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Hyperthyroid with Hot Nodules/Goiters low TSH
Hi, I have several goiters and Hot nodules. Very tired, getting severly depressed, losing hair, (I know this is weird, but I have gained weight) and very dry skin. I have low TSH and slightly above normal T3 total. My T4 Free and T3 Free are normal. I seem to get worse as times goes. I have been fighting with this for nearly 4 years now. My goiters/nodules are also benign, however, I am just ready for them to get my thyroid out. I don't sleep at night. My heart races all the time. I have palpitations and I am so exhausted. This is really beginning to take a toll on me not just physically, but mentally. Now the back of my heels hurt when I lay down at night and my feet hurt when I walk. I only have to walk a few feet and they start hurting. I had to quit my job because I could not deal with the stress! I would break down and cry at my desk. How do you convice the doctor to take it out?!
Best Answer
I have been to 2 endo's in the past 4 yrs. In the beginning I was put on Tapazol and the other endo stopped it. I have not been on any meds in over 3 years. They always check my Free T3 & T4 and TSH. I don't know if they have checked my antibodies at all. Here is my info:
Bloodwork done 09/2010
FreeT4 - .86
TSH - 0.24
Last bloodwork 12/2010:
T4 Free - 1.2
T3 Free - 3.4
T3 Total - 183 (high)
TSH - 0.20 (low)
Uptake scan taken in September 2010 - uptake at 5 hours is 10.6% (dont know what that means). There is a hot nodule with increased uptake at the lower pole of right lobe and a 2nd nodule at the lower pole of left lobe with rotes of the decreased uptake throughout remainder of the gland.
Right lobe -3 nodules, largest measuring 1.5 cm x 1.3 cm x 1.2 cm.
Mid right lobe - cystic 7x7x7 mm
Mid right lobe solid nodule 12x12 mm
adj. solid nodule 5x6 mm
Left lobe - heterogeneous nodule 1.5 cm x 8 cm (in 03/2009 - 1.4 cm x 8mm x1 cm
(makes me wonder if they incorrectly put cm instead of mm or vise versa)
Left side of isthmus - 4 mm
2 small nodules measuring 8 mm solid, several tiny cysts
I also had Bloodwork done for FSH levels and they were high. 142.7
Bloodwork done 09/2010
FreeT4 - .86
TSH - 0.24
Last bloodwork 12/2010:
T4 Free - 1.2
T3 Free - 3.4
T3 Total - 183 (high)
TSH - 0.20 (low)
Uptake scan taken in September 2010 - uptake at 5 hours is 10.6% (dont know what that means). There is a hot nodule with increased uptake at the lower pole of right lobe and a 2nd nodule at the lower pole of left lobe with rotes of the decreased uptake throughout remainder of the gland.
Right lobe -3 nodules, largest measuring 1.5 cm x 1.3 cm x 1.2 cm.
Mid right lobe - cystic 7x7x7 mm
Mid right lobe solid nodule 12x12 mm
adj. solid nodule 5x6 mm
Left lobe - heterogeneous nodule 1.5 cm x 8 cm (in 03/2009 - 1.4 cm x 8mm x1 cm
(makes me wonder if they incorrectly put cm instead of mm or vise versa)
Left side of isthmus - 4 mm
2 small nodules measuring 8 mm solid, several tiny cysts
I also had Bloodwork done for FSH levels and they were high. 142.7
Wow I'm so sorry you are feeling that way and I can understand you wanting it out! Just a few questions, and these questions will help pain a picture for the rest of us that will respond;
~How many endo's have you had over the last 4 yrs?
~I know you have nodules, but have they checked your antibodies to rule out autoimmune thyroid disease?
~Does your endo only dose you by your TSH?
~Are you taking beta blockers to slow your BP/HR?
~Are you on ATD's and if so how long have you been on them?
~How many endo's have you had over the last 4 yrs?
~I know you have nodules, but have they checked your antibodies to rule out autoimmune thyroid disease?
~Does your endo only dose you by your TSH?
~Are you taking beta blockers to slow your BP/HR?
~Are you on ATD's and if so how long have you been on them?
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You really need to be on a beta blocker for your high heart rate, and with your recent T3 being high I don't know why they haven't started you on an ATD. You actually look like a prime candidate for ''add back therapy''. This is where they treat you for hypo and hyper at the same time. Many ppl with graves or ppl who have graves antibodies and hashi antibodies are treated this way. In laymens terms, you would take synthyroid for your T4, and an ATD for your T3.
These are the antibody tests to ask for
TSI-Graves marker, you should have ZERO antibodies. Even if your numbers pop up under the ref range, you have graves
TPO-INFLAMMATION MARKER
ATG-ANTITHYROGLUBIN (usually found in ppl with hashi)