Goodday everyone. I want to know from truthfulp and all the other guys who have used hopeful's methods of treatment. Are you healed guys? Please guys you don't have to disappear like this. Come back to report if hopeful's method has helped or not. Remember we are in this together. Truthfulp, come back man, atleast once. The last we heard from you, you were patm free. Has it continued that way? Your feedback will be valuable to us.
Hopeful, may you please list for me all the essential amino acids found on brown rice powder, Jarrow's formula. I failed to get brown rice powder here but I bought a powder that has 18 amino acids listed on the 'ingredients'. I just want to compare whether these amino acids are the same. Somehow Ive been taking this powder for 3 weeks now and there is a marked reduction in my patm. Lastly, God bless you all guys.
Bump, this procedure seems to make a lot of sense. I just bought some high-dose Saccharomyces Boulardii (Florastor Max), wanted to share this with the newer members
Hello hopeful12345 are you still there? Hopefully all is good, and there is hope for me. I Just wanted an small update on how everything is going now, since taking your 3 supplements in March 2016?I know 1person said they were taking those supplements and Patm came back even with eating properly?
greetings again hopeful 12345 can you tell me why you think taking saccharomyces boulardii which is n yeast itself while we are trying to combat candida which is also a yeast? can you give me some insight please and thank you. i am trying to look at from your perspective. i don't think being close minded will be a good component on my journey to being cured. your feed back is appreciated. thank you.
May I ask is it good to take at the same time probiotic with sacharomyces boulardii-is it like s.boulardii antifungal or is just a probiotic and is ok to take with another probiotic?
Hi JoelAnon, no problem! These forums saved my life, so I'm happy to pay it forward.
Unfortunately, I don't know what compounds cause people to cough. I wouldn't be surprised if hydrogen sulfide is one, as some people who have PATM also have TMAU, and one of its odors is a rotten egg smell.
I also can't recommend what tests to take, but I would imagine candida is the most important, as comments on these forums over the years have identified it as a key cause.
Sorry I couldn't be of more help, but good luck with everything!
Hey Hopeful,
Thank you so much for you input over the years. You have really lead the war against this horrible disease, and i really enjoy the positive outlook.
I'm just wondering if you were ever able to figure out exactly what compounds are causing people to cough. I've heard many people mention ammonia and hydrogen sulfide (H2S).
It would also be really helpful if anyone could outline what tests are important to do at a natural path or MD. Luckily i live in Canada, so i can push for whatever test is necessary without too much concern for the pocketbook. This is my current testing.
DONE ALREADY
1) Parasite Analysis (Negative) - Doctors Data
2) Candida Test (Positive) - Doctors Data
3) SIBO (awaiting results, probably negative) - Quintron
GOING TO DO
5) Hyperthroidism
Any input would be greatly appreciated.
I appreciate your response hopeful ! You have truly made my day when I saw your immediate response. Thank you again for the condoloneces. I unfortunately lost three friends in the massacre .... I haven't had time to grieve because of the PATM reactions. I can't wait for this to be over !
I have definitely had lots of detox symptoms ( brain fog, MIGRAINES :/ , mucus, etc.) I feel like the reacoins are getting worse. I work at ORMC, which was the hospital where all the victims were taken to, and to watch DR'S, fellow RN colleagues, as well as patient reactions are getting worse. Just wondering if it got worse for you before it got better.
I have been taking the Candida Cleanse like you said ! That's awesome ; I'm at least doing something right for a change LOL ! Thanks again for the response, and I will continue to update you all on my shirt PATM journey. I couldn't imagine if I had this for years ; it's heart breaking.
Have a good day Hopeful12345 !
Hello everyone!
Where do I start....Im 25 years old and just started experiencing the PATM reactions for a month now. My own roommates act as though I'm crazy and so in and so forth with my social friends. I completely understand the pain and AGONY of watching loved ones cough, sneeze, clear their throats, etc.
I Google "people are allergic to me" and found this forum. To much success from hopeful, I purchased Jarrow Formulas Btown Rice powder, Candida Cleanse from Purely Holistic, oxy powder, and the probitic from Jarrow Formulas . I have taken everything all at once on a Friday. The oxy powder was taken as directed.
I was just wondering how long the products should take in order for PATM to go away. My only concern is that I've been following the Candida Cleanse before I start my diet on the 20th of June. I've got Molybdenum Chelated as well as milk thistle and 100% Virgin cocount oil.
Please, hopeful or truthful, give me KNOWLEDGE !! Ireally want my social life back. Plus, I live in orlando, and I really DESPERATELY wanted to go to the HUGE vigIL today for the victims , but I am too embarrassed to go :/
Thank you for reading and for all the support on this forum !
Hope you're all enjoying the summer! I wanted to add two notes to the dietary restrictions I mentioned at the top of this post:
1) I know I said not to eat white bread, but whole wheat bread is okay. Also, do not eat anything breaded (e.g., chicken, fish, eggplant, cauliflower, etc.) because the bread crumbs have a lot of yeast in them.
2) I would stay away from any fruits except raspberries and blueberries, as most fruits have a high natural sugar content (green apples alone have 16 grams of sugar)!
Have a great weekend!
Found the postdoc responsible for the Mass Spectrometry Facility. Turns out they don't do biological samples like blood and breathe but she directed me to the right address of the research institution outside the University that are specialized in this area. I contacted them, but they require my research area and university I belong to.
I'm still thinking whether I should push this quickly or not because I'm feeling a little discourage because of one thing. Honestly, I want to know what it is but so far for the last few days I don't have it anymore. Patm has left me maybe temporary or forever, I don't know. I'm asking myself what's the point. If it shows up again, then obviously I'll be encouraged more to push on but I think I'm gonna have some rest for now and enjoy the freedom. I went to a restaurant today to have a meal and test my new freedom. It's fun!
Spend an hour chatting to an old man there and then the waitress, read magazines without worrying about anything. Got up after 3 hours walked slowly home. My gut feeling is telling me something is going to happen as it usual does for the last almost 30 yrs, but the last 3 days... NOTHING!
I'm worried that if I do get to use a GC-MS facility, there won't be anyone to sample.
I'm having a meeting tomorrow where all the workers would sit face to face for about 3 hours... my mind is always telling me something is going to happen because it has always been that way for a very long time. It's like I'm not accepting my new reality and freedom. I'm afraid of expecting too much or slacking and then find myself back in no time. Let's see what happens.
I wrote down my experience going to yoga today but it disappeared. Well it was nice. Nothing. No reaction! I hope it stays that way. We had dinner afterwards. I talked to everybody, had a plate full of vegetables and pasta, and I couldn't believe that nobody reacted, it was even better, not even nose touching. Absolutely nothing.Throughout the whole yoga session nobody moved but I could feel my butt and legs hurting since I've never sat cross-legged for so long. I think it was only 30-60 minutes, not sure, but it seemed to last forever. It was stress relieving though. I love it, it seems like I'm floating above the music. A friend of mine invited me in so I thought I'd go and also test how the medication is going. Enjoying a few hours of non-patm life is good. Let see how long it last.
Hey people just want to say that today was awesome at work. Patm disappeared apart from occasionally touching of their nose but you wouldn’t be able to tell. Absolutely no coughing, no sneezing, no clearing of throats and I get to talk straight into their faces. After that me and two co-workers came and had a meal, chat face to face for about 45 minutes, I didn’t eat though because I’m still insecure about eating anything right now. But we chat and shared a laptop… laugh throughout the whole time. It was nice to feel that way.
I assume it’s still there but probably minute that they can’t sense it. I wonder what will happen in 6-9 weeks’ time. It’s only been 3 days. I want to congratulate hopeful12345 for that bit of information and sharing with the forum. I also added two products which I don’t know whether it contributed or not at all. I know I should have tried them individually to see what works and what doesn’t but I was too busy with many things. I have the list on my previous post so try them one by one if you wish to see what works and what doesn’t. I've tried different combinations but this is the best so far.
I came around at Mass Spectrometry Facility to check but they were at lunch so I peeked through the door into the room where they have the GC-MS machines, it looked neat and massive. I’ll come sometimes tomorrow to work out the details.
Now I have a big dilemma on my hands, let’s say these supplements cures me (temporarily/permanent) before the sampling? What then? I’ll waste $500 only to get nothing from the GC-MS test. I think I’m going to eat a lot of junk a week before the sampling to make sure I’m at my worst.
Sorry this is the link.
https://drive.google.com/open?id=0B69NOR1ntkgQMzU0anNSWWsybjg
The following link shows what I’m trying to do. These are comparison of two breath sample chromatogram from a sick patient with H. pylori and a normal healthy person. What I expect when comparing is something like the high acetone intensity peak, shown on Figure 2 on one person, while totally absent on the normal person as shown on Figure 1. Or maybe something a little less like the peaks for 2-propanol, 1-propanol. Contrastly, if you see here 2-methylpentane is present on the sick person but not so much on the healthy person, not sure if it’s fragment or not. If that’s the case for us, it’s going to be very hard to identify, I’d need the their staff to help me.
https://drive.google.com/folderview?id=0B69NOR1ntkgQd2VMN0dycXl4blk&usp=sharing
Don't worry, it's just character translation errors… html recognises apostrophe as that. Sometimes there’s an error and it’s interpreted as a string instead so it appears as text. That happens sometimes when someone type on some word processor/editor and copy paste into the comment text box; the characters get translated wrongly. It’s a headache because some people prefer typing on external editors for fear of losing their comments sometimes from browser refresh and accidental pressing of a link on the page etc… happens a lot to me. Some people avoid it by pasting as plain text only.
