SUFFERS VISUAL SYMPTOMS OF TINY SPOTS OF LIGHT WHEN REFOCUSING AT THE CENTER OF VISION. THE AREA IMMEDIATELY GOES AWAY AND LEAVES A DOT OF GRAY WHICH OBSCURES CLEAR VISION.
I HAVE A HISTORY OF MIGRAINS THAT BEGAN IN MY EARLY TWENTIES AND GRADUALLY DECREASED AS I BECAME SIXTY. THE MIGRAINS NEVER INVOLVE HEADACHES ANY MORE BUT USED TO WITH TINGLNG FINGERTIPS AND MESSED UP SPEECH.
IN TOTAL DARKNESS, RAPID EYE MOVEMENTS CAUSE BRIGHT FLASHING AREAS APARENTLY IN THE RIGHT EYE. I HAVE INHERITED FUQUES SYNDROME.
ADDITIONAL PROBLEMS INCLUDE GLASSY HALF CIRCLES AT THE OPPOSITE EXTREAM OF EYE DIRECTIONAL MOVEMENT, RIGHT, LEFT, UP, DOWN. BLACK DOTS FOLLOW THE DIRECTION THE EYE MOVES AND ARE FOUND IN DIFFERENT AREAS EACH DAY. DURING THE PAST FEW WEEKS A MEMBRANE SEEMED TO COME LOOSE SOMEWHERE IN THE RIGHT EYE AND IS DRAPED ACROSS THE FLUID AREA AND ATTACHED TO A POINT AT THE UPPER RIGHT. WHERE IT IS ATTACHED I CAN AFFECT IT'S MOVEMENT BY SWITCHING THE EYE AND SEE A HAIRY COBWEB FLOATING EVERYWHERE.
SAW RETINAL EYE SURGEON WHO SENT ME FOR NECK ARTERY OBSERVATION FIRST (NORMAL) AND TO NEUROLOGIST WHO SAID I DON'T KNOW, MAYBE YOU HAD A BLOOD FLOW INTERUPTION. CALLING BACK TO THE RETINAL SPECIALIST HIS NURSE SAYS COME IN SOON.
SINCE THE EYE DOCTOR SEEMED TO BE SLOW ABOUT RECCOMEDING I AM CURIOUS ABOUT NEURO OPTHALMOLOGISTS IN NORTH CAROLINA, POSSIBLY AT DUKE U. I WANT THE BEST POSSIBLE CARE AS MY HEALTH INSURANCE IS GOING TO EXPIRE AT MY RETIREMANT AGE 65 NEXT DECEMBER.
CAN YOU RECCOMAND ANYONE DOWN HERE AND WOULD YOU SUGGEST LIFESTYLE OR DIETARY CHANGES TO HELP ANYTHING?
THANK YOU VERY MUCH!
FLAbound
I HAVE A HISTORY OF MIGRAINS THAT BEGAN IN MY EARLY TWENTIES AND GRADUALLY DECREASED AS I BECAME SIXTY. THE MIGRAINS NEVER INVOLVE HEADACHES ANY MORE BUT USED TO WITH TINGLNG FINGERTIPS AND MESSED UP SPEECH.
IN TOTAL DARKNESS, RAPID EYE MOVEMENTS CAUSE BRIGHT FLASHING AREAS APARENTLY IN THE RIGHT EYE. I HAVE INHERITED FUQUES SYNDROME.
ADDITIONAL PROBLEMS INCLUDE GLASSY HALF CIRCLES AT THE OPPOSITE EXTREAM OF EYE DIRECTIONAL MOVEMENT, RIGHT, LEFT, UP, DOWN. BLACK DOTS FOLLOW THE DIRECTION THE EYE MOVES AND ARE FOUND IN DIFFERENT AREAS EACH DAY. DURING THE PAST FEW WEEKS A MEMBRANE SEEMED TO COME LOOSE SOMEWHERE IN THE RIGHT EYE AND IS DRAPED ACROSS THE FLUID AREA AND ATTACHED TO A POINT AT THE UPPER RIGHT. WHERE IT IS ATTACHED I CAN AFFECT IT'S MOVEMENT BY SWITCHING THE EYE AND SEE A HAIRY COBWEB FLOATING EVERYWHERE.
SAW RETINAL EYE SURGEON WHO SENT ME FOR NECK ARTERY OBSERVATION FIRST (NORMAL) AND TO NEUROLOGIST WHO SAID I DON'T KNOW, MAYBE YOU HAD A BLOOD FLOW INTERUPTION. CALLING BACK TO THE RETINAL SPECIALIST HIS NURSE SAYS COME IN SOON.
SINCE THE EYE DOCTOR SEEMED TO BE SLOW ABOUT RECCOMEDING I AM CURIOUS ABOUT NEURO OPTHALMOLOGISTS IN NORTH CAROLINA, POSSIBLY AT DUKE U. I WANT THE BEST POSSIBLE CARE AS MY HEALTH INSURANCE IS GOING TO EXPIRE AT MY RETIREMANT AGE 65 NEXT DECEMBER.
