Aa
HELLO HELLO HELLO
Hello All!
It seems like it has been so long! I was glad to see names that I recognized! There are so many of you who are new here, that I almost feel like a stranger. But it saddens me to see that this beast is still wrecking so much havoc on so many.
My computer is up and running again but not as well as I would like. Oh well, I won't complain. After no computer at all, I will be happy with just about anything.
I saw that TC tried to keep everyone up to date for me. And i want to thank all of you for the thoughts, concerns and well wishes. This new chemo is really rough on me. I have to say that even though I thought Gemzar was bad, this has been much worse. On top of that, the avastin is really messing with my blood pressure again. That was the reason for the trip to the ER last week. I guess that like last time, it is going to take a little while to work out just the right drug combo to bring it down and level it out. But I won't complain about all of that too much either since it is working and bringing that CA down again. When I go back to the Dr next week, he is going to schedule a CT scan so we can see just what is going on and where.
I am feeling better from my last cisplatin/avastin treatment so hopefully I will be able to begin to stay caught up again. I just have my days all through the month between times. Other than that I have been just fine. On my good days, I feel great. But boy, those bad days can be rough.
I know that I missed quite a bit and I am sorry. I missed birthdays, updates, surgeries and so many other things. I hope that you all realize that it was not intentional. Because most of all, I missed all of you. And now I am going to try my hardest to get back in the swing of things, no excuses!!!
Love Chris
PS To all of you who are new here I want to say welcome. I am sorry that it was something so terrible as cancer that brought you here, but I hope that you are finding the support that you need. We are a warm and loving community that will try to help you in any way that we can.
It seems like it has been so long! I was glad to see names that I recognized! There are so many of you who are new here, that I almost feel like a stranger. But it saddens me to see that this beast is still wrecking so much havoc on so many.
My computer is up and running again but not as well as I would like. Oh well, I won't complain. After no computer at all, I will be happy with just about anything.
I saw that TC tried to keep everyone up to date for me. And i want to thank all of you for the thoughts, concerns and well wishes. This new chemo is really rough on me. I have to say that even though I thought Gemzar was bad, this has been much worse. On top of that, the avastin is really messing with my blood pressure again. That was the reason for the trip to the ER last week. I guess that like last time, it is going to take a little while to work out just the right drug combo to bring it down and level it out. But I won't complain about all of that too much either since it is working and bringing that CA down again. When I go back to the Dr next week, he is going to schedule a CT scan so we can see just what is going on and where.
I am feeling better from my last cisplatin/avastin treatment so hopefully I will be able to begin to stay caught up again. I just have my days all through the month between times. Other than that I have been just fine. On my good days, I feel great. But boy, those bad days can be rough.
I know that I missed quite a bit and I am sorry. I missed birthdays, updates, surgeries and so many other things. I hope that you all realize that it was not intentional. Because most of all, I missed all of you. And now I am going to try my hardest to get back in the swing of things, no excuses!!!
Love Chris
PS To all of you who are new here I want to say welcome. I am sorry that it was something so terrible as cancer that brought you here, but I hope that you are finding the support that you need. We are a warm and loving community that will try to help you in any way that we can.
When I spoke with you on the phone strength,determination,and doing this all on your own it amazed me.If you need anything you now where to find me.If anyone can make it through this its you.My prayers are with you.Love,Jen
It ALWAYS makes my day when I see familiar people like you pop up on my computer...Chris you made a cloudy day a bit sunnier:) Alisa
Hello and welcome back ...It is great to hear from you and soo glad the chemo is going well. I finished mine in late nov the day b-4 thanksgiving. I am having trouble with neropathay in both hands and feet .. swelling and carple tunnel symptoms.. And am still having problems with pain in my abdominal area ... thing is there is no female parts there so shouldn't be having pain. It feels like the lymphodemia in my right arm otherwise hanging in there ...slee
Welcome back Chris, we all missed you as you can see. Hang in there, girl, you're such an inspiration to us.
Had my CT scans yesterday, I'll have the results on Monday.
Take it easy, feel good and have a pleasant weekend.
xoxo.... Jane
Had my CT scans yesterday, I'll have the results on Monday.
Take it easy, feel good and have a pleasant weekend.
xoxo.... Jane
I am glad to see you are back with us. I am starting chemo again Monday. Alot has been going on. Cancer decided to wake up and give me a hard time again. You were really missed. Love, Marie
Teresa,
I just had my third treatment of cisplatin/avastin about 2 weeks ago. As far as the tumors and sizes etc, I am not real sure. Even though my CA rose to 1500, my Dr was not as concerned as he could have been because a CT right before showed that there were no large tumors anywhere. There are a few small ones in my liver and some cancer on the stomach lining. But basically everything still looked pretty much the same. I guess we caught those microscopic buggers before they had a chance to turn into anything else. I go for a treatment of avastin only this coming Mon and a another CT will be scheduled then. I do recieve one about every 3 to 4 months so he can keep a close watch on things and so far he feels all is still good as I am not full of a bunch of tumors.
