I already messaged you privately but YES I started taking high doses of Vitamin D 2 days ago. So far, no change. (But I am feeling tired). What about you, are you back on Vitamin D? Have you considered getting your D levels tested with a blood test? I'm considering it but would need to get a day off of work to do that. Let's keep in touch about Vitamin D. I am also doing the nasal irrigation with GSE just for the heck of it! These are the only two things I'm doing. (besides trying to stay connected to friends and family, it is VERY important that we STAY CONNECTED socially, I think that Patm is directly connected to stress/doubt/sadness).
I've been on the Candida diet for about a month now. I see some improvements (lot less gas and leaky gut symptoms, noticeable weight loss), but I still have a ways to go. The most difficult part is hanging out with friends. I can't have a drink and most things on the menu are off limits--no fun. However, I'm determined to stick it out. Keep up the good work and don't give up!
Been there. It's been tough holding jobs for more than a year at a time. In addition to the Candida diet, you may want to try a cleanse as well at some point. I did a 10-day cleanse about 8 months ago and most of my symptoms went away (until I started back eating my normal foods).
During the cleanse, my skin and scalp cleared. Even a nagging lower back pain went away. It never hurts to do a bodily "system reset". I can't promise that the Candida diet or a cleanse will be the cure, but I think you'll be a lot closer to one, and healthier for sure. I'll keep sharing my results as I continue the diet and please do the same. Be encouraged!
Here's the reality. It does lower patm within a few days. It stays the same throughout the years so don't expect it to get any better. But if you touch the bad stuff, it comes back in full strength right away.
I've been doing it for years now and it was the same since the first few days I tried it. 30% disappears... If I take excessive probiotics, it can take away almost 80% but will drop to normal if I continue doing it regularly. I have to rest awhile before doing it again.
If we have conference and get into one room, any doctor will certainly notice the difference because we'll multiply the effect many many times that we won't have to say anything, the reaction will do the talking.
My prediction is, any medical expert attending will cough and sneeze his way in to the conference room..lol. .. and will get very sick within minutes. They won't have to think about the causation of their sickness until much later as they will lose a lot of their concentration due to the concentrated toxins in the air. I have seen a lot of my victims lose concentration many times and even say it so I'm curious what will happen when we multiply the effect.
Better, have him sit with us on a table and have dinner. I don't eat dinner with other people but when it does happen, they usually have choking fits and have to stop eating and leave immediately. Imagine having that effect on someone but several times more. It would be interesting to see!
The unpredictable question to ask is, if we do happen to be in one room, will we affect each other? That is something we don't know for sure unless its done.
I mean.... Thats a good Idea but how many of us actually live close to each other. As far as traveling with this condition I don't know I don't have a car and the thought of getting on a bus or a plane just isn't my favorite. I think its time we should all get to know each other more we don't have to say names just facts.
I am hispanic 30 goin on 31 years old I live In Las Vegas, NV ( anybody else in vegas or close by?) I have been having patm or tmau symptoms for just a little over 2 and a half years. Its started with people sniffing around me, but about 5 months ago the patm started. It didn't start all at once however it gradually got worst. Ok thats me who else is willing to share more?
On another note. I have a question for everyone. I ordered my vitamin d supplement online I should get it in a couple days. Since I believe that there is a smell component to my case ( don't know how many of you have that) I also ordered activated charcoal pills. My question is that I believe activated charcoal absorbs things in your body or something like that, Should I take the charcoal while I am taking vitamin d or should I wait on the charcoal and just take the vitamin d? anybody know. In other words will the charcoal pills absorb any of the vitamin d.
eckiuME23 - thanks for sharing your story and yes you want to take any supplements away from the charcoal pills. Just separate them by an hour or two and you should absorb the vitamin d fine without the charcoal absorbing it. Good question.
Have you noticed a connection to your patm and your mood? Did you become overly stressed around the time your patm started?
Someone on this board was connecting chronic pain to patm. Well there is a lot of articles stating that low levels of vitamin D is a huge reason for the chronic pain: http://www.webmd.com/pain-management/features/vitamin-d-deficiency-and-chronic-pain-link
Hi thank you for your answer and for your question. I believe I've been stressed sine this thing started. I posted before that I do believe that stress might have something to do with it. Maybe is the stronger more pungent sweat when we stress. About the vitamin d. When I was younger I got a check up once and I brought a small patch of bumps in my arm almost like goosbumps ecxept they don't go away right away and its only a small patch like a circle the size of a quarter. I remember him saying that it was because of a certain vitamin deficiency but I don't exacly remember which vitamin. I think he said it was vitamin D. but he said it was not very serious and just to take a supplement, well I never listened to him since it wasn't serious. Anyway I say that to say this In the last year or so I have been noticing alot more of these patches on my arms so what ever deficiency it is it must be worst now. I believe its vitamin d. So that gives me hope. Even if its not the full cure it couldn't hurt.
The malodor is a real symptom, though not everyone with PATM has it. It doesn't have anything to do with poor hygiene. My guess is that it has something to do with the internal more so than the external. I've read that health professionals have said that there are distinct scents (not necessarily offensive) that people with certain conditions emit. I would also imagine that some type of nutritional deficiency could cause it and that stress could aggravate the symptoms. Of course, this is speculation as I'm trying to figure things out as well. But remember, you're not alone and I believe we all can beat this (PATM, TMAU or whatever else is affecting our quality of life).
I've read the Vitamin D posts as well. I will try this and I really hope it works for all of us. I also read that the deficiency is mainly caused by people spending too much time indoors. I am guilty, as I work indoors for long hours into the evening--not much sun exposure.
