Please Help I don't want to die but I don't want to live like this either!

[dani2776]

Someone please help me! Please tell me this is all normal, tell me I am going to be ok! I have Hashimotos, diagnosed last April.  It is coming up to a year and I am still struggling.  I CAN NOT keep going like this.  I had a brief period where I felt better but it keeps going downhill!  I am back to thinking that there is something else wrong, something that they are missing.  Here are my symptoms.  Fatigue but cannot sleep, depression with anxiety, dizziness but not room spinning.  I feel like I am drunk, equilibrium is all off.  I can't walk straight to save my life.  Vision is blurry but yet eye exam is normal. My hands, feet, and eyes are swollen.  I am cold but yet having hot flashes.  Heart rate is slow but yet have periods where it is racing. Internal shaking sensation and tingling sensations as well.  Here is a list of my most recent labs.  I was just increased to 50mcg from 44 on my Levoxyl.

September (when I felt my best)
TSH 2.060 (range 0.40-5.600)
FT4 0.84 (0.61 - 1.12)
FT3 347 (230-420)

December 2nd
TSH 4.420
FT4 0.76
FT3 295

December 22nd
TSH 5.810
FT4 0.71
FT3 305

January 11th
TSH 7.160
FT4 0.69
FT3 353

I really can't live like this anymore!  I am at my wits end and what I am experiencing is not fair to my family either.  This is no way to live, please help!

[TamraW]

Mary Shomon recommended a sun lamp, but those are 200 plus dollars. I go outside whenever I can. It works better for me than D pills.

Dani, have you considered a coaching session with Dr. Shames? I don't know his rates, but he might be able to help you pinpoint if you have something else triggering your swelling. Below is his website:

http://xxx.xxxxxxxxxxxx.xxx

:) Tamra

[stella5349]

Dani's Vit D  information is exactly what I have been reading about and talked over with the interviews I have had with some expert doctors on hormones.

The medical world has put out that we need more Vit D - but there is no talk about what Vit D really is..

and it's misleading calling it a vitamin when it really is a hormone.... Maybe the term will change and call it Hormone D-3 instead of Vitamin.

You can not say one particular SAFE dose of it. It all depends on where you are at with it in your body ( it is NOT water soluable as the B's and C's are) so it does require some work keeping it right.

Dosages range from 2000iu's to 20,000 iu's daily or you hear alot doing it every other day or even once weekly. Why? - again - because of its hormonal effects on all the "feel Good" levels like seratonin  and dopamine. Also because it effects all the brain hormones if the brain is getting the right mix then the other hormones will accept the brains response to feeling better and they will then too. Here is where the link is to thyroid hormones with Vit D-3. TSH- pitutiary response well to the other brain hormones - tells the thyroid - ( or the thyroid meds) things are good on my end and the thyroid hormones are saying - Great we can push out what we need too.

then the other cycle of other hormones respond to those. Understand?

I have not seem the D-3 I was told to take like at Walgreens or other main chain drug stores. I have a pharmacist in my town that carries particular supplements. She is a small pharmacist - but agrees with alot of Intergrative methods of healing. I trust her and this D-3 I take as a liquid - is great. It makes a big difference for us.

Dani - call your doctor. Ask about taking to start a 4000iu of D-3 daily and see what he or she says. I am pretty sure your doctor will support you on that trial dose based off your labs and you will be happy with the results in a few days.

[Eloquin]

Here are some things that will help:

the medical world is not universal in agreement over what the "Right levels" are for a lot of hormones and vitamins. Vitamin D is no exception. I can't tell you how many people I have seen that had a similar story and their Vitamin D level was in the low 30's. A lot of newer doc's agree that  a healthy person should not be lower than 60! and if you have a range to look at, aim to be in the middle, not on the low end.

Next, you need to look at your diet. There are foods that will slow down your thyroid if you eat them raw or lightly cooked or steamed. these foods are: Broccoli, Cauliflower, Cabbage, Brussel  Sprouts, Turnips, Rutabegas, green leafy vegetables.
They block your thyroid hormones from being all they should be by blocking iodine from your blood. If you eat any of those things listed above you should cook the heck out of them because it destroys the enzyme responsible for blocking the iodine.

Your estrogen was very low as well and that effects all sorts of things in your body. remember, when looking at the "normal range" it is not ok to be in the bottom of that range, you will still have negative effects. Aim to be mid range on all your results and you should feel much better.

Don't let your fatigue stop you from doing light exercising. You may feel like hell but get up and just walk around the house for 20 minutes every day. Your heart needs the exercise to not get weak. you don't need to walk fast you just need to keep moving for 20 mins strait.  

[dani2776]

Do you know what the recommended SAFE dose is?  My Vitamin D level is "low nomal" according to my doc at a level of 32 so it probably wouldn't hurt to try some.  And if it helps stress too, well that's even better!!!  I remember reading somewhere that too much can be harmful so of course that worries me too!

[blsdnsvd]

Can u purchase this particular Vitiman at a drug store???

[stella5349]

Was in a hurry posting this so if I wasn't clear on my thoughts rattling through my head....  just let me know :)