10yo with ovarian cysts

[momof10yo]

My daughter was diagnosed with ovsrisn cysts back in May.  We were in the ER 3 days in a row - thinking it was her appendix, and then finding out she had 2 cysts and fluid in her abdomen that meant one had ruptured.  She had not started her periods yet either.  One month later, she had her first period.  Every month since then she has had pain.  Every other month she has SEVERE pain and misses school.  She can only take ibuprophin and tylenol because of her age.  I don't know what else to do for her besides that and a heating pad!   I don't want her to be in pain...but don't know what to do anyymore.  The OBGYN says she is too young for birth control...and that there really isn't any other options because of her age.  SO frustrated.

[Faron617]

I'm so sorry you're dealing with these frustrations.  It sounds a lot like endometriosis to me.  That's what my doctors believe I have.  They told me that two major factors are 1) starting your period young, i.e. 10 or 11 (I started at 11) and 2) having pain so bad that you miss days in high school.  I

[ticked]

What type of cyst was it? It is possible she could have Endometriosis and I would really keep and eye out for this and symptoms because it is often ignored by most regular GP's as well as specialists because she is young. I was misdiagnosed for 14 yrs finally operated on at 27 after a cyst had finally developed. I never had any cysts and that is why all tests were negative.

My pain started after my first period and no pain meds helped. By the time I was 15 I was told I had IBS after doing a colonoscopy and them finding nothing meanwhile I had a rectovaginal cyst growing which is related to Endo. I suffered for a long period of time.

I would always keep the copies of her Ultrasound reports on hand as some doctors can't see the obvious signs of Endo.

Not saying it is Endometriosis but the pain she is feeling is not normal and that is the #1 sign of Endo.

So you know there have been people I have come across as well as documented literature of Endometriosis as young as 8 being found during surgery and in fetuses. Does anyone in your family have it? My aunt had it but not my mother or two sisters. Its is found with people that have family members with it but also ones without.

Early detection is vital, because it took 14 yrs to diagnose me the Endo was deep and got to the nerves. It was all over my bowels, bladder, ureters, Fallopian tubes, uteral sacral ligaments as well as the pouch of douglas.

I don't want to alarm you but I want you to read up on it and keep it in mind because when I was 13 I had a transvaginal US done and there was no cysts but pain and she said I possibly had it and did nothing about it and I suffered.

How old is your daughter? What other symptoms does she have?

I know of many younger girls with Endo and can ask them questions for you if you'd like. Some were surgically diagnosed at age 11 etc. That is also the only way to diagnose as it will not show up on an ultrasound unless there is an endometrioma (Blood filled cyst)

I have a bunch of journals and there is one in particular called Endo and Migraines. That post speaks a lot about my symptoms before I was diagnosed. Again I don't want to scare you but I want to inform you just in case

[PrincessChandaLeigh]

Go get her progesterone levels tested. They could be low and this is what's causing the cysts. Ask the doctor if their low should she be prescribed a progesterone pill to take or oil. I have breast cysts and but a progesterone oil online and this helps me.
Good luck
*Princess