Yes I tought about it recently but before it just wasnt an issue since it was just bumps on my skin. Now, however, putting 2 and 2 together I believe he might of said vitamin d and it makes sense since vitamin d has to do with our skin. Anyway i am definately going to try a multivitamin from now on but for now my concentration is on this vitamin d thin hope it works that along with the charcoal pill. It doesnt have to cure me completely but if it diminishes enough to allow us to live our lives or save money for more studies and what not. As long as it helps, hell it cant hurt thanks for your feed back.
Long-time follower of this thread but first time posting. Been dealing with this mystery since 2006.
We result to experimenting on ourselves because that is our only option when doctors dismiss us as crazy. But self-experimenting is dangerous, frustrating, and has proven to be a waste of time and money. Plus, we can’t rule out the .1% chance that this is all in our heads. To clarify, I’m personally convinced this is real, but also recognize that my personal beliefs do not dictate reality.
It’s probably safe to assume that if we ever find a cure it will be with the help of medical professionals and/or scientists. I think our primary focus right now should be to convince doctors and researchers this is real (or convince ourselves it is not, as in the .1% case). Dfoe43‘s conference idea is along these lines, but I agree with eckiuME23 that it would be difficult to execute. Also, it would only be of value to those who attend. Ideally our proof will be easier to share with others so they can verify the raw data themselves.
I think we need to design the “perfect experiment” -- one which is simple for all of us to repeat locally and produces uniform data which is easy to compile into one large set of undeniable proof we can share with doctors/scientists. We need to agree on a design and then each execute it in an identical manner.
Of course, the toughest and most crucial part is designing such an experiment. We don’t want to go to the effort of designing/executing/sharing findings only to realize the whole thing had a flaw which renders our “proof” useless. Therefore the experiment must follow established scientific protocols and generate good statistical data. A basic internet search for “design sound experiment” reveals the essentials of what we’re after.
My best vision so far of such an experiment is measuring reactions in a group of test subjects when a PATMer is present with test subjects and also when they are not present. Some things we want to control:
1) Use the same test subjects in both situations. This means the PATMer needs to enter the room of test subjects after half of the testing duration is complete (not the first half, otherwise we might foul the room for the second half of the test).
2) Select test subjects as randomly as possible. They also should not know us in any way, or be aware of our condition. This means we could not repeat the same test twice with the same test subjects because they might remember us and react differently than they would to when the concept of PATM was new to them. Family/friends/etc must not be used as test subjects.
Below are some test venues I’ve come up with. They all have unique strengths and weaknesses:
* Movie theater: Either an assistant enters a movie theater at the start of a movie and enables an audio recorder, or the PATMer plants the device in a theater far enough in advance to the movie start time so that the air is clear by the time people enter the theater. Halfway through the show the PATMer enters the theater. Afterwards, the recording is analyzed by counting the number of coughs and/or sneezes during the first half of the movie and comparing that with the second half. One problem might be hearing reactions over the noise of the movie.
* Lecture / presentation: Very similar to the movie theater, except it would probably easier to hear reactions in such a quiet setting. If you’re lucky it will already be recorded for you like these events often are. Disadvantage is these opportunities occur less often than movies so they are less accessible to us (unless you’re a student). Also not as random as a movie theater since the same students attend any given class.
* City council meeting: It’s not uncommon for these to be recorded and posted to the internet by the city, which would alleviate that hassle and also would make it easier to see when the PATMer enters the room (for proof he/she was there). Accessibility may vary, and like the lecture, it wouldn’t be very random after the first run for any given city.
I could be missing a much simpler alternative, so please share any thoughts you have regarding a possible experiment design. I truly believe this is the next logical step for us, even if it requires a bit of investment up-front before we can see results.
I don't know about everyone else but I think it's a waste of time to try to convince doctors or scientists of PATM because:
1. It's beyond their ability to comprehend such a situation.
2. My PATM goes away when relaxed. One time I tried to prove it to my Dad, just the ACT of trying to prove it (trying to MAKE it happen) made it so that it DIDN'T happen.
The very 1st thing that the PATM community needs is a real forum. This isn't a forum, this is ONE thread where all the important information get lost in the vast sea of noise/information
For example, let's say you want to show to a doctor a post that clearly explains PATM reactions, how will you do that? You can't because over 95% of the posts here talk about candida and whatnot. I challenge you to find ONE post that explains what PATM is for people not familiar with it, i give you 5 minutes. Good luck finding one among the 1000s of posts that talk about other things. Even if you do find it, there is no way to link individual posts so a doctor wouldn't be able to see it. Do you think doctors want to hear about the 100s of theories you have about what is causing PATM?
We don't have the ability to sticky important posts. We don't have to ability to organize. PATM has been discussed online for nearly 10 years and we still don't have something as simple as a forum.
FORGET trying to do any real activism if we can't even achieve something as simple as having our own forum lol. This thread is nothing more than a big clusterfu*k.
I guess with ray it might have been that the vitamin d super high dose of 500,000 ui ergo brand worked best we dontvknow if the vcine to had worked together with the vitamin d. The dosage for jim wass that big of as booster nad it was just once a week. And that it was doctors order. Everything worked perfectly to kill the beast. Probably if we could get that high order from doctor as well probbly it would work.but we dont have that ergo vitamn d here in our country.
I am a female, Asian, 22 year old from London, UK. I noticed the PATM reactions in 2008 when I was 16 but i'm sure it started earlier. I say this because when I think back I can remember the comments and coughs but I never regarded It to be me. What are your daily thoughts like? or are they voices. Some, not on this forum have mentioned voice hearing and experiencing hallucinations in addition to PATM. I have them. I only noticed it 2 years ago. 2 years ago, for one month I was free of PATM. I don't know how. All I did was have so much passion in me to dream up something and boom the PATM went. It's a weird situation but I had no PATM reactions for a month. My family did not receive PATM reactions for a month. When they had realised something is not right, that I had been the cause of their PATM reactions for so long and suddenly it all went away they concluded nothing to be really wrong with me. To this day they cant quite understand. To be quite frank I don't understand either. I do realise like someone above post mentioned stress is a BIG related factor. Relax and FINDING yourself again. I experimented and came up with the following conclusions.
When you get a shock and your body goes zap. That's exactly what is happening to us. We have been traumatised to an extent. Anyone recall feeling different or odd as a child? Being bullied about certain smells? or emitting something offensive? Or being in a situation where bad smells or lets say being gay was a really BAD thing, or having bad breath was a TERRIBLE thing. Being smelly or different was DANGEROUS. This is when our stress levels go up, we don't know how to cope and it all just escalates, the voice hearing, the hallucinations (you may not even be aware of these things, like I was not for the most part of 20 years, remember I'm 22) What are your daily thoughts like.
When someone coughs before and during I hear screaming
'leave me alone'
'no ones thinking about you' - I don't get this one anymore but I use to (these are all repetitive thoughts and in some sense very intrusive).
Its unreal how many people are suffering from this condition. I bet there are thousands like us. It's all part of communication. Only humans have ideas and THOUGHTS about suicide. Do you think any other creature or animal has ever had a thought on something similar to suicide. Its our nature to communicate. But look what has happened. This PATM bugger.
yes vitmin d working for me now days I almost patm free 98% I take everday sun bath 1 hour and vit d capsul my patm start 1 year before when I was working inside of office I had long duty I didt go out side and my poor diet now I eat every thing ...
yes vitmin d working for me now days I almost patm free 98% I take everday sun bath 1 hour and vit d capsul my patm start 1 year before when I was working inside of office I had long duty I didt go out side and my poor diet now I eat every thing ...
Hi tamanna99 thanks for the input. Honestly, yes It has crossed my mind that we are all crazy. I don't believe we are though. I think that we are having psychological problems as a side-effect of this patm/tmau thing. I don't think its the cause though, even though I agree with u that stess makes it worst. Hang in there. We are all trying this new vitaming d thing i still havent gotten mine but it should get here in the mail tomorrow. I also ordered activated charcoal pills hopefully it helps also. Maybe you should join us, the more test subjects the better. There are people posting that its worked for them lets see if it can help me 2. Like I said before it does not have to cure me completely but just let me live a better life. Thank you for you comments. Communication is very important please keep us posted on anything that u try or anything that works for you.
u must take sun bath every day than working vit d capsul and do some straight exercise it helps our spinal there is no any oura chakra and any biological problam its going from our bone now I'm felling very well
Thanks - you are right... it is difficult. I never thought about it that serious until you mentioned it. Now you got me thinking. What if we could get at least ten people to L.A.?
We'll leave it at that for now.
The reason why doctors can't really tell probably because most of them are immune to all kind of allergens coz they are exposed in their entire career to all kinds.
I do remember one doctor I went to see. He got a wild allergic reaction so got him thinking about it for a sec but I never went back to see him again coz I took a flight the next morning so never bothered.
But if some of us visit a doctor all at once, that will change things. The effect will multiply to lets say 10x or 20x. I don't think anyone can resist or fail to tell at that level of concentration.
I believe without any doubt that 15x or 20x people will put any doctor regardless how healthy they are into a sneezing/coughing fit the sec he puts himself within their presence.
About a year ago, i found another thing that reduces PATM but i gave up on it because it was somewhat costly. I will try it again, with the combination of Vit.D, maybe that will reduce patm to nothing.
I know y'all here are having an intelligent conversation and adding important information but I think It would be amazing if we had a place like Social Anxiety Support where we could have an organized forum where we could just rant about our struggles~ and have different pages for those who want to talk or read about possible cures, coping etc. but anyway while we're here. What's this talk about Vitamin D?? Are you guys buying it online, why? I'm aware my diet and eating habits are poor but there's no way I'm going on a confusing strict diet I'm only 16 and my mom would get suspicious lol. I love food it's the only thing that comforts me. (Besides knowing you lovely people exist :D ) I have stopped drinking soda, though. I'm trying to drink more water. I'm just really fed up with this sh*t, knowing some have had to deal with this for over 10 years.. I don't think I can do it honestly. Daily thoughts of suicide, anxiety leaving the house (which I do about once every other month, I know. terrible) we live in a small apartment complex and everyone's super close, there's no privacy. I don't leave my room when the front door is open.. and on top of that I'm very sensitive so when I hear some of the reactions it's like a gun being fired and i just have to cry. I've been doing that a lot lately as it seems to be getting worse. I can't be free, in the comfort of my own home, I feel trapped. I can't get a job, I'll never get to experience real high school, I don't plan on starting my own family like this.. anyway, I'm definitely not going to tell a doctor about this, I don't know about a nutritionist. I'm sure I am lacking some but am I too young for one of those lol? How do I go about that. And do you guys mention patm to them??
Since you're only 16, DO NOT mention patm to any health professional because one of them might label you as 'crazy' and put you in a psy ward. That's the absolute worst case scenario but i wouldn't risk it. Wait until you're a legal adult to talk about PATM to anyone, even your family or school teachers. Basically, anyone who can be an authority figure, do not ever mention patm since they have legal power over you, you can't predict their reaction after you tell them about patm.
I actually know one PATM sufferer from the Philippines who was in a mental institute for a month, and what's even more scary is that i haven't heard from her in a long time.
