POLL/Neuropathy & Thyroid-Please Join

[msfergy]

Ok I have decided to place a Poll on here myself.
How many of you out there have Neuropathy problems along with Thyroid? If you do give a breif description of the problems and what type of thyroid problem you have. If enough of us out there suffer from this then maybe the Endo's would relate to it, as we can print this out and take it to the Doctor with us. Thanks for participating.

[worriedinmd]

I have been awakened in the middle of the night because my arms hurt from the circulation. Never thought about its being connected to my thyroid though. All my bloodwork has been normal, so it may just be a coincidence.
- v

[ChitChatNine]

Did they ever talk about RSD (reflex sympathetic dystrophy) .. it starts with the peripheral nerves ?

C~

[Melissa072]

I have just read all your posts and am very interested.
I don't know a lot about thryoid problems etc but have had a lot of neurological stuff going on in the last 12 months. Tingling hands, feet, groin, numbish feel to feet and ankles, burning, cold spots, feeling like water running down leg, face pain, dizziness, and most is still going on after a year, very annoying.
I have had 3 mri's of brain and whole spine to look for ms, all clear, as well as a negative lumbar puncture. I have a multi nodular goitre, and very high levels of thyroid antibodies, my tsh is fine or normal. Neuro diagnosed me with hashimotos enc(some long name) due to the thyroid antibodies and neurological symptons which is steroid responsive, I have had 2 lots of steroids though and no change. I'm curious, does anyone else have several neurological symptons going on and have normal thryroid but elevated thryoid antibodies? I'm at my wits end, been searching for answers for a year now to no avail.

[msfergy]

I still do not know to this day what is coming from where, had MRIs done over and over and everything was consistant with my pain, Pain Doc just advised me the other day after my third visit to him that I have Fibromyalgia so now back to step one and confused, not sure if he is just a quake or what but I still beleive it is coming from my spine or I really have just lost my mind somewhere, I now started St. Johns Wart for depression to see if it might help me out, the Lyrica makes me feel so tired and druged.
Tina

[Manxie]

Me too! Recently diagnosed with hypo have had the most awful carpel tunnel syndrome- so bad I have had to have a dictator thing at work (cant rememebr the name! brian fog!!!) becos I cant write legibly any more. Wearing a splint at night (which I bought mysoef as doc had no suggestions!) has helped but I still have awful pain in thumb joints (worse on right), Sometimes get strange sensations in feet and down right hand side of face too. Doc does seem to accept these are hypo related (well so far anyway!)
           Love Manxie

[bluefishga]

I have had hypothyroidism since I was 13 years old. I am 36 now and have had 4 children. When I was diagnosed it was because I was lactating (yes at 13 , high prolactin levels) I was very jaundiced and my face looked like the moon. My lips were wide and my whole face was distorted. I slept about 18-20 hrs a day weighed 89 lbs. needed gloves in the summer.. my body temp was 95. I was stopped in the hall at my school..the dr's knew I wasn't well. I got to normal after about a year or so of adjusting my Synthroid. settled around 125 mcg this was great until I began having children..my need for synthroid has gone up with each child  I now take 300mcg. I also became diabetic with each pregnancy and needed to inject insulin 4x a day. My highest weight was 156 after my 4th child ..my normal  (current ) is around 127-130. I do run and eat well. Though I have to really fight fatique , a lot of muscle and neck pain especially if I don't run regularly. I do have neuropathy but i ha diabetes a few times, and at higher weights I would have diabetes..I had it at 156lbs. I am 5'3". I am concerned though that I may actually have a pituitary issue.

Your TSH (Thyroid Stimulating Hormone), which is the best test of thyroid function, is low with a value of 0.04.

Your Prolactin is normal with a value of 18.1. (I have galactorrhea)

Your T3 Uptake is normal with a value of 34.

Your Thyroxine Free is normal with a value of 1.49.  (i thought she ran a t4 not ft4 which would indicate pituitary.?

Any doctors out there...why do I take such doses. I am to the letter about my well being, no skipping meds, etc. I am exhausted though...heart palpitations ( i have had them on an ekg at the hospital, they lasted over 8 hours) I have never eaten more than 1500 calories a day. (not counting pms days..lol)anyhow..just hoping for advice, I'm not new to any of this. it's been over 20 years.