Pulmonary Hypertension Expert Forum
Is IPH a possibility?
About This Forum:

Pulmonary hypertension is a condition associated with high blood pressure in the arteries that connect your heart with your lungs. It is a serious condition for which there are many emerging treatments but no definite cure. In this disease, the blood vessels that carry oxygen-poor blood from your heart to your lungs become hard and narrow, which causes your heart to work harder to pump the blood. This forum is a place to ask questions about Pulmonary Hypertension. Some examples are: What caused me to get pulmonary hypertension? How is pulmonary hypertension diagnosed? What treatment options are available?

IMPORTANT!! If you have a question that requires immediate medical attention, or if you think you may have an emergency situation, please call your doctor or 911 IMMEDIATELY!

Font Size:
A
A
A
Background:
Blank
Blank
Blank
This expert forum is not accepting new questions. Please post your question in one of our medical support communities.
Blank Blank

Is IPH a possibility?

I'm 22, female, normal weight. A year ago, I started getting extreme exercise intolerance and tachycardia during a flu. These symptoms did not entirely go away afterwards and I was diagnosed with postural orthostatic tachycardia syndrome and tendency towards neurocardiogenic syncope.

However I have had a very bad time with it, haven't responded well to medications and am still housebound. Initially I was only breathless during exercise, but now I often spend hours sitting down very short of breath, sweaty, nauseous and unwell. Since February 2013 I have had chest x-rays, chest CT,  exercise EKG, echocardiogram and CT angiogram. I have a pulse oximeter which usually reads 98 or 99 at rest.

Would pulmonary hypertension have been spotted or ruled out during those tests? I am aware that POTS in and of itself can cause breathlessness, but mine seems to be particularly severe. Thanks.
1884349_tn?1353818598
Hello and welcome to the forum.

While I can not say for sure, I have a very low suspicion for pulmonary hypertension in your case.  The vast majority of patients with pulmonary hypertension will have an abnormal ECG and an abnormal echo (ie a big right ventricle, etc).  Based on your report, sounds like these were normal.

What you are going through sounds very frustrating but I would continue to slowly go through the evaluation to see if you find anything (ie check thyroid tests, look for anemia, etc etc).  But, I know easier said than done, if after all testing is done and everything checks out normal, I would try your best to truly convince yourself that you are ok (because in that case you probably are), and slowly build back up your stamina and endurance.  And also ask yourself if you could possibly be suffering from stress/anxiety---because physical manifestations of these conditions are absolutely real and can be quite debilitating.  But treatment ultimately helps a lot.

Wishing you the best.

Dr. Rich
Blank
This Forum's Experts
1884349_tn?1353818598
Jonathan D. Rich, MDBlank
Northwestern Memorial Hospital
Chicago, IL
MedHelp Health Answers
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
RSS Expert Activity
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank