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Avatar universal

I have serious problems.

Hello, I don't know what section to put my problem in, because it's a really big problem and affects a lot of areas of my life. Stress looks like a good section. I just came back from the emergency section of the hospital, because I woke up in my sleep and I felt like I was dying. I woke up and I felt like my heart wasn't even beating. I felt like I was just slipping into death or something. So I sat up on my bed and put my feet on the floor for a few minutes and tried to go back to sleep. I just felt like my heart wasn't even beating, so I tried to feel my pulse and I tell no word of a lie I couldn't even feel it. It was that low. So I got out of bed and thought maybe I should walk up and down to get my heart working, but I didn't want to overdo it in case I have a heart attack. Then I started feeling pain in my chest and then all the sudden it did the complete opposite. My heat started pounding really hard and I felt dizzy and I just felt like I was going to kick the bucket. I was convinced that I was dying, so I got in my car and drove to the hospital.

The hospital staff treated me rudely, and as if I was just there wasting time. The receptionist was patronizing me and  when the doctor came out, I expected to call me in somewhere and give me a checkup. I mean it was 2am in the morning. I went to the hospital because I had a serious problem. So he walks over to me with his hands in his pockets and his eyebrows raised and says what's the problem? I didn't even know how to answer. I CAN read body language. It was obvious that he was not interested in my problem. It took me several moments to even utter a response, because I was confused. I was expecting him to call my name and then have a private discussion. Was I do tell him my problem in the waiting room?

So the doctor was basically trying to convince me that there's nothing wrong with me. I said are you going to check me up? You're a doctor. He said, if I give you an ECG and it shows up fine will you go home? I said there is something wrong with my heart. I explained that I went to another doctor about this problem a couple of years earlier, but tat doctor told me I have panic attacks. I have been dealing with this ever since and I can't get any help from doctors, they wont even check me up! I said can't you check me or something? Something is wrong!

I don't have panic attacks! Panic attacks are where you are scared and nervous and sweaty and all that. I am not those things. My chest just plays up and my body feels like it's about to shut down. I have so little energy when this happens that my body shakes when I try to move -- as if it is in shock or something. When I mention my body "shakes" to doctors, they misunderstand me. They think they know it all. It is shaking from lack of strength, not nervousness.

This has been going on since my mid 20's now and it's getting worse and worse. I can't sleep because every time I try to sleep I wake up and my hearty isn't beating and I am not breathing and I feel like I am going to die. It's like when I sleep my body over-relaxes and starts dying. Then I wake up and thing I am dying! Then I try to sit up but my body is only half working and my heart isn't beating and I can hardly get a breath, like I am fading away. It's HORRIBLE and I can't get the doctors to even check me up! I have has ONE EEG two years ago,

I go to the doctors and they wont look at me. I tell them there is something wrong with me. Maybe I have an irregular heartbeat? Maybe I have a blocked artery? Maybe blood pressure problems? Maybe a blood disease? I don't know I am not a doctor. They must be able to check people up, they should know what they're doing. I am going to die in my sleep ANY night! There is something wrong with me! I am not having panic attacks :(

Also, I keep waking up in the middle of the night and I can't move. That happens too. I wake up and I am stuck to the bed and I can't move. I am awake and I KNOW I am not dreaming. Once I heard someone laughing in my head while this was happening. I think I am being attacked by spirits or something. Another time the whole room lit up blue. Another time this happened I woke up and my whole neck was swollen. I told the doctor about this and he says: Oh paralysis! YEAH DUH! But How do I fix it? I can't live like this, I am cosing down here. I can't sleep. My whole life is falling apart! TRHis has ben going ob for about six years :(

Please if there is a doctor here please give me some advice. My doctors wont listen to me! As soon as I mention the last doctor says panick attacks, they just join the bandwagon and they wont even look at me. I try to tell them I don't ahve panic attacks. I am not nervous. I have some sort of physical problem not a mental problem. Thereis something wrong with my body. It's not working right. Something is loose somewhere. Some wires crossed or something. One last thing, once when I was struggling to move in bed and I was stuck I got out of my body -- I tell NO word of a lie! I sat up out of bed and put my arms out in front of me, but my body was still lying down.

