Aa
Eye Concerns
I was dignosed with graves last summer and had the rai in sept - i went hypo in nov of 2006- In June i had blood work done and my antibodies were very high - i am on 125mg synthroid- I just went to the eye doctor and they advise one of my eyes are starting to buldge - and that i need to have my blood work done again as they think something is wrong - my blood work in june had my tsh at 1.59 - my endo seems to think that the eye doctor needs to fix this on there end - i am very confused - does anyone else have this problem - i am scared about my eyes.
because it is caused by separate antibodies than Graves' antibodies. and anyone with this antibody can get TED - hashi, people taking armour, etc. Is just more prevalent in Graves' and RAI does not cause TED. Smoking is not good and aspirates TED as well as Graves' symptoms.
October is breast cancer awareness month
October is breast cancer awareness month
Thank you for making feel better - when i see the pictures on the internet it just makes me crazy - when people look at me they can notice a change in my eyes - they think i have a lazy eye - but what the dont realize is one eye is buldging - it bugs me that people can notice a change in my appreance. I will update you once i receive my blood work and go back to the eye doctor. Thank you again for answering me.
Try not to be too scared. While GED is uncomfortable and inconvenient, it is not sight-threatening in the vast majority of cases and I have never noticed it to be painful. If you are being followed by a eye doctor who has experience with this problem, you should never come close to the point where you need to worry about your eyesight. Hopefully, you only have a mild case and it won't get any worse that it already is. Not everyone who has GED gets as bad as some of the pictures on the internet show.
Try not to worry. I know that is hard to do, but it really only makes your anxiety level higher, and many thyroid patients already have enough anxiety for ten people, just the nature of the beast.
I hear you about the long year and the frustration. Don't let it get the best of you. Your TSH seems to be decent, it is important to keep your thyroid levels under control to minimize the impact on your eyes (I don't know why exactly, but my eye doc is always asking about my thyroid levels).
Try not to worry. I know that is hard to do, but it really only makes your anxiety level higher, and many thyroid patients already have enough anxiety for ten people, just the nature of the beast.
I hear you about the long year and the frustration. Don't let it get the best of you. Your TSH seems to be decent, it is important to keep your thyroid levels under control to minimize the impact on your eyes (I don't know why exactly, but my eye doc is always asking about my thyroid levels).
I am going for blood work this week - my doctor said i went from graves to hasi - i have a feeling of sand in my eyes but no pressure behind the eyeball- i am very scared - it has been a very long year and i am feeling fustrated - i figured after the rai all would be good which is what i was told - but its not. Only people who are going through the same thing as me understand - some days it is just very hard to hold it all together - i feel like this disease it taking over me.
This could very well be Graves Eye Disease, or it could be something totally unrelated (for your sake, I hope it is unrelated to your thyroid/Graves).
I would guess the blood work they are suggesting is to test for the antibodies that cause Graves Eye Disease. These are different antibodies than the ones that caused your Graves last summer. The blood tests will give a clue as to what is going on with your eyes. You need to see an ophthalmologist who has experience with Thyroid related eye problems if the antibodies test comes back positive. The antibodies cause a fatty substance to be deposited in the muscles behind the eye which is what causes the eye to bulge out of the socket.
I was diagnosed with Graves a two years ago March. I opted for total thyroidectomy as I already had fully developed eye disease as well. My endo advised against RAI for me because I already had eye problems and RAI can make it worse.
Do you have any of the other symptoms of GED? Gritty or sandy feeling in the eyes? Constant tearing? Feeling of pressure behind the eyeball? If you do, it would be wise to get tested. Once diagnosed with GED, there is no cure, only treatment of symptoms, and possibly surgery once the eye changes have stabilized.
My every hope is that you don't have GED. It is a disease that requires a great deal of patience (my theory - since I never had children, my patience lesson came from this darn eye disease). Good luck to you.
I would guess the blood work they are suggesting is to test for the antibodies that cause Graves Eye Disease. These are different antibodies than the ones that caused your Graves last summer. The blood tests will give a clue as to what is going on with your eyes. You need to see an ophthalmologist who has experience with Thyroid related eye problems if the antibodies test comes back positive. The antibodies cause a fatty substance to be deposited in the muscles behind the eye which is what causes the eye to bulge out of the socket.
I was diagnosed with Graves a two years ago March. I opted for total thyroidectomy as I already had fully developed eye disease as well. My endo advised against RAI for me because I already had eye problems and RAI can make it worse.
Do you have any of the other symptoms of GED? Gritty or sandy feeling in the eyes? Constant tearing? Feeling of pressure behind the eyeball? If you do, it would be wise to get tested. Once diagnosed with GED, there is no cure, only treatment of symptoms, and possibly surgery once the eye changes have stabilized.
My every hope is that you don't have GED. It is a disease that requires a great deal of patience (my theory - since I never had children, my patience lesson came from this darn eye disease). Good luck to you.
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