Hi everyone,
This past year I have gone through the wringer, health wise. In September, I was diagnosed with a pituitary tumor that has since then been removed. I took the semester off from college for my surgery and then for recovery. I started to feel normal again around January and decided to go back to school. Two weeks into classes and I crashed. My constant fatigue returned along with my terrible migraines, Lighted headness/ dizziness, depression, brain fog, and lack of concentration. I also began to experience new symptoms I had never felt before with my tumor, such as heart palpitations, cold semsitivities, dry skin, memory problems, and inability to find words, constipation, and swelling in my thyroid and neck area.
I went to my endocrinologist and she ran a thyroid panel. My tsh, t4, and t3 were all the the "normal" range except my TPO levels were elevated. She proceeded to call me an idiot for thinking I have something wrong or that my elevated TPO levels were an issue. I continued to jump from doctor to doctor trying to find a solution to this problem.
My latest results indicate my TSH and Free T4 levels are at 1.2. Free T3 at 3.2 and my TPO and TgAB levels continue to double. In my latest visit with the fifth endocrinologist Ive seen, the doctor did an ultrasound of my thyroid. She then told me that judging by my ultrasound, it indicates that I have Hashimotos. Also the thyroid nodule I did have, is no longer there. When she received my results from my latest lab test, the doctor told me to see a neurologist for my pituitary gland, even though my gland is in tact bc of my excellent surgeon and is completely functioning. She disregarded my symptoms and said I was fine. Obviously I am not. I was forced to take another medical leave from school as these symptoms are near debilitating. I feel worse then I did with my tumor, which is hard to believe.
From my extensive research, I believe to be a euthyroid Hashimoto's patient, yet all the doctors i see refuse to listen to what I have to say. If anything aren't my tsh levels low? The range (0.8 to 4.0) is so broad, I feel that you can fall anywhere on the spectrum and be labeled as normal. On top of that, my thyroid antibody levels continue to rise. I have a history of autoimmune disease in my family so this is a bit concerning to me.
I don't know what to do or where to go. If anybody has any advice or tips or anything, please feel free to reply.
Thank you for listening to my rant!