HI, I am new here and i am looking for some advise , I am 47 yrs old and have been post menopause for 3 yrs. Complex septated dyst found by accident, sent for test due to a bleed.
Cyst found in October 09 then was booked in for surgery in Jan10, consultant got second opion and took the watch and wait approach. Finually saw consultant again 7 weks later and it showed it ahd grown to 7.5x6.5x5.5, and it was at this point i was told it was a complex septated cyst, no mention of this before. I had major bowel surgery this time last year so have been putting alot of the pain down to still recovering from this. Because of the past surgery i have been told i have to have a laproptomy, i have been told i will be having both ovaries removed and tubes, uterus left in place if possible because of the last surgery, so a bowel surgeon will also be at the op. My last CA125 was 23. I dont really understand any of this, i am booked in for the surgery next thursday 6th May 10, and i am very scared at the thought of having major surgery again so soon since the last and out what the outcome may be. How likely is this to be cancer, i haven't really had anything explained to me and do i really need so much removed. He is also doing a hystophy or something like that dont know how it is spelt to the uterus at the same time.. Can anyone give me any support and information, i would really appreciate it.
If the cyst is growing, and particularly since its the 7+cm size and complex, then it definitely should be removed. However, has your doctor told you why you will need to have both ovaries removed since the cyst is only on one ovary? Does it perhaps have something to do with the bowel - blockage or something?
You should be having a pre-op before the surgery and that would be a good time to get more clarification on your issues/questions. You really should ask your doctor for more specific information on what he is planning on doing and the reasons for it.
Good luck to you and pls do keep us informed on what you find out and what transpires.
Thankyou for getting back to me, so nice to here from someone. My consultant said he would like to take both ovaries away at the same time as i am postmenopause and it would take away the chance of a cyst forming on the other ovary in the future. I have already had pre op and did not really get much information, i have got more info from the people who do the scans than from my consultant. For a long time they could not even tell me waht type of cyst it was , or where it actually was properly. It was not until the last trans probe i had that my consultant said , oh right it's a complex septated. Apparently having the last lot of surgery has caused problems for this surgery. I have read on here that alot of women are saying that for this type of surgery to ask for a gyn/onc to do the procedure! This has not been suggested to me. I feel like i have been a bit naive and have put myself to much into their hands, but having no understanding of anything medical i have had no choice. So do you think this is the right option to have the cyst removed and ovaries and tubes, he also talked about removing the uterus, but then said he did not really want to unless he thought he had to because this would cause another condition when you have had the bowel surgery i have had.. I am so scared , i am not sleeping and the thought of surgery again. It's the unknown of what they are going to do altogether that frightens me. If anyone has anymore info please post.
It's understandable that you're scared - especially when they're not giving you all the information you should be getting. My personal feeling would be that you should definitely ask your gyn to refer you to a Gyn/Onc for a second opinion - everyone should be able to do that without any repurcussions. My gyn did not suggest it to me voluntarily - after reading these posts I told him I was concerned and hesitant and asked him to give me a referral to a Gyn/Onc.
Originally my gyn told me we should remove both ovaries, just as a prevention against future cysts and also remove uterus and tubes - just clean everything out "just in case" something comes up in the future. When I asked if I would require hormonal treatment if both ovaries were removed he said no, and that was absolutely wrong. When you remove both ovaries your body no longer can produce the hormones that you need and hormonal therapy is required to keep your body in balance - so you would need some supplements. When I met with the Gyn/Onc he said he did not want to remove the other ovary and the uterus if they were OK. .... he did not see any reason to make the surgery any more complicated by removing healthy organs if not warranted. Also, he saw no need to force me to take hormonal supplements for the rest of my life, since keeping one healthy ovary would produce the hormones my body needed. I felt much more comfortable with his opinion since he is an expert at this particular procedure and does these procedures EVERY DAY - not just occasionally like a gynocologist does. I'm not necessarily knocking gynecologists, as I know there are some excellent ones. I'm simply saying that it is always a good idea to get a second opinion on any surgery and in this case that second opinion should preferably come from an expert, which would be a Gyn/Onc.
I feel so badly for you as I know how scared you must be. I hope that you can get a second opinion and that you can have some questions answered and be given more information about the procedure that you will be having. Its your body and you have the right to ask any and all questions and to get 20 opinions if that is what you needed to make yourself comfortable about any surgeries.
I hope some of the other women on this site will submit their opinions on this.....they were a godsend for me before my surgery and I know they can offer some advice to you as well.
