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HyperThyroid Comes and Goes, how to handle it?

HI Everyone. New to this forum, though member on others here on the site.

I was diagnosed with Hyperthyroid about a year and half ago. Took about 3 months for them to finally figure out what my problems were. Very fustrating to be diagnosed with anxiety problems when I never had those issues before thankfull found a great doctor who knew what to look for!

My question is, my hyperthyroid comes and goes. I kept a check on my TSH T3, and T4 every few months. Its very fustrating to be fine for a couple months and then my symptoms go into overdrive and they cycle keeps repeating itself. My symptoms are racing heart, all over shakiness, weightloss ( that I put back on when my levels go normal) some anxiety and diziness at times. My endocrnologist will not treat me for the hyperthyroid because I go fom normal to out of whack. He feels its not a major problem and I deal with it the best I can. I have done the uptake and scan, I have had an ultrasound and all the good stuff. No nodules were found, nothing out of the ordinary that would cause this. No Graves Disease. I seem to think my hyperthyroid may be stress related because when I am under a great deal of stress my symptoms seem worse.

Does anyone else have this type of hyperthyroid where it comes and goes? How do you deal with your symptoms and keep your sanity? My internist treats me with beta blocker ( Aetnolol) and Lorazapam. I choose not to take these because I dont think its a good idea to keep starting and stopping heart medication! I can imagine thats gonna cause my heart issues? How does your doctor treat a hyperthyroid that comes and goes?

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Avatar universal
Hashi's can take years, or even decades, for the antidoies to cause enough damage to make you symptomatic.  So, "early stages" can go on for years as well...depends on the rate of progression of the disease.  

Do you know if you had elevated antibodies with your postpartum thyroiditis?  PPT is considered by some a "variant" of Hashi's.  It's possible (just guessing here, of course) that the stress of pregnancy and/or childbirth precipitated a hyper episode, you went into remission after the stress had passed, but the antibodies finally caught up to you a couple of years ago.

It might be worth testing both antibodies to see what you're dealing with.
Helpful - 0
215461 tn?1331862765
I had it for the last year.  Even when I was "normal" I had an uptake scan that showed I was hyper.  I pretty much spent most of the year hyper.  They talked about block and replace with me, but my thyroid bounced around from hyper to hypo to normal to hyper that I was a huge mess.  THen I started choking with my goiter and they finally removed my thyroid a few weeks ago.  The bouncing around is HORRIBLE for your body.  I also was tested for Graves once, so I don't know what made me hyper all the time.  Hashi's isn't supposed to make you hyper forever.  I pretty much lost a year of my life to that.  All the docs told me I had hashimotos toxicosis (well the U of M ones) and that it had to get RAI or surgery.  The surgery told me due to the nature of my thyroid, RAI would have been a horrible choice for me.  The block and replace might work for you it is just difficult and with you switching back to normal so fast I am not sure it will work well.  I hope it does though, and you can avoid this mess.  I understand what you are going through and I hope it gets better.
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Avatar universal
Hi thank you for the response. No, I do not believe that they have ever tested me for TPOab, but the Tgab sounds familiar. I became hyperthyroid for a short period of time after the birth of my first son, 8 years ago. Then, it went away for several years. To only come about 2 years ago again where is keeps coming and going. Would you consider 2 years with hyperthyroid early stages? Its strange, my immediately family all have hypo and they can be treated very simply with meds. My father, mother and younger sister all have hypo, but yet I get stuck with the hyper and its like pulling teeth to keep real treatment to make it go away for good.

I will look up block and replace therapy a little later, curious to see what it is. Never heard that phrase before.
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Avatar universal
Have you had TPOab (thyroid peroxidase antibody) and TGab (thyroglobulin antibody) tested?  Hashi's is traditionally associated with hypO, but in the early stages, there can be swings from hyper to hypo.

Stress is a huge precipitating factor in autoimmune disease.

Has your doctor ever discussed "block and replace" therapy with you?  You might try googling that and doing some reading.
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