Does Anyone Remember These Posts

[Jan214]

http://www.medhelp.org/posts/show/427929

I have tried to do things for this forum to take the pressure off. If the only things we talk about are medical things, it not only stresses out those of us with cancer but keeps those waiting more anxious.  I tried to do some things that would lighten the load but than I ended up in the hospital 4 times that month and couldn't carry through.  Than a small minority got upset because they feel that this forum should ONLY be about factual cancer issues. I know it is clear to all but a very few how I feel about this whole issue of cysts vs cancer people.  I don't know why those few insist on taking everything all of us have said in such a negative manner while insisting they are positive people.  I know there is one person on this forum who will think I am speaking to her, but actually, no, I really don't mean you.

This is my last effort to help get this place back on track.  I did the healthpages hoping it would give people some indepth answers that we are not able to give.  I don't see anything wrong with that and most others don't either. It would give some people peace of mind to know these things and than we would all still be available to answer more questions and be a shoulder to cry on.  

I don't know how a few could so misinterpret my intentions here, when by my friends list, replies I have made to people with cysts and the HealthPages, it should be glaringly obvious that I have a massive amount of compassion for those who are afraid and still waiting to find out.  No one on that post was suggesting anything of the kind that a few of you were insisting on taking the wrong way.  For the few who insist on taking everything everybody on that post said in the wrong way, well, I feel sorry for you.  Those few are the ones that are being divisive.  The rest of us were just trying to figure out how to best get the correct information to the right people in the shortest amount of time.  Often the questions are not answered fully and so questions get asked over and over by the same people out of their frustration to get complete answers.
If the very small minority of you still think I am some mean old shrew who wants to chase off frightened people than I guess you missed this post and the hundreds like it that I have done.

http://www.medhelp.org/posts/show/527018

So, that is my final say on this.  I have tried everything I can think of to help right this issue, but as long as the 3 or 4 people who want to see things negatively continue to do so and act like they are taking some moral high ground than the forum will never be the same. I do hope we can get past all of this.  
Kindest Regards to you ALL,
Jan

[butterflytc]

In my opinion none of this should have gotten personal at all.
keep doing what you do best..fighting cancer, and don't let anything else get in your way.
((hugs))
butterflytc

[marie3B]

Ignore the mess up at the top of my post. I don't like this new keyboard or computer too much yet. Marie

[marie3B]

i DON'T KNOW WHAT HAS COME UP, BECAUSE i HAVE BEEN AWAY A FEW DAYS.






I don't know what has come up, because I have been gone a few days.  I agree with the above that there should be no reason to be upset by being referred to the correct forum. I also agree with the above that being a young mom worried about having a cyst complicate her life is light years away from living with late-stage ovca. Those of us diagnosed late and unable to get a remission are living under a black cloud of uncertainty at all times. Even when I get half-way good news from the doc I still have the feeling that I'm just waiting for the other shoe to drop. I don't want the forum to run off those of us that need it the most. I have made friendships with people without cancer on here.  They have been great to me.  But when I am scared or sick or am experiencing some disgusting symptom I want someone that has been there too to talk to.  My grand-daughter calls me her "cancer girl". I guess I need other cancer girls to help me along. Love, Marie

[Sandymac]

I'm going to try to be brief about this.. I've been on both sides of this discussion.  Back in December, we didn't have anything but the Ovca forum. We did not know if we had harmless cysts or cancer. We went on this forum seeking answers, information, reassurance... I was treated warmly by everyone. Once diagnosed  with cysts I only posted to those seeking the same answers that I was.. This discussion was raised a few times.. I felt that since this was the only place, and when Drs. started talking about CA-125, tumors, etc., it makes one wonder and be afraid.But I also understood how the members felt if they were suffering with cancer to have to deal with other unrelated questions

Now enter Ovarian cyst forum.. problem solved ... It was thought that we could direct those to the Ovca forum if warranted and the ovca folks , if they chose, could monitor the ovcy forum .. simple right??? No... Now, I ask you; why would anyone get in such a tiff after being referred to the appropriate forum?? If I post on , let's say the Pregnancy forum about something unrelated to pregnancy, I will be firmly but politely asked to post on an appropriate forum. WHAT IS THE PROBLEM??? It is not the same as it was some months ago when this was the only forum in town. Why some people are getting so upset is beyond me.. Why would anyone WANT to be in the wrong place if they can get better answers elsewhere??

I myself have gone on the Ovca forum and if I have seen a post about cysts, I send them to the ovcy forum!!! They are going to get faster and more complete information. This isn't being "selective" or "elitist" .. It's just common sense.. Sorry but I just had to put my nose in from the other side of the fence. !!

[TrudieC]

Jan, thank you so much for your efforts to help build and support both sites.  Please, let's make this work.  We are stronger together than we are individually.  I can't imagine how hard it must be for you ladies who are living with and fighting ovarian cancer.  I am awed by your strength and determination.  Yes, I was extremely scared when I was first told I had a mass on my ovary but you all educated me and comforted me and I am passing that forward on the Ovarian Cyst site.  Please, let's get back to helping each other.

[msjazz]

Well I just don't know about cysts, fibroids, masses, or tumors. I went to the gyn Nov. 04 and Dec. 04. I have the records. Cheif complaint, pelvic pain. I was given antibiotics for a uti, after a tvus showed nothing. It returned in April 05, while I was at the hospital with my husband for 10 days, after he had a pulmonary embolism. I saw my pcp at the elevator, and askd him for antibiotic as I assumed it was that. May 05, I started having pain in my right side across from my navel. I had a ct done at the gastroenterologist that showed ill defined inflammatory process, possibly diverticulitis.
I made an appointment for 3 weeks for a colonoscopy. The pain got continually worse, until 2 days before the test I had to go to the E.R.. It was a severe pulling pain from my side to my navel. Another tvus and ct. Nothing. I was kept in the hospital and did the colonoscopy. Nothing.
My gyn came in the next morning and said whatever it is is not female and left the case to my gastroenterologist Dr. W.. Dr. W said we are going to find out what is wrong, I am having a general surgeon do a laproscopy Friday as an outpatient, and released me. When I woke up on Memorial wkend Friday at 5 pm, the surgeon as telling me he was sorry and it was ovarian cancer and had spread.
I went to Memphis to a gynonc for sugery. The largest frozen section was 7 cm on the report. My dr. said she doesn't remember a tumor. It was like a spider web, on the outside of everything and pulling and twisting organs up and down. Diagnosis stage 3c ovca.
I wish I had had something that showed up on scans and maybe it would have been found 6 months earlier.

[PF_PVD]

I don't know, Jan.  Staying will be difficult as long as there are people that believe and are not ashamed to say publicly that WORRYING you MIGHT be one of the 5% of people with cysts which are malignant is just as DISTURBING as LIVING WITH a stage IV ovarian cancer dx and having been told by your oncologist that he does not expect you to get a remission EVER and that you will be on chemo for the REST OF YOUR LIFE (however short or long that may be).  And yes, I know I am shouting a few of these words, and that is my intention.

And I quote directly from a post: "Tell me, what was wrong with all of us chatting about cysts, surgrey, chemo, doctors, home life, scars, bio indenticals, hot flashes, diarrhea, vomiting, and the hundreds of things connected to us having female problems, one of the greatest of course to some of you, is the OVCA, but do you not think that a cyst might just be as disturbing to a young mother , with kids to care for and her not knowing what it might entail in her life?"

I'm sorry, because I don't wish to carry this debate over to this thread, but I believe this demeans and diminishes the lives of those actually living with cancer (instead of just worrying about it), and I don't understand how this isn't obvious.