Man I am going nuts. I really am. Someone has to help me please. I think aybe I am gettin g abducted by aliens or spirits or something and maybe they have a special way of sedating people. I have a mark on my leg when I don't know where it came from and also one on my arm. I also often wake up seeing lights and things on my room. I know a doctor wont agree -- but I SAW THESE THINGS! I am not joking.

Man I am upset! No one knows anything! :(

I don't know what to think or what do to. My life is a mess I can't hold down a job and I spend my last 20% of sanity just holding up a front to seem sane. But I am losing it. No one really knows how I feel, I don't tell anyone. Please help me. Please tell me something.
3 Responses
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149081 tn?1242397832
It is common for narcoleptics to function normally- It is called " Automatic Behavior".  That is where I can be filing paperwork and doind it correctly but my brain is somewhat dozed off. My body however is completely awake and functioning. Sounds strange but it's true.
  Narcolepsy is NOT what they portray in the movies- some people that have severe cataplexy can drop to the ground and sleep, other people may have narc and not  cataplexy but have Hypnagogic hallucinations as well as sleep paraylysis. Google those words and see if they fit your description.
  I also want to add that yes anxiety & depression can play a role in sleep or lack there of but if you're being treated properly and cannot still sleep then you more than likely do have a sleep disorder and need to be treated by a sleep specialist.
  good luck.
Helpful - 0
Avatar universal
Thank you. I don't have narcolepsy, because I am a person that takes forever to get tired. I don't even feel tired until I have been awake for 24 hours.

People say go to bed! I say I am not tired how can I got to bed? So what I do is wait until I am so tired I have to walk to my bed with one eye closed so that I can get sleep. That is the best way for me to get sleep.

However, fitting that in with a 9-5 job is impossible -- so for the last two years I have been making money online as a web developer. Before that I was a web developer for a software company.

I like to work from home because that was I can stay up for 24 hours and sleep for 8 to 12 hours, and you might imagine that those hours don't fit into a 24 hour period. So I have sleep cycles of about 36-40 hours. Sometimes I go to bed at 2am, sometimes I go at 2pm. Just when ever I get tired I take the opportunity.

However, lately I have lost one of my contracts and I had to go and do labor hire work with an agency for the money and I am trying to get sleep and work and make it to work on time, but I KNOW I am going to lose my job.

See, I will wake up at 7:00am and turn my alarm clock off. Then I open my eyes again and it's 12PM and I say ^$@#$#% DAMNIT! LOST ANOTHER JOB! &#%^%^#!!!!

But I can't help it! I don't even remember turning the alarm clock off!

I have been living like this for years. I need a rest. That's what I need. I need to go somewhere for a whole year with no troubles, no schedule no bills to pay no nothing so I can just chill out and relax, because this whole situation is wearing me down too much.

See, I have to go to work in the morning. It's 10:09 PM now and I ahve to be up at 5. After last nights ordeal I didn't get ANY sleep, and I finally went to sleep when the sun came up, but then I got a phone call at 12:00PM so I got up, because I kenw I couldn't sleep all day because I had to work the next day.

Anyway, right now there's NO way I can sleep, and I have to be up for work in 7 hours from now, and the only sleep I had in 2 days is the 4 hours this morning :(

So what will happen is I'll go to work, I'll be exhausted and then when I come home I'll be SO tired and run down that when I try to go to sleep I'll start having a heart attack again.

I am sick and tiredo f this! I don't want to work for someone. I want to work for myself so I can get sleep when I need it. When I have to go to sleep I have to sleep NOW -- not in 8 hours, not 12, not 3. And when I can't sleep I can't go to bed,...

aaaah. pah! I give up.

Helpful - 0
149081 tn?1242397832
These are common things associated with sleep disorders. You should try to get a referral to a doctor trained in sleep medicine. You really need to be evaluated with an over nite study.

  The paralysis and hallucinations are very common amoung people diagnosed with narcolepsy. But like i said you need to see a sleep specialist.

   Check out  these sites-   talkaboutsleep.com           sleepmedicine.net

  good luck!



Helpful - 0
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