I think that pretty well catches me up. I have been having several problems with both of the chemo drugs. The avastin is causing big blood pressure issues again and we have not yet got the right combo of drugs and doses to get it leveled out. I have also had small reactions to the cisplatin the last two times I recieved it. Nothing as bad as I had with the carbo, but enough that they are having to pump me full of benedryl and decadron both before and after my treatment. As long as the reactions don't get any worse I can deal with it because I hate to have to stop something that is still working just because my system has decided to play games. As soon as I get the results of the CT I will let you know.
I truly missed all of you too. You are like family to me. I realized just how much when I found myself cut off from all of you. I do not plan to ever let that happen again.
Love Chris
I just had my third treatment of cisplatin/avastin about 2 weeks ago. As far as the tumors and sizes etc, I am not real sure. Even though my CA rose to 1500, my Dr was not as concerned as he could have been because a CT right before showed that there were no large tumors anywhere. There are a few small ones in my liver and some cancer on the stomach lining. But basically everything still looked pretty much the same. I guess we caught those microscopic buggers before they had a chance to turn into anything else. I go for a treatment of avastin only this coming Mon and a another CT will be scheduled then. I do recieve one about every 3 to 4 months so he can keep a close watch on things and so far he feels all is still good as I am not full of a bunch of tumors.
I think that pretty well catches me up. I have been having several problems with both of the chemo drugs. The avastin is causing big blood pressure issues again and we have not yet got the right combo of drugs and doses to get it leveled out. I have also had small reactions to the cisplatin the last two times I recieved it. Nothing as bad as I had with the carbo, but enough that they are having to pump me full of benedryl and decadron both before and after my treatment. As long as the reactions don't get any worse I can deal with it because I hate to have to stop something that is still working just because my system has decided to play games. As soon as I get the results of the CT I will let you know.
I truly missed all of you too. You are like family to me. I realized just how much when I found myself cut off from all of you. I do not plan to ever let that happen again.
Love Chris
I am so GLAD they got your computer repaired for you. I truly missed you girl.
Can you remind us where you are on your cancer treatments and condition? I know you are on carbo/avastin. But, I don't know where your tumors are and/or the size.
Teresa
Can you remind us where you are on your cancer treatments and condition? I know you are on carbo/avastin. But, I don't know where your tumors are and/or the size.
Teresa
Welcome home ! It was good to see your name when I logged on! I'm so sorry things are not going too easily for you, but am hoping it's working-- that's the main thing ! Take care ...
Love, Sandy
Love, Sandy
Welcome back Chris!!!! We missed you. Sorry to hear the new chemo is so rough but hopefully it is working. Good Luck with the CT scan. I will keep my fingers crossed and you in my prayers. Love, Julie
I also want to add my "welcome back." I understand the frustration with computers. We just bought a new laptop and wireless modem that has to go with it. Shoot - it's not easy to get all this stuff straightened out when I don't even understand the terminology in the directions.
Sorry the chemo is do hard on you. But as always, you sound wonderful. It's good to have you back.
Sorry the chemo is do hard on you. But as always, you sound wonderful. It's good to have you back.
Hey there kiddo.....it is great to hear youir voice again. Even more importantly, it is wonderful you are , once again, feeling well enough to exert the energy required for communication.....I am so glad to hear you are doing better. Those days of "total wipe-out" are so hard to take and always "way too many". It is good to know they are fewer for you. I think of you often and am very grateful to you for taking the time to touch base.
You take care, kid, and touch base when you are able.
Know we love you.
Peace.
dian
You take care, kid, and touch base when you are able.
Know we love you.
Peace.
dian
I'm sort of one of the new ones, only been on the board for 10 months and its great to hear your back and that your chemo is working. May your numbers continue to fall. Your an inspiration to this board and others.Sending positive thoughts your way.
Hugs and Prayers, Terry
Hugs and Prayers, Terry
Hi Chris,
So good to "hear" you back on here. I have missed you and thought of you constantly. I wish the chemo wasn't so hard on you. D**n cancer and treatments! I am glad to hear that it seems to be working and will pray that your CT will be clean. Let us know! Love you, Colleen
So good to "hear" you back on here. I have missed you and thought of you constantly. I wish the chemo wasn't so hard on you. D**n cancer and treatments! I am glad to hear that it seems to be working and will pray that your CT will be clean. Let us know! Love you, Colleen
You have been sorely missed! No apologies required, we all know how things go off track occasionally. I'm just glad you report that you're having lots of good days to offset the bad a bit.
Love,
Sharon
Love,
Sharon
It is really great to hear from you. Welcome Back.....I am so glad your chemo is working sorry that it is so rough....I am sure you have bunches of notes and emails to read. We have really missed you.
Love,
Dawnlyn
Love,
Dawnlyn
Wow! You are such a shot in the Arm...(in a good way!) We've really missed you and I'm glad you got the puter up and running and that this chemo seems to be working for you. Fingers and toes crossed for you!
Teresa/doicat
Teresa/doicat
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