Hi hang in there were going to find a solution to this. We have to work together on this nobody is better than anybody here. The reason we are all talking about Vitaming D is because there a few people in here saying that vitaming D helps diminish the effects of patm. It does not seem to be a cure, however. But if most people in here are like me well take what we can get. I think most of us are going to be reporting back in a few days if it has worked for us. If not then we move on to the next thing I mean what else can we do.
@eckiuME23 - If you were here long enough you would have known that once you report someone, all related post are taken off including yours. So every time you click on the report link, the web accounts with admin access to this forum will delete both our posts. Even though you didn’t intend to delete your own post, it got deleted together with mine. Start with understanding little things like that before pointing fingers that I’m reporting you.
So there is a good chance that you reported yourself and accused me instead!
Yes, I agree with you there, we are trying to help each other. Totally agree! But you werent a while ago. I congratulated those that are reasoning well and have even apologised when I wrong. I’m not wrong now so you won’t get one from me. You should be apologising not me. But I assume you are too arrogant and unprofessional to possess such attitude.
Anybody that relates patm to stinky,smelly and foul mouth breath, I will have to disagree, there is no “if” there. I will state my points as others are free to do so. I also try to help if that person happens to have Halitosis as well. Like you! Also, anybody is free to state an opinion.
Just a while ago you were trying to burn me and because you couldn’t accept my reply, you ended up reporting both of us! That’s not very honourable.
Oh get over yourself dude. apologize? apologize for what? for defending myself and other from your venomous rant. Like I said before you don't know all the symptoms, so please stop acting like you do. I never said I had bad breath you did I was just trying to be nice and agreed with you. lets leave all the post on from now on and we will let everybody else decide who really is in the wrong here. someone who really needs help and wants to help others or someone like you who just wants to make yourself feel better. You know I don't even think you have this. You call the self the Foe, so what does that tell you. Suck it up dude, you cant do nothing to me that life hasn't already done to me.
So I was right, you are arrogant. Btw, I don’t intend to hurt you in any way. I wouldn’t if I could but I bet you would do that to me if you were able to.
Also, I don’t know all of the symptoms and have never said so don’t put words in my mouth. Besides, we wouldn’t be here if we didn’t have it.
But I do know that patm has nothing to do with Halitosis or body odor because there is reliable proof about it. You don’t have any proof at all to say otherwise. Years of experience will get you there so humble yourself and wait.
You say you aren’t smelly or bad breath. No odor! So you aren’t classified as an ORS mental patient after all. Great! Now you’ve changed your words all of a sudden. So let me refresh your memory and show you the words that came out of your mouth!
I quote you below asking others if they smell like yourself on Jul 15,2014. I remember ray2505 trying to help you out but you kept on going afterwards.
“hey ray2502 I wanna ask you did you have a smell with your condition. Maybe you couldn't smell yourself but maybe someone told you or you maybe suspected a smell?”
Here you are again on Jul 16, 2014, admitting your bad breath.
“Hi dfoe43 I believe you might be right about me having bad breath.”
And again on July 16, 2014 admitting your foul odor and need more showers and regular changing of clothes!
“my main problem was people sniffing around me like I smelled bad or something so I decided I could sort of deal with that as uncomfortable as it was I would just take more showers change clothes often and avoid public places.”.
Now who is lying or possibly conflicting himself?
I’m starting to think that perhaps the claim of mental disorder is true after all for some of us… no wonder you support it coz you know have it also. One moment you say this, a minute after you refute yourself and even supported the alternative.
And a while ago you accused me of saying that you have odors. You’ve totally forgotten that you imposed it upon yourself; I was only discussing and trying to help. Sorry if didn’t help you with your bad breath. You should have tried it first to see if it works.
Hahah you make me laugh buddy your up at 2:00 am in the morning trying to make yourself feel better. Let me refresh your memory. You called that poor girl all kinds of things just for stating her opinion. yet when it comes to your views all of a sudden its your god given right. right hahah. Like I said you cant do nothing to me that life hasn't already done to me. then you say well not patm is definately not this, definately not that. You obviously have it figured out so leave us poor folks who are ignorant and dumb to try to figure out what the old great one has figured out but wont tell us. Please dude you just make yourself sound retarded.
I can read through the lines of your writing coz I was trained once for it. You are hurt and taking things personally. Believe me I don’t intend to hurt you; I just want to make my point.
We don’t know if Tamanna is a little girl, we don’t know who he is… everyone is anonymous. How can someone (tamanna) grow up from a 9-13 yrs old girl as specified in the photo, to a 22 year old within a few months? And then writes like a well profess writer in his 40s? Do the math!
But she is not the issue, you are! And you are diverting the point of argument and looking for support. That is a sign of someone who’s hurt and losing but can’t admit it and is crying for his mama to help.
Tamanna has been posting that for months now, possible more than a year or two. It has been discussed several times.
Go back and read the forum on that discussion if you want my answer for that. I can see you are either new here or don’t keep up to date with the posts. You have been yapping about Vit D while it was discussed together with the vaccination more than a month ago. Probably next week you’ll babble about the vaccination for everyone to try and get back to us.
Also the moment you post, everyone can see it and reply so don’t complain. It’s part of discussion, grow up! If you had the guts to take that, you would have had the will to ask others about your condition and know about how they are reacting other than speculating wrongly.
I’ve had a number of people with good hearts criticising my ideas and I welcome them. I disagree with what I believe is wrong. Like yours!
I know you believe very much you have a very bad breath and very bad foul body odor so I won’t insist on changing your mind anymore. Go on believing it as I believe you now. Buy more strong mouth wash and strong antibacterial soup and buy more clothes. Continue with what you believe… that you stink so badly. I won’t discourage you from thinking that way anymore!