CAN YOU RECCOMAND ANYONE DOWN HERE AND WOULD YOU SUGGEST LIFESTYLE OR DIETARY CHANGES TO HELP ANYTHING?
THANK YOU VERY MUCH!
FLAbound
It is reassuring to find out that I am not the only person with these symptoms. The usual response (even from doctors) is that I am completely nuts.
I am a 45 year-old male and have had the snow-like symptoms continuously for at least 10 years. It covers my entire field of vision, I see it even with my eyes closed and shows only limited variation in intensity. I rarely have headaches and the intensity of the "snow" does not vary even when I have the headaches. I have used the bad TV reception analogy myself. I have tried pretty much every family of drugs used to treat migraines including neurotin, inderal, verapimil, magnesium, etc. without success (though some occasional bad side effects). I have had an MRI and the evoked visual response test that indicate no additional problems. A doctor at MCV (the state medical school) calls my problem visual migraine equivalent though without an effective treatment, a name is not too reassuring. It is sufficiently intense that I have given up driving a car. The only other health problems I have are color-blindness (blue-green), some astygmatism, and a chronic knee problem that has also been difficult to diagnose but is probably a chronic inflamation in the synovial lining of the knee.
Recently, I have noticed that my fingers and feet tingle. It is far more variable but is becoming more frequent and intense. I don't know that this is related to the visual problem but it appears that it is consistent with other migraine symptoms. At the moment I am not doing anything to treat the problem since I am tired of being a guinea pig and putting up with the drug reactions. I would put up with a lot, though, to get some relief.
I can really empathize with you all since I find this problem physically and emotionally draining and one that it is hard for my family and friends to understand. I am sure that some of them think I am a hypochondriac. (sorry no spell checking!)
I am a 45 year-old male and have had the snow-like symptoms continuously for at least 10 years. It covers my entire field of vision, I see it even with my eyes closed and shows only limited variation in intensity. I rarely have headaches and the intensity of the "snow" does not vary even when I have the headaches. I have used the bad TV reception analogy myself. I have tried pretty much every family of drugs used to treat migraines including neurotin, inderal, verapimil, magnesium, etc. without success (though some occasional bad side effects). I have had an MRI and the evoked visual response test that indicate no additional problems. A doctor at MCV (the state medical school) calls my problem visual migraine equivalent though without an effective treatment, a name is not too reassuring. It is sufficiently intense that I have given up driving a car. The only other health problems I have are color-blindness (blue-green), some astygmatism, and a chronic knee problem that has also been difficult to diagnose but is probably a chronic inflamation in the synovial lining of the knee.
Recently, I have noticed that my fingers and feet tingle. It is far more variable but is becoming more frequent and intense. I don't know that this is related to the visual problem but it appears that it is consistent with other migraine symptoms. At the moment I am not doing anything to treat the problem since I am tired of being a guinea pig and putting up with the drug reactions. I would put up with a lot, though, to get some relief.
I can really empathize with you all since I find this problem physically and emotionally draining and one that it is hard for my family and friends to understand. I am sure that some of them think I am a hypochondriac. (sorry no spell checking!)
I am sorry that you both have this horrible problem. I have it too. Please see my post from 1/28/02 Desperately Seeking
A Diagnosis by VAN. There you can see my whole story and the doctor had some great ideas, however I have not explored them. I too see snow like vision daily mine is worst in the morning and late evening. I too have seen two neuro-opthamologists and many neurologists. Beta blockers, calcium channel blockers, anti-depressants, epilepsy meds, steriod & regular anti-inflammatory meds, and herbals such as feverfew, magnesium, and B complex have all not helped. My snowy vision is like watching a tv station without an antena. I can see through it most of the time but during an episode with dizzyness, & tingling it gets hard to see through. I no longer get the headache that used to come with these visual problems. I have read articles about women who stop getting the migraine but have the other symptoms around menopause. Mine is very linked to my hormones(explained in last post). If you sense a certain time of your cycle when the vision gets worse then you may want to get your hormones checked.
I gave up on the neurologists because they have done about every test possible. I found an alternative/homeopathic internal medicine doctor. She is the one who had me do the saliva hormone test(see old post). This revealed my problem with strong estrogen fluctuations, even though my blood serum hormone tests revealed normal estrogen levels. The saliva test shows you levels every 2-3 days and gives you a graph instead of a one time level. The same lab who offers these kits, diagnosis techs. offers an adrenal test through saliva samples. Your adrenal glands go through a cycle daily and can disrupt your whole body if not right. Recently I took this test and realized I have a very diminished adrenal function which contributes to hormone problems. This may help Ladyofthelake because you abviously go through certain times of the day where you feel worse than others. Thyroid problems can also play a role in this. Try to find a doctor who can look at all the systems in you body and not just your brain, because steroid/hormone/gland problems really affect the brain.
