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Hypothyrodism

Does everyone gain weight when being hypo?  I had my thyroid removed on April 6th due to cancer and my latest TSH as of this Thursday was 14 however since my surgery I have lost 7 pounds.  As soon as I get my TSH gets to 34 I am having the I-131 and I just didn't know if there are people that don't gain weight when hypo or if I should expect weight gain as my TSH increases or after radiation.  
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393685 tn?1425812522
Best to post on your old thread so you can get current member responses but I would like to suggest you look at further testing.

How high is this TSH also?

You need to get the Free T3 and Free T4 tests along with the TSH. You sound  to me - like your Free T3 could be low and need to look at a different med option to feel better.

A .300 mcg T4 med is super high and someone should have looked at that relaizing the other tests should be done to see if balancing a T3 and a T4 med FIRST - would be more helpful than adding in such a large amount of just T4 all the time.


The only way to tell of you could be a candidate for changing your meds to feel better would be to run the labs I stated above and measure out the ratios to see if T3 meds is an option.
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Avatar universal
Hi I'm 20 years old and have had hashimotos since I was 11 a year ago I had my thyroid completely removed and cancer was found in it I am currently on 300 mcgs of synthroid and my TSH is not coming down the last labs showed that the level was almost 300 my doctors are all stumped and have no clue how to help mr I am bloaty and now I am suffering heart issues because of the thyroid I also found out recently that I have a hiatal hernia so I can't keep food down anymore someone please help me out
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Avatar universal
Hi,
Just to give you my two cents worth....for me, whenever I've been hypothyroid -- yes, you do tend to gain weight for no reason at all & feel bloated. So I wouldn't think it unusual at all if  you gain as your TSH goes up.
And whenever I've had hyper symptoms (very low TSH) -- I tend to drop weight very easily even though need to eat more! & don't get the bloating. I think most women have this same experience, so I don't really feel it's accurate to tell you that the weight gain doesn't go along with hypothyroidism -- it usually does. Just to let you know you're not alone in that!
  Best wishes,
-Megan
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Avatar universal
If you have food intolerance or to pills, could be the reason for bloating etc. You have to figure out which foods/pills, by process of elimination.  I have been going through this too. I had to eliminate a certain mineral supplement from my daily vitamin/mineral supplements because it bloated me big time.
Sunflower seeds in the shell was a biggie too. I tend to gain weight in the stomach area anyway.  With the bloating from the intolerance of foods/pills,  my stomach feels like its laying on my lap, and I can't stand clothing around my waist either. Grrrrrrr!

LOL!
GL
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Avatar universal
thanks great info, maybe that;s why I have a little difficulty adjusting back on and then when doses increase....maybe I should try the levoxy and see if I do better on it. It takes me a long tome to adjust...usualyy have alot of bloating etc for several months after going back on, or a med increase.
Thanks again...
Pam
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Avatar universal
Thank you...:) I thought looking back the nightsweats were from when I was having lower levels....I too am med/food sensitive and I've never tried Levoxyl, always synthroid, if I start having trouble again I will ask my Endo about trying Levoxyl, is it also name brand?

Thanks so much for your post, I appreciate it...Have a great day:))
Pam
Helpful - 0
Avatar universal
Levoxyl is the same as Synthroid, but different brand/manufacture and is a brand name.  However,  my Insurance charges less, as if Generic.

Synthroid contains: cornstarch, sugar, lactose, magnesium stearate, povidone, and talc.

Levoxyl contains: Microcrystalline cellulose, croscarmellose sodium and magnesium stearate.

GL

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Avatar universal
It could very easily be female/period/peri-menopausal related (the 10 to 15 years before menopause).  I had the same thing or just about, for a brief time during my mid. 20s and eons brefore Graves'.  Although, not to the point of having to get up and change sheets, pj's, and showering in the night  It did have me up vomiting.
However, night sweats and insomnia are hallmark symptoms of low thyroid.


Feeling nervous inside,  tremoring, diarrhea, heart racing, and feelings of adrenaline running, internal vibrating,  and cramping, can be form you level still too hyper for you.  I have to have my TSH at 3.6 for most of these to stop, however this is per my personal body and not necessarily others.

I am feeling fine, however still dealing with some minor issues but in general I feel fine.  I do not regret RAI.  I am taking Levoxyl which has the least amount of active/inactive ingredients. I have reactions to certain med. ingredients, foods, etc. so this brand of meds. is best for me. I am even susceptible to talc in baby powder, can you imagine what it would do when ingesting it!
No thanks! ;)

GL
Helpful - 0
Avatar universal
Hi Graveslady,
I enjoy reading your post, very informative and intelligent.
I had RAI last Friday for Hashitoxosis, been off my synthroid for a month, and restarted 1/2 dose of 137 today, and for the next 10 days.

I talked to the doctors office yesterday, and I mentioned to the nurse since RAI I've been having really bad night sweats (I've had them before and it's usually been before they increased my synthroid, and generally occur before my period begins and subsides). She said thyroid can do that around your periods if it is low, as well as high. But that didn't come from the dr...My FSH is fine, and I went through this at different times then it will disappear, but Ive never had it nights straight or have it continue after the second day of my period. can this be from RAI? If so does it last real long..

I did begin a period on thursday, yet the sweats are stil there (bad enough changing sheets, pj's, and showering in the night).... Can this be from lack of thyroid hormone as well as being hyper.

Also, feeling nervous inside your body, can this be from low thyroid too, as when I was really hyper, I was tremoring bad and diareah, heart racing, and feelings of adreniline running thru my body.. now it's more of just an agotated feeling a vibrating, different than tremors that I feel, and crampy, foggy...

I know everyone is different but I'm trying to figure out if the seating and nervousness can come when you're low too.

Also do you feel well now after RAI? Do you take synthroid? Do you regret RAI?


Sorry for all the questions, but am looking forward to your reply...
Pam
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Avatar universal
My endo said that before I can have the radiation and scan done on my body that my TSH has to be 34 in order for them to conduct it.
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Avatar universal
Some hypos lose weight, some hypos gain weight.

Some hypers gain weight, some hyper lose weight.

Its an individual matter, depending on your system.

TSH level has nothing to do with weight gain or loss.

If you had weight issue before, you will probably have weight issue after. Or if you are prone to gaining weight, such as a family history, you'll probably gain. If not now, then eventually.

I have Graves' disease and I had RAI to stop weight loss.  After RAI I gained half back, however it took two years or better .  To keep from gaining back the other half, I watch what I eat.  I had weight issues before Graves' as well.  However not with dieting and loosing weight, that has always been easy. Keeping it off is my problem, as well as wanting to be thin.

Its an individual matter and can not be predicted.

GL
Helpful - 0
Avatar universal
I dont understand this comment / question at all.  What are saying that you want your tsh to be 34.  Your tsh should be around 2.0
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