Hey dude, I sent you a private message. I wanted you to comment on what I'm doing. Perhaps you'll see something I'm not seeing. I don't want to pay for all this and find out later there's something I did wrong or missed and redo the whole thing all over again. Finding leave time is really hard since I've asked for too many leaves this year. If I do get 'leave without pay' and do all this but fail, I'll never get another leave to redo it again.
I mean is it possible for you to duplicate the same experiment I'm doing, over there if needed?
I wrote a letter to the Mass Spectrometry Officer at the facility asking for more details and pricing. It turns out there’s heaps of test other than GC-MS. They thought I was a PH.D student but they’ll be surprised when I turn up as someone with no degree in Chemistry at all, which is why I’ll need their staff’s aid. I hope they don’t tell me last minute unexpected things when I do turn up.
In any case the information I’ve received so far is promising but I’ve learnt from past experiences not to expect too much because anything can go wrong on the way but just go with the flow.
Here’s what I’ve learnt from their provided information, my idea of comparing the two samples of breath is actually possible. Second, every molecule will show up on the chromatogram, precision and details will depend on various factors. Third, the detail results are kept in backups so it can be analyzed quite extensively by the person who owns it [me] for years.
Here’s the downside. Firstly, it cost, not much but still it’s money. I’m looking at about $500, that includes the different samples and staff additional help in preparation of samples.
Second, the actual analysis isn’t straight forward as I have previously thought, it’s a little complicated than that, especially when dealing with fragments. Luckily programs will help in identifying those.
They’ve directed me to one of the software they employ and I’ve used an equivalent open source version to familiarize; I can actually work on a sample spectrum myself and identify the differences in peaks between the two samples given that the sufferer (myself) and the control sample from a non-sufferer must have a huge difference in their peaks regarding the particular compound of interest.
However, if the assumed patm molecule’s [patm] intensity is too low on my sample, then it will be extremely hard to identify. In that case, I’ll be totally reliant on their staff or another chemistry personnel from somewhere else that knows the stuff, to help me identify it. Though I have faith that this is the case [immense intensity of the patm molecule], given the reaction that we have seen so far from people, scientifically there’s always room for things to work counterintuitively. For example, some animals produce very toxic chemicals and though they’re very potent, the observable effect is huge in comparison to the concentration level. Let’s hope this is not the case for us because it will be very hard to find it.
I’m trying to look for a perfect time to take leave for a month or two, that is if I’m allowed this year, so I can indulge myself with a huge meal of junk at least 3-4 days to maximize it before going to taking samples because there’s shouldn’t be any room for errors. I’ll have to find someone to take the same meal and at the same time with me to minimize differences in the two samples for easier comparison.
I encourage anyone who has access to any facility to do the same. There’s a possibility that I’d miss something so having more people doing the same thing minimizes the error rate. The fact that I have access to this facility means you guys will have similar facilities near where you live. Please do attempt to check and help out.
That is true Interpol89, but I have some other assumptions which I didn't want to discuss until later but I'll say it now. L-Glutamine's job is summarized by many as plugging holes in the gut... actually it doesn't do that as there are no holes on the lining of the gut unless one has really bad ulcers, but it does help filters digested ingredients really substantially by rebuilding the overall health of the gut. So that might explain a large part of why my urination has gone white.
The part I don’t understand is why is it that it takes a little effort to urinate. Nothing hurts (in reality it feels good) but it just needs a little squeezing for it to flow as fast as I normal do. Also, because of that very fact, I get a hard on really easy. Both of them, I don’t understand. My girlfriend notice this as I desire more intercourse too often than normal.
I have sent you a private message.
Hi guys. Hope u are hanging in there. It's been a while since I last posted. Im formerly known as WorsethanJob on the old forum. Something went wrong and I can't post under that name anymore. I'm now on year 24 with this damn disease. In the last three years I've gone through some stressful events in my personal life and this has not helped things in the department if this disease, lol. And I'm a bit busy with my uni studies in biology so I wont be very regular due to these commitments. Im trying to pursue micro biology to PHD level so that I can be better equipped to study PATM.
@ Pogo, hi dude. You can get oxy powder in SA from clicks or pharmacies.
So long guys. You are the best. Just know that you are not alone in this battle. God is by your side.
Are you guys aware that medhelp web interface switches back and forth between the old and the new one? For me the old one is better. The new one makes it harder to see who is replying to whom and sometimes harder to navigate. What do you guys think?
If you’re trying out Sunrider products, don’t bother. There were other brands but I can’t remember their names. I’ve used them for years as I had a relative who was a distributor. We drank them for health benefits as we were told back then but I really can’t tell the difference. Many of the patients who used it for the claimed medicinal purposes have died all of the sudden after some years. We aren’t sure if they died from their own diseases or an accumulation of toxins from the Sunrider products. The rumor is going around our area that some of the herbal medicines is the cause. The fact is, none of us are sure because there was no evidence, but we know the herbal medicine never helped any of them except maybe psychologically. Your nutritionist is probably giving you something different but if it’s Sunrider, just forget about it and save your money. I really hope it is something different.