My story is similar to luba's. I went in, found out I had a cyst (7 cm at the time). The doctor also found some fibroids in my uterus. Her first thought was to just remove everything since I was post menopausal, had a bad ovary and a messy uterus. When she spoke with the other doctor, she changed her mind and called me. Said they had decided to just do the cyst, ovary and tube and leave the rest. No need to make my surgery any more complicated and increase the risk and my recovery time. I felt very good about her getting the second opinion and being willing to change her mind.
In the end, I had the left ovary and tube and cyst (10 cm by surgery time) removed laparascopically and am doing great. Everything was benign. Of course if they found something not good in there, she warned me that they would open me up and clean me out. But it all worked out well. And yes, she did have an oncologist on hand just in case.
Hi and welcome to the forum. I am so sorry that I missed your post.
First of all, if you are not comfortable with having the surgery, DON'T DO IT!! Follow your instincts. I would not feel comfortable having surgery from someone who is not sharing details about my condition and who wants to just take everything out "just in case". I agree, a second opinion would be awesome. A gyn.onc would be your best bet, but if you are not able to get a referral to one, check around and find a really good gynecologist that specializes in ovary/female organs. My gynecologist is in with about 5 others and they all specialize in different aspects of the female reproductive system (they all deliver babies, but my doctor is the specialist in surgery on female organs). My point here is that if you do not feel comfortable with this doctor/surgeon, then find a new one. You will feel so much better about this surgery if you feel comfortable and trust your doctor. I do not understand why he wants to remove both ovaries unless it is because he believes they are both not working. Are you on hormone therapy now?
I know what it is like to be so scared about surgery. It is a scary thing to go through. Your doctor is wanting to do a laparotomy because of the scar tissue from your previous surgery. When they do a laparotomy it is a lot easier to get through the scar tissue and see what they are doing. I think that is a wise choice. It is better to have it done this way than doing a laprascopic surgery and mess up. I had one where the doctor should have stopped and opened me up because cyst was too big to remove that way and because my ovary was attached to other organs. He pulled the ureter tube form my bladder and didn't know it. He sent me on my merry was bout 3 hours later. 3 days later I was SO SICK that I could not even hold down 1 piece of ice and I was in he worst pain I have ever been in, I almost died. Had I waited one day longer to go to the ER, I would have died. So, in my opinion it is better that he is doing it this way.
Is it possible that you could take TylenolPM to help you sleep? It may also help with the pain. Some things I do before surgery are :
1. make some meals ahead of time so all you have to do is take them out of the freezer and put them in the oven.
2. I like to go shopping for a new nightgown/pajamas to wear after surgery. It makes me feel better to come home to something pretty and new that I know I will be wearing a lot (silly I know).
3. Arrange for some help. You will be in the hospital for 2-5 days (depending on insurance and doctor). You will need some help for a week or so (if possible).
4. Get my house all clean. I love coming home to a clean house. Then I don't feel so bad about not cleaning the house ;-)
5. Get some books or movies lined up. You will be spending quite a bit of time on the couch/bed. Having something to entertain you helps the time pass by.
6. Take care of all bills, so you don't have to worry about that when you get home.
7. Arrange for someone to help get children to/form school or activities that they are involved in (if you have children :-)
8. Get a massage/ pedicure (I haven't done this but once). It just makes you feel good about yourself.
I can't think of anything else at the moment that I do. You can always come back here and we will give you as much support and comfort that we can. Good luck, and i will be praying for you. Keep us posted on what is going on.
Thankyou thankyou to everyone who has posted some helpful support. \i had a meeting with my consultant today went to hospital for another test and asked if he could talk to me because i have got myself so worked up over the thought of the coming surgery next week. He explained to me that my only option was to have a laparoptomy, i asked about the reasons having both ovaries taken out and he said the same again , it may happen again in the future. I asked if this is so will i need meds after because i have no ovaries, and he said no because im already postmenopause (im Confused). I live in Wales in the uk, it is harder to get second opinions unless you pay privately. I asked if he goes in and it's not good what will happen, as gyn/onc have to be called in , he said he would take pics and not touch and then have a gyn/onc to do the procedure. After speaking to him today i thought i had decided to let him take both ovaries and tubes but now after reading your post above im not sure. I am so happy i now have some lovely new friends on here that understand exactly my concerns and worries. I send you all my love and support and treasure your views thankyou. He did say that it's not going to be straight forward as my bowels has attached thereselves to various parts. once again thankyou to everyone, keep posting, only 8 days to go.
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