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Just found you all

I was born with only one thyroid and have been on meds most of my life. two years ago the Dr.  found a mass growing fast, my good gland had to come out. I knew it would be hard getting the medication right, but this is becoming a nightmare. Hair is falling out, sleep pattern is off, weight change,mood change, body aches,low energy, mind wonders, have to take a B12 shot that only helps for about two weeks, last time blood work was in the normal range. (what ever normal is) For 40 years I've been to Dr's with my thyroid problem and changes. Any one have any suggestions on what to do next?
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649848 tn?1534633700
COMMUNITY LEADER
I'm sorry, that's still confusing, because it's normal to be born with only one thyroid gland.  It's a butterfly shaped gland located at the front of the neck, which consists of 2 lobes that resemble the wings of a butterfly and the isthmus, which is equivalent to the body of the butterfly.  

Could you mean that your thyroid gland had only one lobe?

Can you tell us what medication(s)/dosage(s) you are on?  
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Avatar universal
I was born with one gland, they found this out when I was 3yrs. Have been on med since. My husband is back to active duty now and it's hard to find good Dr. I agree with what you and gimel say about the so called normal range.

I will have to find my last lab report, going to a new Dr in two weeks, we have just moved again.

It's so wonderful knowing I'm not along. Thanks!
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649848 tn?1534633700
COMMUNITY LEADER
You said "I was born with only one thyroid and have been on meds most of my life. two years ago the Dr.  found a mass growing fast, my good gland had to come out."

I'm kind of confused; we are all born with only one thyroid gland, which consists of 3 parts - 2 lobes and 1 isthmus.  Do you still have part of your thyroid gland left?  

Most of your symptoms indicate that you are still hypo, so as gimel suggested, please post your latest thyroid levels, with reference ranges.  

Can you also tell us what your latest B12 levels were?  Have you been diagnosed with Pernicious Anemia?  I have PA, along with Hashimoto's induced hypothyroidism.  I have to inject B12 weekly in order to keep my levels high enough to feel well.
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Avatar universal
First thing, just because your thyroid test results are in the so-called "normal" range does not mean that is adequate for you.  The ranges are too broad.  Many of our members, myself included,  report that symptom relief required that Free T3 was adjusted into the upper third of its range and free T4 adjusted to around the midpoint of its range.

A good thyroid doctor will treat a hypo patient clinically by testing and adjusting Free T3 and Free T4 as necessary to relieve symptoms, without being constrained by resultant TSH levels.  Symptom relief should be all important, not just test results.  You can get some good insight into clinical treatment from this letter written by a good thyroid doctor for patients that he sometimes consults with from a distance.  The letter is sent to the PCP of the patient to help guide treatment.

http://hormonerestoration.com/files/ThyroidPMD.pdf

What thyroid med are you taking and the daily dose?  Also,if you will post your thyroid test results and reference ranges shown on the lab report, members will be glad to assess the adequacy of your testing and treatment.
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