I am taking hormone therapy and adrenal support meds now, but I don't know if they are helping yet. Please let me know of anything either of you find out. I would love to talk and I have learned a lot in my search for a solution. vanessa.***@****
A Diagnosis by VAN. There you can see my whole story and the doctor had some great ideas, however I have not explored them. I too see snow like vision daily mine is worst in the morning and late evening. I too have seen two neuro-opthamologists and many neurologists. Beta blockers, calcium channel blockers, anti-depressants, epilepsy meds, steriod & regular anti-inflammatory meds, and herbals such as feverfew, magnesium, and B complex have all not helped. My snowy vision is like watching a tv station without an antena. I can see through it most of the time but during an episode with dizzyness, & tingling it gets hard to see through. I no longer get the headache that used to come with these visual problems. I have read articles about women who stop getting the migraine but have the other symptoms around menopause. Mine is very linked to my hormones(explained in last post). If you sense a certain time of your cycle when the vision gets worse then you may want to get your hormones checked.
I gave up on the neurologists because they have done about every test possible. I found an alternative/homeopathic internal medicine doctor. She is the one who had me do the saliva hormone test(see old post). This revealed my problem with strong estrogen fluctuations, even though my blood serum hormone tests revealed normal estrogen levels. The saliva test shows you levels every 2-3 days and gives you a graph instead of a one time level. The same lab who offers these kits, diagnosis techs. offers an adrenal test through saliva samples. Your adrenal glands go through a cycle daily and can disrupt your whole body if not right. Recently I took this test and realized I have a very diminished adrenal function which contributes to hormone problems. This may help Ladyofthelake because you abviously go through certain times of the day where you feel worse than others. Thyroid problems can also play a role in this. Try to find a doctor who can look at all the systems in you body and not just your brain, because steroid/hormone/gland problems really affect the brain.
I am taking hormone therapy and adrenal support meds now, but I don't know if they are helping yet. Please let me know of anything either of you find out. I would love to talk and I have learned a lot in my search for a solution. vanessa.***@****
Van. Hi...I did read your post a few days ago. I feel awful hearing your and Lady's stories. I've been dealing with this only 7 months...I can't imagine what the two of you have been thru. I just feel better knowing that there is some support out there and others who understand how I feel. Thanks for writing here.
I've had all the blood tests that you have talked about. All came out normal. I am only 32 and so menopause is not a factor with me. But I do take b/c pills, but have been taking this brand for 4 years. I did develop Vertigo 2 years and 4 months ago. Not a Dr. that can tell me why I have that either.
I have similar symptoms as you and Lady...I've yet to see a lot of color within the aura. It's just a constant, flashing, moving, shimery aura all around my visual field. But have taken the visual field test at my optomotrist office and that came out normal as well. As Lady has experienced, objects won't stay in pattern. Things like checkerboards, blinds, dishes stacked...seems to vibrate horribly when I look at them. I have "floaters", have had those since I was 22 and those are easy to deal with compared to this.
Not only are the physical symptoms difficult to deal with, the emotional stress that goes along with something like this is hard to cope with. Here's hoping that all of us who suffer from this will finally find something that will help. My email address is ***@**** if you would like to write to me.
God Bless,
Deen
I've had all the blood tests that you have talked about. All came out normal. I am only 32 and so menopause is not a factor with me. But I do take b/c pills, but have been taking this brand for 4 years. I did develop Vertigo 2 years and 4 months ago. Not a Dr. that can tell me why I have that either.
I have similar symptoms as you and Lady...I've yet to see a lot of color within the aura. It's just a constant, flashing, moving, shimery aura all around my visual field. But have taken the visual field test at my optomotrist office and that came out normal as well. As Lady has experienced, objects won't stay in pattern. Things like checkerboards, blinds, dishes stacked...seems to vibrate horribly when I look at them. I have "floaters", have had those since I was 22 and those are easy to deal with compared to this.
Not only are the physical symptoms difficult to deal with, the emotional stress that goes along with something like this is hard to cope with. Here's hoping that all of us who suffer from this will finally find something that will help. My email address is ***@**** if you would like to write to me.
God Bless,
Deen
Ladyofthelake...Wow. I've been searching these websites for weeks posting and asking questions, tring to find someone else who maybe has experienced the same visual problems I have had.I am a 32 year old mother of 2. Like you, I have had migraines since I was 12...always with the "aura" before the pain. But for seven months, I have had the constant aura symptoms. Altho, I have not been thru as much testing as you have, I have had an MRI on my brian, been to an opthamologist, optometrist and a neuro...All tests come up normal. My neuro, just last week, finally diagosed it as just that...persistant migraine aura. He perscribed Inderal for me. As of yet, I've not taken any...being completely terrified of drugs....but plan on trying them. It, too is a beta-blocker. And used to prevent migraine. I guess my question to you is, have you noticed any improvement at all since starting the drug treatment? I do understand how you feel, it's a horrible feeling when you go the the eye Dr. with these types of symptoms and he tells you you have 20/20 vision!!! I sincerely hope you feel much better soon.
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