I’m very sorry that you stench. I agree with you, you should keep away from the public as you say… run away from people. That sounds like a good solution for yourself as you say. Keep on doing it. There is no better way for stinky people but to say away from everybody.
There you go again trying to offend people. haha I laugh at you. you say I need support and am hurt. Captain obvious hahah. Is that not why were here or are you here to teach a class. You see ur just mad that someone like me has the guts to stand up to you a bully yes a bully. And the reason I get the better of you so easily is because I am honest with the people here and with my self. You obviously get off on offending and trying to make people trying to feel bad but this discussion with me is actually having the opposite affect on me. You see i like putting guys like you in their place and its easy for me.
If this is not an example of everything we have to go through in our day to day life then I don't know what is. When you have a person who suppositely suffers from patm himself and he himself tries to put other patmers down by trying to neggate their opinions and not letting them state their views, and by litterally calling them names then i tell you guys what can we expect from society as a whole. Its no wonder some of us have psychological issues, like depression, thoughts of suicide, hearing voices and what not. If our own kind doesnt have compassion and if we ourselves don't understand our situation then how can we expect others to. I hope others on this blog are not like this fellow.
Compassion? LOL!!! Wasn’t you who just swore at me after I thanked you a few hours ago. And when I replied, you reported me instead. Very compassionate of you!
I tried to lower the tone but you kept firing it up. Listen man, I don’t want you to feel bad! Believe me, I don’t but you keep asking me to. Why don’t we call it for the night OK. Go and have a good nite sleep, refreshen up for tomorrow, forget everything that we said, My apology! Cheers.
I swore at you before the your post. Literally right before. It was because of what you said to that girl that upset me. I posted my post then i saw yours come in. That girl was not talking to you she was having a conversation with me. If you wanna call it a night then we can call it a night. I accept your apology and let bigons be bigons.
why all the arguments?
We are all suffering the same.
Please do not refer me to a little girl. I found that to be quite and rather rude. Not necessarily the 'little girl' part but the way you had implied it.
I'm still suffering. And you are still because you are obviously on this forum. I just want o see an improve in our quality of life and standard of living. That's all I really want. And of course for PATM to be banished. When I do hear a cough my soul literally takes for a jump. I'm currently taking therapy with a wonderful man. He has helped me quite a bit and although he sniffles, sneezes and sometimes coughs, he has learnt to deal with it and accept that it possibly comes as a part of me, as part of my illness. This illness.
I agree with curepatmorbust. We need to come up with some reliable experimental evidence so the docs can take us seriously. I cannot even convince my wife that I have PATM, let alone my docs ! My poor baby sneezes all the time when I am at home and I am worried. I think we have the
Ribeyes, yes I am trying vit d but only a single pill 400 UI a day. I am hesitant to go with very large doses without knowing whether I have a vit D deficiency. I am seeing my GP soon how can i convince him to test for vit D deficiency? Also which specialist is most likely to agree to do such a test? Allergist? Nutritionist?
sarcos - you should be able to convince your doctor to give you a vitamin D test (maybe say that you are tired and depressed all the time and haven't been getting enough sunshine). Let us know how the test goes.
My pleasure! I feel ridiculous for not doing it sooner, but was hindered by several factors including the common self-deluding thought of "we'll find a cure before it's worth the effort of organizing further". Plus I wasn't sure what the adoption rate would be, and didn't want to step on the toes of MH.
Fortunately several of you voiced support which gave me enough motivation, combined with the fact that so far, MH has not removed my second post about this new place. Either someone over there has a soul, or we're lucky to be under the radar for the moment (I can't help but think the recent quarrel in this thread didn't help matters...I probably should have waited for things to cool down before posting).
One thing ive noticed its been happening eversince..siometimes when i walk i could here my bones like crack like its from my knees..and what i hate most is some people wen theyre with me also get it....how come...i share the little bone sound with them...anyone had same experience
I have like 40 for my vit d test. I guess normal range. But thething is i took vitd aboout 3 days prior my blood test. I know when the stressfull days i had few happy moments before i had patm i took antibiotics..i had ingested prednisone for 5 days and i was in graveyrd shift working and there was this big issue in my life that kept me awake in my daylight sleeping hours like i go to work with less than 5 hours of sleep everyday.....- viola patm. Stess lessens vit d too and too much sweets and process foods lessens immunity. I guess i had all the ingredients needed ofr the beasts to come alive.like it was planned to happen.all in the right places at the right time.
I guess sometyms fighting is healthy......
Its normal becoz..we all our dif indivs.verbalizing is hea
Lthy. You cant please everyody.but just that sometimes u have to say it when u dont agree personally of someone..and ofcourse its ur every right to defend urself back. We just move on afterwards..after all is said..if not for saying our feelings for each other will all be robots.
Nerve impulses are electrical energy signals; and, they creates energy-fields around the body and electro-magnetic energy waves that can travel away from the body.
Nerve Impulses - Electricity in the Body
Human electricity energy is generated by chemical processes in nerve cells. Billions of nerve impulses travel throughout the human brain and nervous system. A nerve impulse is a wave of electrical activity that passes from one end of nerve cell to another. Each impulse is the same size it; it is the frequency, impulses per second, that carries information about the intensity of the nerve signal.
Neurons are the basic unit of the nervous system. Neurons are responsible for sending, receiving, and interpreting information from all parts of the body.
Nervous System - Human Electrical System
The nervous system is a network of cells called neurons which transmit information in the form of electrical signals. In the brain alone there are around 100 billion and there is a similar amount in the nervous system tissues throughout the rest of the body.
Nerves for relaying information to and from the senses.
