My husband and I are considering a move to London, but I'm really concerned about finding a doctor that will test Free T3/Free T4, prescribe Cytomel, take my symptoms into account and ignore TSH.
At six months since starting medicine for Hashi/Hypo, we moved to London. At the time, I was taking T4 only. On my first visit/labs they reduced my T4 dose based exclusively on TSH which was in range (.8), but they wanted my TSH over 1. I had stockpiled Levoxyl in the US before going and we happened to leave the UK before I ran out which was good since I also had no options as to what brand of T4 to take and they can give you a different brand each time you get your script filled.
We moved back to the US and I have since been put on Cytomel 10 in addition to Tirosint. I've now been taking Cytomel for a year. However, on both, my TSH below range, but when my T4 meds have been reduced from 100 to 88, my TSH was still below range and my Free T3 and Free T4 went to the bottom of the range so my doctor has put me back on Tirosint 100 and left Cytomel 10 the same. He's waiting for my TSH to go up, but I know that it wont and I still have exclusively hypo symptoms like constipation and cold feet. I don't have any Hyper symptoms.
I have not been symptom free since going Hypo because initially (for three years) I was given T4 medicine only despite my T3 being below range. I need both T4 and T3 and need to find a doctor that will give me both, test my FT3/Ft4 and consider my symptoms.
If you have a doctor or UK website (similar to this) you can recommend, please send me a message. At this point I'm afraid to move to London and think my health will suffer there. I also need to find out if I can get Tirosint there, but I don't mind which T3 brand I can get, if I can get it?
I guess I'm looking for a personal doctor recommendation if anyone has one.
I know I can get Tirosint in Germany, but can't seem to find it on UK Thyroid information sites and I've not found any site out of the UK that's as good as this one.
Right now my TSH is supressed and my FT3 and FT4 are both low and I don't know why. I need to find a doctor that won't have the knee jerk reaction of lowering my medicines or take me off Cytomel based only on TSH.
Here in the US, it was very difficult to find a doctor that prescribed Cytomel and is (now) willing to consider Free T3/Free T4 results and symptoms.
I don't want to have to go though testing doctors because I will have to pay for all of it out of pocket and based on my last experiences in the UK, the risk of them reducing my meds based on TSH ONLY is great.
Over the past 4+ years I have collected a number of member recommended doctors. I have 3 in the London area. I can't guarantee everything you are looking for in a doctor, from the somewhat limited info I was given; however, I think these names would be a good place to start your search. I will send names by PM.
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