Nerves for controlling the internal functions of the body.
Nerves for muscle movement.
Nerves for thinking.
Human Magnetism - Electro-magnetic Field
As electricity passes through a metal wire it causes an energy field or magnetic field. In a similar way, human electricity in the brain and nervous system creates human magnetic fields. There are billions of nerve impulses in the body and these are constantly creating complex human magnetic fields.
The human heart is a source of electro-magnetism that, even at a few meters away, is detectable by modern scientific instruments.
Magnetic Induction- Energy Transfer
The image on the right shows an input electric current producing a magnetic field around one wire; this field passes through another wire and creates an output electric current. In physical science, this is called magnetic induction.
Similarly, to magnetic induction in metal wires, the human electromagnetic field can be felt, or can influence, other people who are standing by. From your experience, do some people create a feeling within you when you are close by?
When close to some people, you may feel as if your body and mind becomes more energised, more hopeful and optimistic.
When close to other people, you may feel as if your energy drains away, a depressing or lazy feeling.
Electricity Waves - Energy Travel over a Long Distance
Electric force can transform into different types of energy waves, such as heat, radiation, radio and micro waves; and these energy waves can travel a long distance.
A changing magnetic field will induce a changing electric field and vice-versa, the two are linked. These changing fields form electromagnetic waves. Electromagnetic waves can travel not only through air and solid materials, but also through space.
The human nervous system can create electric energy waves that can be measured with scientific instruments. The human body produces infra-red radiation that, with night vision equipment, can be seen from miles away.
OK....and so what....I have used a dust mask in the past as an experiment and nobody I mean nobody had any reactions to me. As soon as I took it off reactions immediatly started to come back. I can tell you for a fact that in my case PATM is being released thru the air that I exhale especially when I'm talking with other people for the most part. It could also be thru pours or anus but I'm not 100% sure on that.
Try it, just say you have a sore throat if people want to know why you have it on.
When people start talking about that it could possibly be a pyschological problem then that's where I draw the line. I don't know maybe some people have developed some kind of complex that lead to a pyschological issue.
All I know is that I can be around people all day long but as soon as I open my mouth PATM reactions begin. They are minimal compared to 6 months ago but they are still there.
Sorry eckiuME23, I take my apology back because I haven’t done anything wrong. I did it because I thought you’d compromise. That’s what I call compassion. But with that kind of unpleasant attitude, no one would accept it. Seriously man, I think you have an attitude and need to get over it.
Yes, I do believe you have ORS as you indicated in your postings and you’ll have to deal with it on your own way.
And even though you don’t know it now because you have a lot to learn, we will have to find a cure for patm as the first phase of our conundrum but there’s a second phase, we have to erase “Odor Reference Syndrome” label from our name afterwards. You don’t worry about that because you don’t understand its implication for you and your kids yet. And it’s because of people thinking like you that we’d have an additional worrisome on top to deal with later. Thinking like what? Thinking that you have a very bad breath & body odor despite the insistence of your medical professionals and your loved ones that it doesn’t exist.
@Tamanna99 – I hear what you saying but I don’t in any way know for sure who you are. You could be anyone as we can all create multiple profiles in any seconds. But anyway, ever since you came online I noticed you kept insisting that we admit that our problem is caused by mental illness despite the denial of many members. That is offensive to me because you’re indirectly implying that everyone here in this forum is a loony.
If that is true, you are also implying that this forum shouldn’t have been created. Why? Because that is what doctors have said in the first place. Why create a forum when the answers have been spelled out clearly by doctors on a verbal diagnosis! PATMers created this forum because they doubted their physicians diagnoses vs the evidence that they see. I will disagree with that idea forever because it makes no sense in regards to our cause and its threatening to our future too.
And you are implying that everyone should be on medication like yourself, whom you’ve informed us that you have been mentally unstable from childhood with all kind of mentally diagnosed illnesses and have been taking meds ever since. That implies that we are also mental patients like yourself and should take meds too. That is very offensive to me. Please go back and read your posts if you’ve forgotten.
But then you are not cured after all these years from the meds and psychotherapy, right, otherwise you wouldn’t be here! Unless you have some other reasons.
And also, there is a big problem too that needs explanation! How reliable is information from someone whom have had multiple mental disorder since childhood? If you were in our shoes, would agree that is very unreliable? I mean I have seen patients with only one mental problem since childhood and there’s just no hope of communication.
But from what I’ve read in your writings, it appears of someone much older than your age and not mentally ill. Therefore there are many conflicts in your claims and supposition.
Despite all that, let me make my point clear. I disagree with Halitosis & Body Odor as explanation to patm. I also disagree totally with mental illness as an explanation to patm. Both of the above ideas gave us “Odor Reference Syndrome”, a plague that we will have to deal with later.
Sorry guys but I will disagree with these ideas forever as it will lead us nowhere but keep us in an infinite loop permanently.
I have a feeling you’d probably ask what’s my idea instead. I’ve posted so many times and you won’t miss it. Others have done the same. Approach medical professionals and scientists and beg for help; don’t stop and don’t give up pestering them.
That’s what ray2505 and some of the members are doing. That’s what I’m doing and that’s what we should all be doing. And continue inputting information on going progress and new ideas. It is hard but that’s the only solution.
I congratulate those that have approached their physicians and medical experts to continue to pursue this problem. In particular ray2505 and others. I remember someone was prescribed antiviral.. I doubt it lasted but the info is important. She must have enjoyed a few weeks without patm and that’s important information because so far we understand that the causation of patm responds to only to 5 things so far: antifungals, antibiotics, antiviral drugs and vaccination and other pathogens. And it tends to resist after a certain amount time. It responds to only a few selections of these anti-pathogenic drugs. If that’s reliable enough then that is the most important information that we’ve gathered so far.
Anyways, there is only one door out of the patm prison… scientific research! The solution will come from the medical community! So we have to be persistent in pursuing them and also provide them with what we have already to aid them in the right direction. Have a nice day everyone!
Tamanna9 – come on girl or whoever you are, admit it. Are you a psychiatrist or student? I just read your post Jul, 28 2014. Despite my disbeliefs, I took it to a roommate who’s doing a Masters in psychiatry and he said you are most likely one or guided by one. Following is your post. He said it’s almost like it was taken from a psychology/psychiatry questionnaire. He said it appears you were evaluating eckiuME23 and he also believes you are not who say you are.
I told him about your multiple mental disorder profile and he almost shook his head off and said you are definitely not by judging your writing skills. He said all the patients that he has seen are totally incommunicable lunatics but are not as bad as your profile. So with your description, he said you shouldn’t have even be writing proper sentences at all, and using a computer is for him is impossible.
He confirmed my doubts all these years. The good side, he said only good things about you and your approach. To my dismay, he agrees and encourages what you’re doing.
“When someone coughs before and during I hear screaming
'leave me alone'
'no ones thinking about you' - I don't get this one anymore but I use to (these are all repetitive thoughts and in some sense very intrusive).
'**** off' ”
So with that said, I have nothing against that, as you have every right to do so because you think we are sick mentally and want to help, however I would have like it if you were clean and open in the first place. I mean no disguises in your intentions would have been better… and don’t pretend to be a patmer anymore is much more comfortable for me. Now that we know who you are, let’s just discuss openly. It’s good to debate on a number of issues, and I welcome your presence if you admit it. I wish to discuss in a civil manner. I know you have good intentions so I welcome them.
By the way, I discuss my problem with other friends of mine.... they are open-minded. I believe you are too.
My first question for you would be, why did you think patm is a psychological disorder? I mean what’s the most convincing evidence that made you think that way about us?
Please ask me questions so we can debate this thing and hopefully come up some resolution or at least shed light on what is patm. Thanks.
Are you a psychiatrist or student
lol....again very flattering I but if I check now I can still see that I am in fact a 22 year old young woman.
I wish to god I was a student, at least i'd be able to get my degree and study like I have always hoped for.
....Or a psychiatrist...I mean holding down a stable job....that's one of my dreams and goals and ambitions.
Dfoe43 you were right about your comments earlier on about tammanna99 and then which led you to having an argument with eckiuME23. Your analysis of her was right with maybe the exception of your last comment, she is definitely not a psychiatrist . Let me explain……
Many many months ago I phoned her as she lives in London as so do I, my intention for phoning her was so we could discuss patm, have some understanding and support for each other, bounce of ideas etc etc
But when I rang her she passed it over to her father, who interrogated me for a little bit, then passed the phone back to her. I tried to have a conversation with her but she was pushing/forcing her ideas on me and not listening to me at all or not letting me view my opinion. She described her experiences and what she’s going through. She was on some sort of mental medication at the time and having I think some professional help. Maybe if I remember correctly she was under some kind of watch/supervision, but not 100% sure. But anyway, I never phoned her back because I thought she was not helping at all and didn’t get a good feeling about her. Only has her thoughts and 1 tracked not helping the cause of patm. I thought she was ‘possessed’ or something. I never rang her back again, then weeks later she rang me back and started ranting/lecturing and being weird again, at which point I politely asked her not to phone me back, which she agreed to. I really don’t want to offend her but I think she has issues that are even more than patm. She may have patm but she has a host of other deep problems with her too. I think she can communicate well in writing where she excels in but definitely not verbally or probably in any other way. I think she is ‘bit off’ or don’t have the correct marbles! she probably has psychological/mental issues too which are disturbing, she hears voices etc etc. I did not want to comment earlier to say you are right but did not want arguments all over this place. Tammanna9 I don’t mean to disrespect you but this is just my honest opinion. I think she can be intelligent yet at the same time not with it, if that makes sense.
Thank you for your honestly @StayStrongForever – thank you for sharing the information. That was reassuring as I knew there was something fishy about her story. As the psychiatrist said to me she was either one herself or guided by one. I see now that she is guided by someone. Poor girl. I understand now… let’s leave her alone. @Tamana9 – god bless you. I’m sorry that you had to go through in life with so many problems.
@All - BTW, I just came back from a Lab session and everybody was doing OK… not as bad as yesterday. I noticed that if I take a high dose of probiotics, it works but only for a few days and I have to refrain from it for a few days before trying again. It’s a strange problem as it seems to adapt to anything we throw at it.
This could be a chronic condition similar IBS, crohns, TMAU etc but its responses to anti-pathogenic drugs that make it unique. It’s explicitly pointing to pathogenic involvement. It’s the hardest problem I’ve ever faced in life. But don’t worry we are in this together and we’ll find our way out! Am heading out for another lecture…. Good day everyone!
You don't know me personally so don't throw accusations at me. Yeah, so we had a five minute convo. where you appeared half dead and I did most of the speaking. What exactly is your point? and what are you trying to get at? It seems to me PATM had gone straight through your head and isn't able to find a way out. I don't mean to be so crude but your comments came across very well lets just say the weren't very nice. Why don't we all have a conversation together so we can see who is off. Your description seems to resonate well with you so i'm not sure why you're fighting with me here. anyway I don't want to hear from you again. You don't know me and to be honest I am extremely articulate for my age - yes verbally!
I do have a host of other problems, you are correct on that - and that my problem is you!
for those who wonder if there's a body odor. yes there is. its really simple. like i said many post before. this bacterial infection goes from ur nose to ur stomach and there is where all the problems are. when this mix of mucus and bacteria hits ur gut. ur stomach tries to digest it which then creates gas. many of us have GERD thas because our stomach needs all that extra acid to digest all the fluids. then this gas its realised thru ur anus with no feeling whatsoever. this gas or whatever substance travels extremly far distance and its foul smell. lots of u have said that u noticed a bad smell when this patm started, well the reason u dont smell it anymore because over time ur brain and nose adapts to odors, i dont remember what is call but look it up its a real thing. so there. i would like to get into more detail about this. but i really dont like typing that much. i live in los angeles and i will be willing to meet with any of u that r close by to share info and talk about this. or send me a message maybe we can exchange phone numbers like i have done with other member of this community.
DFO43 ur really a piece of work man. i really dont like the way u talk to others. this forum was created to share knowledge and not to feel that ur the smart guy that knows all the answers. ORS whatever man ur just in denial u mentioned that u cant even eat dinner with others. because they will get up and have to bark or leave. do u think thats just because ur giving them allergies???? jajajaja its beacuse of the smell ur relasing they feel disgusted by it. im certanly not crazy im a really smart individual that has pint pointed the cause of this illness in my body. and i know for a fact that theres a smell asocciated with it the end.
yes i bought the vit d. im taking 1 dose of 10 000 everyday i got it at a natural store near my house . im doing the nasal irrigation with the GSE and let me tell u. i have notice a drastic change, im very conscious about my nasal dripping. and by the second day it had lower so much. its not def solution but its helping alot.
Ikarigera – The difference between you and me is that I’m a science person. I don’t speculate but rely heavily on proofs. Speculation is only done when there is no way to prove something.
I don’t know who you are but if you had the will to know your problem, you’d ask those that are allergic to you first before concluding. There is no better way to learn the truth but from the horse’s mouth, which means there is no better way to know whether people are allergic to you etc etc. then to ask allergic victims themselves. Who told you that patm (you) is caused by your stinkiness? Bring him to this forum, also take him to your doctor as proof!
Do you think you have the guts to do that? If you can, the results will surprise you… you wouldn’t come here to ask and speculate anymore. You’d know straight from that person. Now if you don’t trust anyone, perhaps your family, loved ones etc. then who will you trust? I know you don’t smell it either. No one in the world smells it other than your brain!
Try this; ask your siblings first, then your cousins why they are allergic. Build your confidence then ask everyone else. You will surprise yourself. I do understand you are new to this problem and just starting to explore some of the underlying details.
I guess you don’t read my post thoroughly, so lack many things but here is just two hints.
First of all, no doctor on earth has admitted to any odor from patmers but yes to halitosis and all odor problems etc. No instrument in the world has detected your invisible odor despite its super sensitivity. No one has admitted smelling that kind of odor to you! You haven’t smelled it either! If you did you would know precisely how to explain it to your doctor and he’d find that area in your body that emits it and stick his microscope in it to see what’s happening underneath. The reasons why you are speculating coz you yourself don’t even smell yourself and is guessing wildly based on what you presume is happening. Why guess while you can find it for yourself.
With the public sewer in your city, do you see the surrounding towns coughing and sneezing? They have more gas and poo than you produce in one hundred years. But do you see workers get sick, sniffle, cough and sneeze etc. They don’t!!!! Why!
If you understood all that, you’d know that your reasoning is beyond silliness.
By the way, for your information all humans’ farts and all anuses smell. It’s a biological fact, And its something that we don’t want to talk about coz it’s a fact and its very embarrassing to mention. Do you see people cough, sneeze, and sniffle when they go to bathroom or public toilet? Your story about your anus’ stench etc is just humiliating to hear. I really do hope that you didn’t tell your family that your anus stinks and it’s the source of your problem and unsociability – coz if I were your father I’d be ashamed. I really feel sorry for you because I know your family must be going through a hard time.
Actually there are things that can cause symptoms almost identical to the reaction that we see in people but I’ll let do your homework and find it for yourself. But we don’t know if it’s the source of our problem though – let alone possible.
ORS - http://en.wikipedia.org/wiki/Olfactory_reference_syndrome. Yes, unfortunately.. you are classified in that category. Go read the above definition, who knows it might help you out. Ask your doctor too. Given enough time and that you build the courage to ask you’ll be fine. If you read it, it describes exactly the hallucination that you’ve just described to us. It’s sad but I’m afraid it’s the truth. The good news is, you’re not the only with this false belief. A large majority believes this and that’s how WHO recognises it. OK.. enough of discussion.. I have to study. Good luck.
Tammanna99 I didn’t mean to cause offence with my comments but I had to do what I had to do and obviously see why you did not like them. At the moment, I am not willing to meet up with you because I know what I will be letting myself in for and not because of ‘your real identity and true to who you are come across so poor as to suck all your words up’.
Ikarigera – yeah I see what you mean about the private conversation, I don’t make it a habit to do this sort of thing, but I had to expose tammanna99 for what I knew of her. I think she has other problems and is not helping the cause of patm whatsoever.
Well said! I admire your courage to tell truth at the same time still give her the respect that she deserves. I admire that very much. Thank you!
@all - I was hoping that everyone in this forum will be as brave and to extend it further. Be brave and ask those that are allergic to you to help identify what/why they are allergic. It's only difficult for a second but your bravely will save you years of speculation.
Am working on an assignment so I'll be out of touch for a while. Good luck.
Hi grateful2011...How are things for you now? Are you 100% free after the dietary changes, supplements, etc? I'm one month into diet and have seen improvements, but still have a ways to go. Thanks for what you contribute to this forum.
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